Has anyone with RA hands had success with any remedy? If any?

Posted by cynl @cynl, Aug 8 4:17am

I'm 54 and I have RA hands. I can type with one finger, can't work can't do much of anything. I'm praying for a miracle.

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I also wanted to mention that I have been trying low-dose naltrexone (LDN). The drug has been used by physicians for a long time for other indications and has a good safety record. It lacks a large scientific evidence base for use by RA patients, so is not covered by insurance. It is made at a formulary, and costs about $36 a month.

It has reduced inflammation and pain for me markedly. I went from taking Celebrex two times a day to about three times a month. My gut thanks me daily.

They think LDN may work by prompting your own body to produce more endorphins. It may also reduce inflammation. So you will want to discuss it with your doctor. But, I think there are many of us who are trying LDN with success.

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I also wanted to mention that I have been trying low-dose naltrexone (LDN). They think the drug works by promoting your body to produce endorphins and by reducing inflammation. Physicians have used the drug for a long time for other indications, and it has a good safety record. It lacks a large scientific evidence base for use in RA patients, so insurance does not cover it. It is made at a formulary, and costs about $36 a month.

It has reduced inflammation and pain for me markedly. I went from taking Celebrex two times a day to about three times a month. My gut thanks me daily.

So, in any case, you would want to discuss it with your doctor. But, I think there are many of us who are trying LDN with success.

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I was reading about Tommy and his wife when your response came. I'll tell him that sweetundine sent me and let you know if he laughs. Thank you, again.

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Profile picture for sweetundine @sweetundine

@gently I do hope the information helps you. At the end of the day, between our precious little time with providers, we all stumble around to find our own way.

As for the rings, the maker, Lovethebugs, on Etsy gave me the option. In addition to RA, I have a condition called erosive osteoarthritis, which is not treatable with RA drugs. So my joints have very little stability. The bar has provided enough support for the last two years for me to function pretty well. For example, I type at a computer, cook, and garden, but I have trouble with luggage and heavy things.

You could always try the plastic oval 8s and later move on to the silver rings. LoveTheBugs keeps its price point low on its RA rings, which has helped me as a recent retiree.

I wish you all the best.

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@sweetundine I'm glad to see the info about Lovethebugs! I had them make me a ring about 10 years ago from Amazon. I was hoping to get another one and didn't see them there anymore. I will look them up on Etsy.

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Profile picture for sweetundine @sweetundine

@gently I do hope the information helps you. At the end of the day, between our precious little time with providers, we all stumble around to find our own way.

As for the rings, the maker, Lovethebugs, on Etsy gave me the option. In addition to RA, I have a condition called erosive osteoarthritis, which is not treatable with RA drugs. So my joints have very little stability. The bar has provided enough support for the last two years for me to function pretty well. For example, I type at a computer, cook, and garden, but I have trouble with luggage and heavy things.

You could always try the plastic oval 8s and later move on to the silver rings. LoveTheBugs keeps its price point low on its RA rings, which has helped me as a recent retiree.

I wish you all the best.

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@sweetundine
Interesting! I am new to RA and treatments. My hands have improved but a couple of fingers remain pretty painful. I wonder if these rings would be helpful?

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Profile picture for kmg218 @kmg218

@cynl I was diagnosed with RA and osteoarthritis and it affects my hands and lower back the most. I started Plaquenil 5 mths ago and feel nothing from it. Had a bit of a struggle first taking it as it caused severe nausea and diarrhea but my body adapted mostly, still have a bit of that but I deal with it. When I tell my rheumatologist it still bothers me she says well then you can never take methotrexate, you wouldn't be able to deal with those side effects...so negative right? I thought the idea of these drugs was to keep the disease from progressing and hopefully give some relief. To tell your patient you can never take something puts such a spin on even trying it in my mind. Not sure what my next move can be....its so disheartening. wondering your experience with Methotrexate. thanks...

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@kmg218 ask to try a low dose of predisone, maybe 10mg. Works well for some.

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My journey started late 2019, extreme fatigue and pain hands, shoulders finally 2020 I was diagnosed with RA.
I have been on every medication out there for RA self injections, infusions
I was told my next resort would a chemo drug. I was not on board just yet. Nothing helped. Pain at times was excruciating.
Slept most of the day then I did not feel pain. April 2026 I was put on lefludomide and Olumiant and finally I have good results. I lost my strength I still can’t open water bottles some stuff I rely on my family. But the pain is minimal to say the least. Never give up. Try everything. I feel I lost several years because of no pain control. I plan on making them up.

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Good morning,
I wanted to share what's working for my RA. My rheumatologist started me on low dose Leflunomide ( 10mg) a little over a month ago. I also take 200mg of hydroxychloroquine daily. Did recently add 2.5mg Prednisone...but only short term. The Leflunomide has stopped the progression of joint damage...the swelling in my knuckles and fingers have gone down, less pain too. My blood work so far has been good..I am concerned mostly about my liver with the Leflunomide. I do take vitamins - C , D3 +K, B12. Hope you do get help and find relief for your pain.
Take care. God Bless

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Profile picture for betsyhase @betsyhase

@kmg218
I was recently diagnosed with RA and after I finally got into a Rheumatologist the first medication he put me on was Methotrexate. Horrible diarrhea!!! I am now on Orencia infusions, so far so good. Although I am not sure what the long term goal is. I am still taking Prednisone and starting a 1mg taper per month. This is such a balancing act of finding something for relief and live with it.

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@betsyhase - I am also on Orencia now for 49 mo. One infusion per month, I also have IPF (pulmonary fibrosis). May be on it for life - I’m 75.
I use Methylprednisone for only flairs which are few, then get back off. Orencia has been good to me - hope it is for you.

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Profile picture for suzcape @suzcape

@betsyhase - I am also on Orencia now for 49 mo. One infusion per month, I also have IPF (pulmonary fibrosis). May be on it for life - I’m 75.
I use Methylprednisone for only flairs which are few, then get back off. Orencia has been good to me - hope it is for you.

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@suzcape
I am still doing my loading doses of Orencia. After one more I will be on the once a month. So far, so good.
Thanks for your feedback.

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