Connect
Hashimoto's Thyroiditis in remission
In 1995 I had a Hot Nodule, thyroid, non-cancer. Most of the thyroid was removed. I am Hypothyroid. Years ago I was breaking out with severe hives all over my body, face, throat. In and out of the E.R.. Prednisone did nothing at all. It would last for years and no one could help me. Endocrinologists would say, has to bean allergy. I would tell them I've been tested it's not. I saw a dr. in S, Carolina who was doing a trial about Urticaria {hives]. Tested positive for Hashimoto's, I also had, Licken Planus which is white patches inside mouth, cheeks. For the hives saw Immunologist, treatment for the hives were injections, of Xolair for almost 1 year. Happily I'm in remission now. I have never met anyone who has experienced the same?
Like
Helpful
HugInterested in more discussions like this? Go to the Autoimmune Diseases Support Group.
Connect
Hi @kimspr3 thank you for sharing your story and the success you have found.
i'd like to tag fellow Connect members @lydaneedsadvice @pfralic @dawn123 and @jenniferhunter have experience with Hashimoto's and may be able to offer you support.
What has your doctor suggested you do to continue to remain in remission?
-
Like -
Helpful -
Hug
2 ReactionsHi Ethan, There is nothing more to do. I was a few years free of hives until my Pain Management Dr. wrote a script for Cymbalta, took one time and the hives were back. That is when I had the injections. There are drugs that mention the side effects, hives. I have to be very careful. Thank You again for your help. I appreciate it!! Very few care in this world. I will make those contacts. Wishing you a good day!
-
Like -
Helpful -
Hug
2 ReactionsHello @kimspr3 I have Hashimoto's, and my treatment is simply natural desicated pig thyroid. Over time, that dosage has changed. My doctor told me that some patients cannot convert the components in the synthetic thyroid medicines, and need natural thyroid because it has all the components. When I was first diagnosed, the antibody levels against my thyroid were so high, they were off the charts. My doctor advised me to have my old silver amalgam dental fillings removed and replaced with non metal composites because the silver ones leach mercury. After I did that, my blood tests had low levels of antibodies against my thyroid, and I had some recovery and was able to reduce my thyroid medication. In the last couple years, I've had some problems with old dental work with crowns and root canals, and my doctor said that might be the reason that my thyroid isn't working as well now. I have had an infection move from the root of a tooth into my jaw bone requiring oral surgery to clean out the infection and a bone graft to replace the bone that was destroyed. I expect more trouble in the future because of these old root canals with crowns, and may be moving to dental implants. This was the result of trauma to the teeth when I was a kid and work that was done because of the injury. I go to a holistic biological dentist who's advice on implants is to use the new zirconia implants that do not have metal in them. He says the jaw bone and dental ligaments will actually bond with these and grow around them, while they don't do this well with metal implants such as titanium. The body doesn't like metals and can develop immune reactions and I have metal in my dental crowns. I have had multiple thyroid nodules and a needle biopsy, and those have decreased in size from where they started at the beginning of this. My doctor is a functional medicine or environmental medicine doctor who manages my thyroid function. I know when I notice things change, I call the office and we adjust my dosage, and he follows up with blood work to check it. I wouldn't choose to get dental implants trying to improve my thyroid, but it will be interesting to see what happens if I do get them in the future.
-
Like -
Helpful -
Hug
2 ReactionsYou have been threw a lot. I hope it will not be as bad as you think in the future. Science gets better and better. For you and others there is always hope.
-
Like -
Helpful -
Hug
2 ReactionsHas anyone have/has hoshimoto /under active thyroid and gone to Mayo Clinic? I’m asking because my daughter is 20 and has gone to 4 different endriconogisr and they all say something different
Hi @chusk1 and welcome to Connect. You may have noticed I moved your post to this existing discussion on Hashimoto's Thyroiditis so that you can see what others have posted about living with this condition. Simply click VIEW AND REPLY in your email notification to get to your post.
That must be so frustrating to have your daughter go to four different endocrinologists and receive four different responses to your daughter's symptoms and test results. If you would like to make an appointment at Mayo Clinic, please call one of our appointment offices. You can also request an appointment online. The contact information for Minnesota, Arizona and Florida can be found here: http://mayocl.in/1mtmR63
Here are a couple other discussion on Hashimoto's that I thought might be helpful:
Hashimoto's Thyroiditis and IVIG Treatment?* - https://connect.mayoclinic.org/discussion/hashimotos-thyroiditis-and-ivig-treatment/
Hashimoto's Thyroiditis and Hives - https://connect.mayoclinic.org/discussion/hashimotos-thyroiditis-2/
Back to you @chusk1, if you are comfortable sharing, how is your daughter? Can you describe her symptoms?
I have Hashimoto and was diagnosed many years ago. Others that I know that have Hashimoto have had good success managing it with medication long-term. I have sometimes went for years taking the same medication and amount and then suddenly, my numbers have changed and I've needed a different amount. I have experienced good care with my local doctor and have not needed to look elsewhere for my thyroid disorder. However, I have been to Mayo Clinic with other health issues. I was well pleased each time I've been to Mayo and highly recommend them for finding answers and solutions.