I see a physical therapist who specializes in Long Covid, and one of the things she works on most is POTS/orthostatic intolerance. She's helped me a lot. She started me on exercises to strengthen the area between my neck and my knees, the place where the blood pools (when it's supposed to be pumped to my brain . . . ).
You can search YouTube for videos about exercises for POTS and find pretty much everything she's had me doing. I like working with a PT because it keeps me accountable, but doing the exercises yourself would probably still help.
I wonder if Long Covid meds might also help your POTS.
I had POTs when I was 21. I was very run down, thin and undernourished and probably dehydrated. I believe it got better after numerous supplements (thus the water with them). Also, went on a hypoglycemic diet. I think worn out adrenal glands was a part of it. Maybe something here would be helpful to someone.
The most common one is low dose naltrexone. I got mine compounded in 1mg tablets, scored so I could start at 0.5mg/day and work up gradually. My insurance covers 1.5 and 4.5mg tablets, so I had to pay a bit for the compounded ones ($68 for 90 1mg tabs - that seemed worth it).
The Long Covid doctor at Mayo recommended several other possible options to talk with my doctors about: modafinil, ketotifen, guanfacine, rapamycin - depending on what the specific issues are. Low dose naltrexone is supposed to help with autonomic issues, as well as fatigue and pain; ketotifen can help with shortness of breath and digestive problems, etc.
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YouTube has the CHOP PROTOCOL EXERCISES for pots.
Long Covid meds? Which meds were recommended to you?
I had POTs when I was 21. I was very run down, thin and undernourished and probably dehydrated. I believe it got better after numerous supplements (thus the water with them). Also, went on a hypoglycemic diet. I think worn out adrenal glands was a part of it. Maybe something here would be helpful to someone.
The most common one is low dose naltrexone. I got mine compounded in 1mg tablets, scored so I could start at 0.5mg/day and work up gradually. My insurance covers 1.5 and 4.5mg tablets, so I had to pay a bit for the compounded ones ($68 for 90 1mg tabs - that seemed worth it).
The Long Covid doctor at Mayo recommended several other possible options to talk with my doctors about: modafinil, ketotifen, guanfacine, rapamycin - depending on what the specific issues are. Low dose naltrexone is supposed to help with autonomic issues, as well as fatigue and pain; ketotifen can help with shortness of breath and digestive problems, etc.