Hashimotos/seizures

Posted by dixie122074 @dixie122074, Sep 28, 2022

My 17yo daughter and I both have been diagnosed with hashimotos and taking prescribed Synthyroid for years. Just about two months ago my endocrinologist checked because I was having a lot of pain my vitamin d levels. They were extremely low. When my daughter had her pediatric endocrinologist appointment I mentioned this and it was checked. Her levels were even lower than my own. She was prescribed Vitamin D2 1.25 mg 50,000ui once per week for six weeks. On Wednesday she took her first dose of this. On Friday 9/16 she had a grand mal seizure at school (no history or head trauma or known family history of epilepsy) four days later she had another seizure in the car. I don’t know how it would be possible I cannot find any connections to this vitamin and seizure activity, but I am concerned that there may be. I don’t know if anyone else has ever had something like this happen. If anyone has I’d like to know.

Interested in more discussions like this? Go to the Epilepsy & Seizures Support Group.

@dixie122074 Welcome to Connect. You are asking a great question. Asking if there is a relationship between prescription medication and symptoms that may be side effects is always good to check on and so often overlooked.

I did some looking, and what I found suggests that possibly low levels of Vitamin D may be associated with seizures. It is something under study with researchers right now. Possibly it may be the low levels of vitamin D that caused the seizure, and not the act of taking Vitamin D? Vitamin D is important to so many different pathways of biochemistry in the body. That question can only be answered by a specialist and/or a medical researcher.

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5143473/https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4149948/https://bmcpediatr.biomedcentral.com/articles/10.1186/s12887-021-02906-7https://www.nursingtimes.net/students/the-effects-of-vitamin-d-on-epilepsy-29-05-2018/

I also looked for literature relating Hashimoto's with seizures and this is what I found:

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8140527/https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6517482/https://www.seizure-journal.com/article/S1059-1311%2819%2930289-4/fulltext

This is of interest to me, because I am a person who has recovered from Hashimoto's. My Hashimoto's was affected by toxicity from silver dental amalgam fillings that were old. Removing these improved everything and dropped my antibody levels against my thyroid. I take Armor thyroid which is desiccated pig thyroid gland. It has all the components of thyroid hormones, where Synthroid does not, and the body must convert it to make the other components. That may be something you would want to ask your doctor about. Some patients doesn't convert this well, according to my environmental medicine doctor.

REPLY
@jenniferhunter

@dixie122074 Welcome to Connect. You are asking a great question. Asking if there is a relationship between prescription medication and symptoms that may be side effects is always good to check on and so often overlooked.

I did some looking, and what I found suggests that possibly low levels of Vitamin D may be associated with seizures. It is something under study with researchers right now. Possibly it may be the low levels of vitamin D that caused the seizure, and not the act of taking Vitamin D? Vitamin D is important to so many different pathways of biochemistry in the body. That question can only be answered by a specialist and/or a medical researcher.

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5143473/https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4149948/https://bmcpediatr.biomedcentral.com/articles/10.1186/s12887-021-02906-7https://www.nursingtimes.net/students/the-effects-of-vitamin-d-on-epilepsy-29-05-2018/

I also looked for literature relating Hashimoto's with seizures and this is what I found:

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8140527/https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6517482/https://www.seizure-journal.com/article/S1059-1311%2819%2930289-4/fulltext

This is of interest to me, because I am a person who has recovered from Hashimoto's. My Hashimoto's was affected by toxicity from silver dental amalgam fillings that were old. Removing these improved everything and dropped my antibody levels against my thyroid. I take Armor thyroid which is desiccated pig thyroid gland. It has all the components of thyroid hormones, where Synthroid does not, and the body must convert it to make the other components. That may be something you would want to ask your doctor about. Some patients doesn't convert this well, according to my environmental medicine doctor.

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@jenniferhunter, thank you so much for sharing with us those interesting studies of Vitamin D on epilepsy!!!
Have a nice week.
Santosha

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@santosha

@jenniferhunter, thank you so much for sharing with us those interesting studies of Vitamin D on epilepsy!!!
Have a nice week.
Santosha

Jump to this post

Thank you, Santosha. I'm glad you benefited from the discussion. I didn't know about those studies until Dixie asked the question, so I did some looking. Thanks for your comment.

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