Has anyone used the Spinal Cord Stimulator NEVRO HFX?

I experienced sudden and severe bilateral nerve damage in both legs and feet in December 2022, due to peripheral neuropathy. I suffered constant excruciating pain and muscle spasms for almost a year, which required me to use a walker and wheelchair. I literally could not stand up, wear socks or shoes, or put a blanket over my feet, without screaming in pain. My mother had to assist me with showering and getting dressed. (And I am in my mid-40's!)

After extensive testing, my neurologist said that I would be a perfect candidate for the NEVRO HFX SCS, and after undergoing the pre-operative tests (including an MRI of mid-spine and a mental evaluation), they placed the temporary SCS in November 2023, which was a complete game changer for me. My pain went from an 18 out of 10, to just a 2 out of 10!

So then the permanent SCS was placed in December 2023, and it has brought me about 80% pain relief, overall! I still deal with constant bilateral heaviness, numbness, tingling, and false sensations in my legs/feet every day, but no longer require the use of a wheelchair or walker! And I have been able to cut back on Gabapentin (for the nerve pain) from 1800 mg to only 300 mg per day.

My "Nevro team" returns my calls within 6 hours, if I have questions or am in need of an adjustment of remote control settings.

I would recommend the Nevro HFX SCS to anyone who suffers peripheral neuropathy!

Nevro has been ordered for me, I have tried Boston and another that did little. How were you told to get help when it shocked you? This is beyond medically correct! I will talk to my doctor about what support I will have before I have the trial.
Thank you so much for this info.

Please keep in mind NEVRO has had an F rating & is NOT accredited by the BBB. From VERY painful experience...it is almost impossible to reach your "coach" & they are so careless it almost seems spiteful. (I'm sure this is not everyone's experience, but it has been mine & the BBB seems to agree)

I was just reading your issues with being shocked. I had the implant installed September 2024. I’m still trying to find the program that gives me the best relief. About a month ago I started getting random shocks nothing crazy but all over my body. Occasionally I’ll get a shock that’s a bit much and I’ll let out a yell. Could you explain how yours started and how long it was before it became unbearable? Thanks!

Reading the comments from HFX users stating that they get occasional shocks...I had a Medtronics SCS implanted back in 2018. It worked fairly well in reducing my pain for about two and a half years. I remember the first time I laid down on my back on a hard surface. Ouch!! It was truly a shocking experience. The paddle would get pushed against the spinal cord causing the shock. I learned to turn the unit off whenever I was going to do any work while lying on my back.
From what I read in 2021, the HFX was supposed to eliminate those shocking feelings. I guess such may not be the case. Users may also have to turn the unit off at times as I learned to do.

December 31,2024 I had my Nevro HFX iQ spinal cord stimulator implanted. I chose to use the app with my iphone vs hand control. It's been a very interesting experience. Now beginning my 8th month post op.
It took about 4 months to heal to a point where the area where my modulator is no longer sensitive when touched, and never "shocked" me. I do still use my "eggcrate" foam back square when sitting on the wooden pew at church.
I never experienced what you did. I'm currently charging my implant with the charger pad while writing to you. I do my online assessments daily which is monitored by the Nevro corp and forwarded to my pain MD. If I need my stimulation increased (you don't feel it) the app will trigger you to change to the next level.
I see the Nevro tech at my MDs office every three months.
I couldn't be happier with the results. But you have to actively participate.
Implant change in ten years, minor op procedure. Mariette

Thanks for your response. The Medtronic’s SCS apparently uses different frequencies than HFX. I was very happy with it for the most part. Never discovered why it stopped working.

With the Nevro scs you never feel the stimulation, that's a great feature with their system.
Patient support is great. If there is a malfunction they will address it and take care of it.
The company and physician who inserted it, would never leave you in the dark about any malfunction.
You can seek a pain physician in your area who uses the Nevro system and they will switch out your current one and attach theirs.

When my Medtronic’s unit seemingly died, I swapped out the Medtronic’s battery for the NEVRO battery. Did not provide relief either. Upon testing, it was suggested that the paddle lead had developed issues, including sever burned out electrodes. So, no relief. The old paddle along with everything else was removed in May of 2023. Tried new SCS but too much scar tissue to get a new lead in place. So now it’s all on this pain pump that I’ve been trying to get adjusted for over two years.

Best wishes and hoping this will give you the pain relief you need.