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Headache and Migraine Group: Let’s connect
Welcome to the Headache & Migraine support group on Mayo Clinic Connect.
If you or someone you care about has headaches or migraines, this is a great place to talk with others with similar experiences. It’s a welcoming forum to learn from each other and share stories about challenges, coping strategies, setbacks and what helps.
Take these steps to participate in the group:
- Follow the group.
- Browse topics.
- Use the group search to find answers to your questions.
- Introduce yourself.
Pull up a chair and chat. Why not start by introducing yourself? What is your experience, or your loved one’s experience, living with headache or migraine (i.e., what type, how long since diagnosis, how it’s managed)? Have a question, tip or story to share?
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@migraineelaine
It took a year before I noticed any relief from the Botox.
But then it only lasted a year, now I’m back to 10 pain but injections are going in my neck now and that helps.
Jody
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5 ReactionsThank you very much sir
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2 ReactionsHello I am new. I reside in the American Southwest. Migraine since age 19. Have diagnosis of intracranial hypertension treated with stent not at Mayo. Wish to travel to Mayo for follow up. A friend recently went to Rochester location and found the care phenomenal for a different brain issue. Having trouble getting followed in my home state. Thank you for this site.
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2 ReactionsLeft work at the job of my dreams having 18 + migraines per month. Treated then with sumatriptan with success.
, but turned out it was harmful later on. I am receiving Botox since 2017 with much success. I am used to it by now. I find it was hardest the first 2x. It got easier after took a break at beginning of pandemic took a few cycles to get more relief. I hear a crunchy sound in my scalp. I feel like this has been a game changer for me. Local neurologist I found is so supportive. I also get lidocaine nerve blocks and trigger point injections from my neurologist. Medication methods had failed. I use ice and dark room for pain. Tried Emgality injections were super easy for me due to injections of my animals and making IVs at hospital I worked at. Unfortunately adverse effects were too much to bear. Impacted constipation.
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2 ReactionsI've been doing Botox for a long time, and it's the best preventative I have. But what I've learned is not all doctors do it the same. I would switch doctors. I did that and got much better results with the second one. There is a doctor named Dr. Andrew Blumendeld who is an expert on Botox. Go on YouTube and he does an actual demonstration on the procedure. Good luck. Jim
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1 Reactionthanks, I'll look Dr. Blumenfeld up!
OK, I watched the video and this clearly explains my Neanderthal results. I may try Botox again once I've screwed up my courage. Having just failed Qulipta, I'm still coming down from that
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2 ReactionsSure. I think it will be helpful.
Thank you. I saw YouTube and he spoke of drawings of a patient. I thought he sounded so caring to be that detailed and compassionate.
I'm a 55 year old male who has had cyclic cluster headaches since the late 80s.
Over the past few decades I've tried virtually every medication treatment (both on and off-label) on the market. The only ones that seem to offer relief are abortive vasoconstrictors such as triptains and high dose oxygen.
As I've aged, I've noticed my cycles are shorter but the intensity of the headaches that occur during those cycles are worse.
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