Anyone gone to Mayo Clinic in Rochester Minnesota for carcinoid tumors?

Posted by lucci50 @lucci50, Nov 21, 2015

has anyone used mayo clinic in Rochester Minnesota for carcinoid tumors. the diagnosis was carcinoid tumors in the liver. I am looking for the best place to go to treat/and or remove the disease. appreciate any advise.

@smness

@lucci50 I am so glad that you have your appointment scheduled. Mayo has much expertise in diagnosing and treating carcinoid. We can also help you in understanding your treatment plan once you have it outlined. Stop into the Cancer Education Center on the main (street) level of the Gonda building and our educators will assist with your needs. I hope to meet you while you are here!

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They have me scheduled to see Dr. Larusso… The concern I have is that he gets a low rating with healthgrade

I can imagine reading a low score on patient satisfaction would make you nervous. But I notice that only 1 person has rated Dr. LaRusso. I don’t think that is enough information to make a judgement.

Perhaps it would help to see him and hear him speak. In this video Forbes interviewed Dr. LaRusso because of his leadership at the Mayo Clinic Center for Innovation.

@colleenyoung

I can imagine reading a low score on patient satisfaction would make you nervous. But I notice that only 1 person has rated Dr. LaRusso. I don’t think that is enough information to make a judgement.

Perhaps it would help to see him and hear him speak. In this video Forbes interviewed Dr. LaRusso because of his leadership at the Mayo Clinic Center for Innovation.

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thank-you, that helps. i’m nervous and want to make the right decision.
thanks

@colleenyoung

I can imagine reading a low score on patient satisfaction would make you nervous. But I notice that only 1 person has rated Dr. LaRusso. I don’t think that is enough information to make a judgement.

Perhaps it would help to see him and hear him speak. In this video Forbes interviewed Dr. LaRusso because of his leadership at the Mayo Clinic Center for Innovation.

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something you need to consider…it’s cancer…and typically it’s notorious…people die…all it takes is one person who is overcome with grief to put a review. I have a world renowned melanoma specialist oncologist ( not at Mayo) he is fantastic and the majority of people really like him, but there are some who would him a poor rating…people die…thats the nature of the cancer beast.

@colleenyoung

I can imagine reading a low score on patient satisfaction would make you nervous. But I notice that only 1 person has rated Dr. LaRusso. I don’t think that is enough information to make a judgement.

Perhaps it would help to see him and hear him speak. In this video Forbes interviewed Dr. LaRusso because of his leadership at the Mayo Clinic Center for Innovation.

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Let us not forget that more and more people survive cancer than ever before. And you are one of those stories @lynnkay1956

@lucci50 It’s normal to be nervous. Don’t hesitate to share your concerns here as the date approaches. No question is a dumb question. I hope you are also able to welcome the festivities at this time of year. Will you be celebrating with family?

@colleenyoung

I can imagine reading a low score on patient satisfaction would make you nervous. But I notice that only 1 person has rated Dr. LaRusso. I don’t think that is enough information to make a judgement.

Perhaps it would help to see him and hear him speak. In this video Forbes interviewed Dr. LaRusso because of his leadership at the Mayo Clinic Center for Innovation.

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Thanku

Hi @lucci50 I hope things went well today. I’m sure you’re exhausted. Sleep well. I look forward to hearing from you.

@colleenyoung

Hi @lucci50 I hope things went well today. I’m sure you’re exhausted. Sleep well. I look forward to hearing from you.

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Hi Colleen, thanks for being concerned. I decided to make it easier on everyone to reschedule after the holidays are over with…might be better for the doctors and family as well. Thanks Colleen. I’ll keep in touch.Ralph

I get that. I hope you’re having a peaceful holiday. Talk soon.

@colleenyoung

I get that. I hope you’re having a peaceful holiday. Talk soon.

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thank-you hope you are too…best wishes for a great new year!!!

Hi @lucci50. Checking in. How are you doing?

@colleenyoung

Hi @lucci50. Checking in. How are you doing?

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Hi…doing ok sandostatin seems to be working. i decided to try cleveland clinic in ohio because they are closer to home in michigan to see what they have to offer. but am keeping mayo clinic in mind. thanks for keeping in touch and caring!!!

ralph

Hi Ralph,
We use a list of criteria when choosing where to get treatment. Location and proximity are important factors.

How long is your treatment plan? Are you managing the side effects okay?

@colleenyoung

Hi Ralph,
We use a list of criteria when choosing where to get treatment. Location and proximity are important factors.

How long is your treatment plan? Are you managing the side effects okay?

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So far no side effects…i do not know how long I can be on sandostatin. The claim from the oncologist is that patients have been in it for years…although I do not know how true that is.

I go to the Mayo Clinic 2-4 times a year for followup. I also have carcinoid tumors in my liver and lymph nodes. All they do at Rochester is “watch” me. At home I get a Sandostatin injection monthly but that is the only treatment I get. I understand chemo doesn’t work on this type of cancer.

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