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Has anyone with an ileostomy dealt with nonstop nausea?

Posted by yvetteh @yvetteh, Jan 15 6:27pm

I’m 1 year into my permanent ileostomy and have done really well since August until nausea hit me 3 weeks ago and it’s been relentless. I used Zofran shortly after my surgery a year ago for occasional nausea but this is different and nausea medications have done very little to help. Seems to get a bit better in the afternoons but the mornings are the worse. It’s not affected my appetite really or caused me to lose weight or kept me awake at night but it’s basically constant and I’m tired of it. Fortunately I got an appointment with my gastro dr for next week but wondering if anyone else has had the same problem. I have noticed that my output is much less than normal but no pain is involved like an obstruction would be and I’ve had obstructions so I know what they feel like and know that my output stopped with an obstruction. I’m praying it’s not related to that issue. Any ideas?

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lapb | @lapb | May 4 11:22am

Hello everyone I see the posts are older however thought I would share . I have an illeostomy three emergency surgeries . I have struggled with nausea seasicknesses for 20 months. Have recently found a fabulous dietician who is helping work through this
Amalia Karlin RDtheostomydietican.com she is in Fl but does virtual .
I have unusual situation also dx with gastroparesis which can cause nausea. Divergent colitis and I still have ulcerative colitis in remaining lower colon all which can cause nausea etc.
Perhaps ruling out other dx and understanding the surgery can impact vagas nerve which can cause nausea etc along with dehydration etc.
🙏

REPLY
1 reply
yvetteh | @yvetteh | May 4 12:56pm
In reply to @lapb "Hello everyone I see the posts are older however thought I would share . I have..." + (show)
@lapb

Hello everyone I see the posts are older however thought I would share . I have an illeostomy three emergency surgeries . I have struggled with nausea seasicknesses for 20 months. Have recently found a fabulous dietician who is helping work through this
Amalia Karlin RDtheostomydietican.com she is in Fl but does virtual .
I have unusual situation also dx with gastroparesis which can cause nausea. Divergent colitis and I still have ulcerative colitis in remaining lower colon all which can cause nausea etc.
Perhaps ruling out other dx and understanding the surgery can impact vagas nerve which can cause nausea etc along with dehydration etc.
🙏

Jump to this post

And that is exactly the same dietitian that I just recommended in one of my posts here. Glad to hear someone else uses her and is happy with her. She's been a miracle worker for me!!

REPLY
1 reply
lapb | @lapb | May 4 3:20pm
In reply to @yvetteh "And that is exactly the same dietitian that I just recommended in one of my posts..." + (show)
@yvetteh

And that is exactly the same dietitian that I just recommended in one of my posts here. Glad to hear someone else uses her and is happy with her. She's been a miracle worker for me!!

Jump to this post

She is a blessing, thank you ditto very happy to know you are happy as well.

REPLY
misnovick | @misnovick | May 18 10:38am
In reply to @yvetteh "My gastro dr is in Clearwater, Fl. Dr. Zachary Sherman. A real gem." + (show)
@yvetteh

My gastro dr is in Clearwater, Fl. Dr. Zachary Sherman. A real gem.

Jump to this post

Thank you so much for you help. Already reached out to the stony dietician and she is so knowledgeable.

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