Having lots of back pain by my kidney and now spreading .

Posted by ronc531 @ronc531, Apr 6 2:11am

they ran blood and urine test but didn't find anything.

had another CT scan Thursday to see if there has been much change.

the scan showed little changes a little grow but not too much.

pain seems to be getting worse and lasting longer. not sure what to do.

is there much pain with kidney cancer stage 4? or could it be the treatment causing the pain.

Would an MRI be better than a CT scan?

Still losing weight though. have lost about 55 to 60 lbs. in the last year without trying. I do take Ozempic for my diabetes, that might be causing it.

Interested in more discussions like this? Go to the Kidney & Bladder Support Group.

@cehunt57

@ronc531 welcome to Mayo Clinic Connect. What did you have a CT scan of and why? You mentioned “little changes a little grow but not too much”. You also mentioned “kidney cancer stage 4”. Have you been diagnosed with Kidney Cancer stage 4? I want to make sure I understand. There may be a group and / or discussion that deals more specifically with Kidney Cancer. Chronic Kidney Disease (CKD) doesn’t usually cause the kind of pain that you are describing.
In regards to Ozempic, it is a medication used to treat Diabetes as you know. One of it’s side effects is weight loss and as you noted lots of people are using it for that but that wasn’t what it was designed for. I am unaware of Ozempic being related to pancreatitis, gall bladder issues or causing pain.

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Hi, @cehunt57

According to the Ozempic website, pancreatitis and gall bladder issues are possible side effects. (I had also heard that another possible side effect is gastroparesis, but I don't see it specifically listed there, although they do mention severe stomach problems.)
https://www.ozempic.com/how-to-take/side-effects.html
Here is quote from the above link.

quote: "What are the possible side effects of Ozempic®?
Ozempic® may cause serious side effects, including:

inflammation of your pancreas (pancreatitis). Stop using Ozempic® and call your health care provider right away if you have severe pain in your stomach area (abdomen) that will not go away, with or without vomiting. You may feel the pain from your abdomen to your back

changes in vision. Tell your health care provider if you have changes in vision during treatment with Ozempic®

low blood sugar (hypoglycemia). Your risk for getting low blood sugar may be higher if you use Ozempic® with another medicine that can cause low blood sugar, such as a sulfonylurea or insulin. Signs and symptoms of low blood sugar may include: dizziness or lightheadedness, blurred vision, anxiety, irritability or mood changes, sweating, slurred speech, hunger, confusion or drowsiness, shakiness, weakness, headache, fast heartbeat, and feeling jittery

dehydration leading to kidney problems. Diarrhea, nausea, and vomiting may cause a loss of fluids (dehydration), which may cause kidney problems. It is important for you to drink fluids to help reduce your chance of dehydration. Tell your health care provider right away if you have nausea, vomiting, or diarrhea that does not go away

severe stomach problems. Stomach problems, sometimes severe, have been reported in people who use Ozempic®. Tell your health care provider if you have stomach problems that are severe or will not go away

serious allergic reactions. Stop using Ozempic® and get medical help right away if you have any symptoms of a serious allergic reaction, including swelling of your face, lips, tongue, or throat; problems breathing or swallowing; severe rash or itching; fainting or feeling dizzy; or very rapid heartbeat

gallbladder problems. Gallbladder problems have happened in some people who take Ozempic®. Tell your health care provider right away if you get symptoms which may include: pain in your upper stomach (abdomen), fever, yellowing of the skin or eyes (jaundice), or clay-colored stools

food or liquid getting into the lungs during surgery or other procedures that use anesthesia or deep sleepiness (deep sedation). Ozempic® may increase the chance of food getting into your lungs during surgery or other procedures. Tell all your health care providers that you are taking Ozempic® before you are scheduled to have surgery or other procedures

The most common side effects of Ozempic® may include nausea, vomiting, diarrhea, stomach (abdominal) pain, and constipation." end quote.

Also, here is the link to an NBC News article, citing research from the Journal of the American Medical Association, that talks about Ozempic and pancreatitis, gall bladder issues, and gastroparesis.
https://www.nbcnews.com/health/health-news/ozempic-wegovy-linked-severe-medical-conditions-stomach-problems-study-rcna118823

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@cehunt57

@karina1954 I have stage 4 CKD since 2016. I’ve had a colonoscopy since that time. If you’ve never had one before I’ve got to say that the prep is worse than the procedure itself. If anything the prep is good for your kidneys because you will be avoiding red meat, having soft foods, then clear liquids (avoiding red or purple fluids) and consuming SO much clear liquids as part of the pre-med. it not only cleans out your GI system; it thoroughly flushes your kidneys in the process. My hopes and prayers are with you that it all goes well!

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Thank you Cheryl🤗

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@my44

Hi, @cehunt57

According to the Ozempic website, pancreatitis and gall bladder issues are possible side effects. (I had also heard that another possible side effect is gastroparesis, but I don't see it specifically listed there, although they do mention severe stomach problems.)
https://www.ozempic.com/how-to-take/side-effects.html
Here is quote from the above link.

quote: "What are the possible side effects of Ozempic®?
Ozempic® may cause serious side effects, including:

inflammation of your pancreas (pancreatitis). Stop using Ozempic® and call your health care provider right away if you have severe pain in your stomach area (abdomen) that will not go away, with or without vomiting. You may feel the pain from your abdomen to your back

changes in vision. Tell your health care provider if you have changes in vision during treatment with Ozempic®

low blood sugar (hypoglycemia). Your risk for getting low blood sugar may be higher if you use Ozempic® with another medicine that can cause low blood sugar, such as a sulfonylurea or insulin. Signs and symptoms of low blood sugar may include: dizziness or lightheadedness, blurred vision, anxiety, irritability or mood changes, sweating, slurred speech, hunger, confusion or drowsiness, shakiness, weakness, headache, fast heartbeat, and feeling jittery

dehydration leading to kidney problems. Diarrhea, nausea, and vomiting may cause a loss of fluids (dehydration), which may cause kidney problems. It is important for you to drink fluids to help reduce your chance of dehydration. Tell your health care provider right away if you have nausea, vomiting, or diarrhea that does not go away

severe stomach problems. Stomach problems, sometimes severe, have been reported in people who use Ozempic®. Tell your health care provider if you have stomach problems that are severe or will not go away

serious allergic reactions. Stop using Ozempic® and get medical help right away if you have any symptoms of a serious allergic reaction, including swelling of your face, lips, tongue, or throat; problems breathing or swallowing; severe rash or itching; fainting or feeling dizzy; or very rapid heartbeat

gallbladder problems. Gallbladder problems have happened in some people who take Ozempic®. Tell your health care provider right away if you get symptoms which may include: pain in your upper stomach (abdomen), fever, yellowing of the skin or eyes (jaundice), or clay-colored stools

food or liquid getting into the lungs during surgery or other procedures that use anesthesia or deep sleepiness (deep sedation). Ozempic® may increase the chance of food getting into your lungs during surgery or other procedures. Tell all your health care providers that you are taking Ozempic® before you are scheduled to have surgery or other procedures

The most common side effects of Ozempic® may include nausea, vomiting, diarrhea, stomach (abdominal) pain, and constipation." end quote.

Also, here is the link to an NBC News article, citing research from the Journal of the American Medical Association, that talks about Ozempic and pancreatitis, gall bladder issues, and gastroparesis.
https://www.nbcnews.com/health/health-news/ozempic-wegovy-linked-severe-medical-conditions-stomach-problems-study-rcna118823

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@my44 thank you for the information on Ozempic. A Mayo endocrinologist recommended it for me, but my local endocrinologist chose a different medication. That is what I ended up going with plus my insurance wouldn’t cover Ozempic at the time. So I never delved into the side effects like I would have had I seriously been considering starting it. My local endocrinologist did not rule it out entirely but said that we could consider it at some future point if I was interested. I have lots of history with this doc and also trust her completely. I also do have a history of gastroparesis so perhaps she was trying to help me avoid further complication from that? I’m glad that Ozempic has helped some people control their blood sugar and some people lose weight that need to. But at present it is apparently not the medication for me.

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@cehunt57

@my44 thank you for the information on Ozempic. A Mayo endocrinologist recommended it for me, but my local endocrinologist chose a different medication. That is what I ended up going with plus my insurance wouldn’t cover Ozempic at the time. So I never delved into the side effects like I would have had I seriously been considering starting it. My local endocrinologist did not rule it out entirely but said that we could consider it at some future point if I was interested. I have lots of history with this doc and also trust her completely. I also do have a history of gastroparesis so perhaps she was trying to help me avoid further complication from that? I’m glad that Ozempic has helped some people control their blood sugar and some people lose weight that need to. But at present it is apparently not the medication for me.

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Hi, @cehunt57. I agree with you. Ozempic may be good and work for some people, but not all. A lot of endos agree that the serious side effects are less common than the nausea, vomiting, diarrhea, stomach (abdominal) pain, and constipation. Many people have taken Ozempic and have done very well for years without developing any serious side effects. Endo and patient would need to weigh the risks of possible serious side effects against the desired and expected benefits in order to decide if Ozempic is the best option. The decision process would be different for each person, based on individual circumstances and needs. As they say, what's good for the goose isn't necessarily good for the gander. I'm glad that you're currently doing well on your current medication and that you have a good endo that you trust. That's so important. Stay well!

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@ronc531

The prep suck!

the first time didn't work and had to do it a second time and drink 2 gallons of the prep liquid, worst tasting stuff ever.

that still didn't work so they finally had me swallow a small camera to go through my system.

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Thanks ronc531,
Had procedure today. All went well🙏🏻. Prep clenpiq the best.
Take care.

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