1. < Polymyalgia Rheumatica (PMR)

Has anyone tried CBD oil for PMR?

Posted by marg47 @marg47, Dec 12, 2023

I was diagnosed with PMR in early August of this year. It all started after I had A TKR in January which was followed by a massive bowel bleed as a reaction to blood thinners.. Then followed a transfusion of iron which sent my iron levels far too high and I ended up with three Pulmonary embolisms in my lung. Now here we a at the end of the year And I have been sick with one thing or another. My immune system is shot. I've been on Prednisolone since August diagnosis staying on 50 mg for a month and then every month thereafter tapering down to hopefully finish but I got to 5 mg two weeks ago and the pains returned worse than ever so now back to 15 mg daily gradually tapering every month by 2.5 mg till ceasing sometime next year. My hair is falling out, I lost an emmense amount of weight and thought of CBD oil without the THC. I would be interested to hear your opinions. Thank you.

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tjmjsjwj | @tjmjsjwj | Dec 28, 2023

If you are in Australia you should look up Clint Paddison. The Paddison Program. He is an Australian who healed is body of RA. You can follow the sam healing protocol as an RA patient with the exception of the drugs. RA is treated differently. I have been following and part of this program since June.

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1 reply
marg47 | @marg47 | Dec 28, 2023
In reply to @nyxygirl "@marg47 and @tjmjsjwj good morning -- when I was on suboptimal dose of Prednisone throughout May..." + (show)
@nyxygirl

@marg47 and @tjmjsjwj good morning -- when I was on suboptimal dose of Prednisone throughout May 2023 - my morning shoulder stiffness was much worse than the hips/thighs. So I could bound out of bed and I took a hot shower and applied "Cause + Medic" cbd pain cream to my shoulders and then I would walk for about 30minutes with binoculars to look for birds close by. SO as tjmsjwj suggested -
"The best pain relief is movement" plus the beneficial effect deriving from the Menthol and Camphor cooling effect- ( both were good distractions for me : ). At that time in my Dx and treatment, by noontime I could raise my arms and put hair in pony tail etc. But every morning was like Groundhog Day- starting all over again until I was bumped up to 30mg Prednisone !
I have reread your initial comment -- perhaps you should check out this Norvatis clinical trial since you have a had a flare up !! - there are 5 locations in Australia !! https://www.novartis.com/clinicaltrials/study/nct05767034

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Thank you very much for your response to my post. I have taken on all of what you on board and really appreciate it. Thanks for the Australian link also.

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marg47 | @marg47 | Dec 28, 2023
In reply to @tjmjsjwj "If you are in Australia you should look up Clint Paddison. The Paddison Program. He is..." + (show)
@tjmjsjwj

If you are in Australia you should look up Clint Paddison. The Paddison Program. He is an Australian who healed is body of RA. You can follow the sam healing protocol as an RA patient with the exception of the drugs. RA is treated differently. I have been following and part of this program since June.

Jump to this post

WOW, that's interesting. Thank you very much I will have a look.

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cre8ivetait | @cre8ivetait | Dec 29, 2023

I started with CBD / but vaped the actual flower and it would help with some of the pain / I now have a medical card so I use CBD/thc together and that really helps with the pain

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2 replies
joan7 | @joan7 | Dec 29, 2023
In reply to @nyxygirl "@marg47 and @tjmjsjwj good morning -- when I was on suboptimal dose of Prednisone throughout May..." + (show)
@nyxygirl

@marg47 and @tjmjsjwj good morning -- when I was on suboptimal dose of Prednisone throughout May 2023 - my morning shoulder stiffness was much worse than the hips/thighs. So I could bound out of bed and I took a hot shower and applied "Cause + Medic" cbd pain cream to my shoulders and then I would walk for about 30minutes with binoculars to look for birds close by. SO as tjmsjwj suggested -
"The best pain relief is movement" plus the beneficial effect deriving from the Menthol and Camphor cooling effect- ( both were good distractions for me : ). At that time in my Dx and treatment, by noontime I could raise my arms and put hair in pony tail etc. But every morning was like Groundhog Day- starting all over again until I was bumped up to 30mg Prednisone !
I have reread your initial comment -- perhaps you should check out this Norvatis clinical trial since you have a had a flare up !! - there are 5 locations in Australia !! https://www.novartis.com/clinicaltrials/study/nct05767034

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What was the dose that you originally started at? I was under the impression that 40 mg was the dose for PMR and 60 mg for GCA?

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1 reply
marg47 | @marg47 | Dec 29, 2023
In reply to @joan7 "What was the dose that you originally started at? I was under the impression that 40..." + (show)
@joan7

What was the dose that you originally started at? I was under the impression that 40 mg was the dose for PMR and 60 mg for GCA?

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Hi, in answer to your question my starting dose was 50 mg daily for for weeks then tapering by 19 each of the following 4 weeks. When I got to 5 mg my pains came back so back to 15 mg daily now.

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marg47 | @marg47 | Dec 29, 2023
In reply to @cre8ivetait "I started with CBD / but vaped the actual flower and it would help with some..." + (show)
@cre8ivetait

I started with CBD / but vaped the actual flower and it would help with some of the pain / I now have a medical card so I use CBD/thc together and that really helps with the pain

Jump to this post

Thanks for the info.

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nancy53 | @nancy53 | Dec 30, 2023
In reply to @cre8ivetait "I started with CBD / but vaped the actual flower and it would help with some..." + (show)
@cre8ivetait

I started with CBD / but vaped the actual flower and it would help with some of the pain / I now have a medical card so I use CBD/thc together and that really helps with the pain

Jump to this post

I'm afraid that the THC might actually magnify the pain. I live in a state with legal cannabis.

Does it really help with the pain? I wonder about any negative interaction with Prednisone too.

Glad it works for you.

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1 reply
cre8ivetait | @cre8ivetait | Dec 30, 2023
In reply to @nancy53 "I'm afraid that the THC might actually magnify the pain. I live in a state with..." + (show)
@nancy53

I'm afraid that the THC might actually magnify the pain. I live in a state with legal cannabis.

Does it really help with the pain? I wonder about any negative interaction with Prednisone too.

Glad it works for you.

Jump to this post

Hi Nancy/ it really does take the pain away - if it’s legal in your state - hopefully you could found a good dispensary that could help with strains and best way to take - I even use a 1:1 CBD:thc patch to help with pain

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