Has just PT helped anyone with balance issues not during after TIA ?

Posted by jefferyverfo2025 @jefferyverfo2025, Feb 20 9:46pm

Has anyone been success curing balance issues while turning, going up steps, going down if feet are not in right spot on steps and on and on? I can walk 4 miles on rough ground with no problems ! I had physical therapy and passed the basic of standing up, etc. But otherwise it has only gotten worse. I have learned to save myself but I get so tired of doing that but also falling down. Just today saved myself 4 times but yesterday going down only down 2 steps into my son’s mud room when leaving the house I went down. What do I do next?

Interested in more discussions like this? Go to the Stroke & Cerebrovascular Diseases Support Group.

@jefferyverfo2025

I have had 3 mris since this TIA occurred. The one I just had in Sept showed a small cerebral aneurysm which is very small. I had a brain tumor removed 12 years ago that was benign and a meningioma the size of a small Orange that almost had my spinal fluid cut off. It was in my cerebellum but I needed no therapy or anything afterwards. My TIA did not show up 2 days later. I talked gibberish for awhile that day bc the doctors said they could not understand me, and then I started all this falling, and my writing was bad. The writing came back in a few days, the speech back in a few hours, but the balance issues continue. I can a lot save myself but it sometimes happens too quickly and I go down. My 95 year old mother who has never had anything but some blood pressure issues way later in her life but had a TIA and has not been able to walk for a year. She had no balance. But she is all of a sudden dementia is happening quickly partially from a couple really bad falls to the back of her head requiring staples etc. I don’t want to end up with that if I can help it. Her mother died of a stroke, her grandmother also, and my grandmothers brother died of a cerebral hemorrhage at age 30. So strokes are definitely on Moms side.

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@jefferyverfo2025 sorry you have been experiencing everything you have outlined. My husband has had five strokes since 2018, two of which have been cerebellar strokes, the area that controls balance, and motion amongst other things. He has had motion induced daily dizziness that is debilitating the last 3 1/2 years. After multiple MRIs and all kinds of other things to rule out inner ear problems, his neurologist, diagnosed him with stroke induced 3PD, PERSISTENT POSTURAL PERCEPTUAL DIZZINESS. The only time he doesn’t have the sensation is when he is sitting still not moving his head or lying down. Also, we were told that if you have symptoms beyond 24 hours, you have not experienced a TIA, you’ve experienced a stroke. His MRIs show chronic ongoing subcortical, lacunar strokes and his MCI has progressed to Vascular Dementia. You would benefit from following through with a neurologist. Best wishes.

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I have had two TIAs and a Pontine lacuner stroke. I have been doing PT for 5 months now and it is most definitely helping. I am still careful because I do not want to fall. If you learn the excercises you can do them at home as well.

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@elisabv2u

@jefferyverfo2025 sorry you have been experiencing everything you have outlined. My husband has had five strokes since 2018, two of which have been cerebellar strokes, the area that controls balance, and motion amongst other things. He has had motion induced daily dizziness that is debilitating the last 3 1/2 years. After multiple MRIs and all kinds of other things to rule out inner ear problems, his neurologist, diagnosed him with stroke induced 3PD, PERSISTENT POSTURAL PERCEPTUAL DIZZINESS. The only time he doesn’t have the sensation is when he is sitting still not moving his head or lying down. Also, we were told that if you have symptoms beyond 24 hours, you have not experienced a TIA, you’ve experienced a stroke. His MRIs show chronic ongoing subcortical, lacunar strokes and his MCI has progressed to Vascular Dementia. You would benefit from following through with a neurologist. Best wishes.

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I went to a neurologist ; she sent me for PT,had another MRI in which they found a small cerebella’s aneurysm on my left side. I had a benign brain tumor that was in my cerebellum,the size of an orange,and a menengioma removed 13 yrs ago.That is very interesting about still having the issue past 24 hrs means a stroke!

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@jefferyverfo2025

I went to a neurologist ; she sent me for PT,had another MRI in which they found a small cerebella’s aneurysm on my left side. I had a benign brain tumor that was in my cerebellum,the size of an orange,and a menengioma removed 13 yrs ago.That is very interesting about still having the issue past 24 hrs means a stroke!

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Hi, @jefferyverfo2025 - sounds like you've been through quite a lot.

If you haven't already followed and/or checked out the discussions in the Mayo Clinic Connect Brain Tumor support group, I suggest you do so: https://connect.mayoclinic.org/group/brain-tumor-support-group/.

One discussion in particular you might be interested in is one on benign brain tumor:

-Benign brain tumor in the front: I'm freaking out
https://connect.mayoclinic.org/discussion/benign-brain-tumor-in-the-front/

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Hello, I just read your post and wonder - did your PT therapist give you balance exercises to do daily at home? Mine are with eyes open and closed and not always easy after 3 years post stroke. Also, do you wear glasses? I just found out how astigmatism has an effect on my balance. Plus my ears! So many things creep in to get us off balance.
I hope you have found some help so you don't fall any more. Keep trying!

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