Has anyone travelled to high altitudes with Bronchiectasis / MAC?

Posted by ncalvan @ncalvan, Dec 3, 2023

I have bronchiectasis and MAC. Currently taking the big three and arikayce. We are planning to go to Machu Picchu in January and need some advice or tips. Thanks, Nikki

Interested in more discussions like this? Go to the MAC & Bronchiectasis Support Group.

I was on Arikayce in May when I went to Denver and needed supplemental oxygen. I've never needed oxygen prior to being on Arikayce. I'm from Denver and visit family and friends 2 or more times/year. I told the NJH Dr, I never needed O2 before and she thought it was the Arikayce.. Fortunately, I learned in May my MABs count was so low, that I was told I could go off all antibiotics. I returned to Denver last week (no Arikayce) and my O2 was 92-95. If I need to go back on antibiotics for MABs, I would inhale IV Amikacin, which NJH had recommends. Arikayce is highly viscous and I wouldn't be surprised if it was interfering with oxygen transfer at the alveoli's.
We're all different but if it were me, I would either reschedule, ensure I have supplemental oxygen, or try the inhaled IV Amaikacin prior to leaving. At NHH they used Aerobiaka mouthpiece with the cup, minus the flutter valve assembly.

REPLY

That sounds incredible! I have taken Diamox twice before, for Colorado skiing. This all gives me hope to discuss with my doctor. Thank you!

REPLY
Profile picture for desertdwellerjh @desertdwellerjh

This past June my current pulm MD said I would be fine w BE. But then I went to 8000 feet to hike. Took out my pulseoximeter that read 84! And we went back down. I bought an oxygen generator the next day (get an rx for tex purposes) and successfully hiked the following week. We traveled to Peru in 2017 (5 yrs after Big 3 for MAC and BE). My pulm MD at the time gave me a medication used by high altitude hikers (think Mt Everest). I need to find my records. Meanwhile I agree with this post — Machu Picchu should be ok but if you go to Cuzco be prepared! Such a wonderful city to visit!!!!!! We drove over a 14,000 ft pass on our tour. I did ok. Now 8 yrs later I never would have made it. If you are going on a tour see if the directors have oxygen tanks for travelers who get into trouble. Also be sure all your water is boiled or distilled esp if you drink the tea. . We were fortunate to have two doctors on the trip who brought cipro for at least two of us drank tea that gave us tummy troubles.

Jump to this post

Hi

In the middle of an exacerbation this past spring, I had an appointment to travel to National Jewish.
I did an altitude, simulation test, and found I needed supplemental oxygen for the flight. Cabins are pressurized to 8000 feet.
I also found that if I was not active in Denver, I would be OK but if I was more active, I would need the supplemental oxygen.
My doctor offered the high altitude medication, but the nurse at National Jewish said it was not necessary.
I really recommend the high altitude simulation test.
I rented an oxygen concentrator approved for travel.

REPLY
Please sign in or register to post a reply.