Has anyone with RA hands had success with any remedy? If any?
I'm 54 and I have RA hands. I can type with one finger, can't work can't do much of anything. I'm praying for a miracle.
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I also wanted to mention that I have been trying low-dose naltrexone (LDN). The drug has been used by physicians for a long time for other indications and has a good safety record. It lacks a large scientific evidence base for use by RA patients, so is not covered by insurance. It is made at a formulary, and costs about $36 a month.
It has reduced inflammation and pain for me markedly. I went from taking Celebrex two times a day to about three times a month. My gut thanks me daily.
They think LDN may work by prompting your own body to produce more endorphins. It may also reduce inflammation. So you will want to discuss it with your doctor. But, I think there are many of us who are trying LDN with success.
I also wanted to mention that I have been trying low-dose naltrexone (LDN). They think the drug works by promoting your body to produce endorphins and by reducing inflammation. Physicians have used the drug for a long time for other indications, and it has a good safety record. It lacks a large scientific evidence base for use in RA patients, so insurance does not cover it. It is made at a formulary, and costs about $36 a month.
It has reduced inflammation and pain for me markedly. I went from taking Celebrex two times a day to about three times a month. My gut thanks me daily.
So, in any case, you would want to discuss it with your doctor. But, I think there are many of us who are trying LDN with success.
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2 ReactionsI was reading about Tommy and his wife when your response came. I'll tell him that sweetundine sent me and let you know if he laughs. Thank you, again.
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1 Reaction@sweetundine I'm glad to see the info about Lovethebugs! I had them make me a ring about 10 years ago from Amazon. I was hoping to get another one and didn't see them there anymore. I will look them up on Etsy.
@sweetundine
Interesting! I am new to RA and treatments. My hands have improved but a couple of fingers remain pretty painful. I wonder if these rings would be helpful?
@kmg218 ask to try a low dose of predisone, maybe 10mg. Works well for some.
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1 ReactionMy journey started late 2019, extreme fatigue and pain hands, shoulders finally 2020 I was diagnosed with RA.
I have been on every medication out there for RA self injections, infusions
I was told my next resort would a chemo drug. I was not on board just yet. Nothing helped. Pain at times was excruciating.
Slept most of the day then I did not feel pain. April 2026 I was put on lefludomide and Olumiant and finally I have good results. I lost my strength I still can’t open water bottles some stuff I rely on my family. But the pain is minimal to say the least. Never give up. Try everything. I feel I lost several years because of no pain control. I plan on making them up.
Good morning,
I wanted to share what's working for my RA. My rheumatologist started me on low dose Leflunomide ( 10mg) a little over a month ago. I also take 200mg of hydroxychloroquine daily. Did recently add 2.5mg Prednisone...but only short term. The Leflunomide has stopped the progression of joint damage...the swelling in my knuckles and fingers have gone down, less pain too. My blood work so far has been good..I am concerned mostly about my liver with the Leflunomide. I do take vitamins - C , D3 +K, B12. Hope you do get help and find relief for your pain.
Take care. God Bless
@betsyhase - I am also on Orencia now for 49 mo. One infusion per month, I also have IPF (pulmonary fibrosis). May be on it for life - I’m 75.
I use Methylprednisone for only flairs which are few, then get back off. Orencia has been good to me - hope it is for you.
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2 Reactions@suzcape
I am still doing my loading doses of Orencia. After one more I will be on the once a month. So far, so good.
Thanks for your feedback.