Has anyone transitioned from Tacrolimus to Everolimus?

@8899, I am not familiar with your health situation, although I do take tacrolimus for my liver ans kidney transplant. As a transplant recipient, I am very concerned about your deteriorating kidney function along with the health of your liver.
What are your doctors saying about the positive effects that they hope to achieve by changing your medication? Have they hinted at how long until you realize good results? How are you being monitored?

Please accept my virtual hug as I send my thoughts and hopes to you.

Hey Rosemary..This is Jackie from Joisy!!!
How r u? Hope all is well with you and all of us
Connected on this site.
I was wondering if u ever, or anyone here ever experienced tacrolimus use, causing hair thinning
I stsrted tsking biotin
But 5000 mg. This time.my dr. Offiice will not change the amy. Of tacrolimus...take 4 mg a day...i understand how important the relationship is between that n kidneys. My kidney numbers r usually 48...numbers change due to age, i get
that....have a great day

Hi girl....i was on tacrolimus first dr. Wanted to change me to sirolimus due to stopping any problems with the kidneys..so went on Sirolimus but after 3 months soars in mouth reappeared. and this june back on tacrolimus..but having the hair problem..dr.wont let me tske less than what i am taking...i am not happy.i am going to a kidney dr to manage my numbers from my blood test.....so it is being monitored.....we all have a tough road to go down....but we r tough!!! Big hugs to u too....

Hi @8889 and All,
I was informed by the care team that tacrulimus med can cause toxicity to some patients depending on many factors. So the challenge is how much tacrulimus to take that is high enough to avoid rejection and low enough to avoid toxicity. I don’t know what would be the symptoms of toxicity but the symptoms you mentioned are concerning. Talk to your team or doctor. All the best.
@futureckd

Hi, Jackie @jackie421blfdgurl - It' great to hear from you! So sorry that the medication switch to Sirolimus didn't work for you. So now you are back on Tacrolimus, that's what I've been taking since my transplant, and I also experienced hair loss which had corrected itself after 9 - 12 months. The dermatologist in the transplant dept said I could try Biotin (I forget the amount) and that along with gentle shampoo helped my and my fingernails to return to normal.

Others have also struggled with hair loss. You might want to check out these discussions:
- Hair loss after transplant, probably Tacrolimus: Anyone change meds?
https://connect.mayoclinic.org/discussion/hair-loss-after-transplant-probably-tacronlimis/
- After transplant I have hair loss due to meds: Will it come back?
https://connect.mayoclinic.org/discussion/has-anyone-transitioned-from-tacrolimus-to-everolimus/
You got this, Gurl!

This is why i love u...it is difficult to talk even to a friend, family, about what we go thru...my mop still looks good but i am experiencing some thinness on top...u need to take collegan..but this is not like a person. Going thru chemo, stop that and hair grows back...we cant stop our medication. Another thing to deal with.
Next month is my 5 yr anniversary...very cery hard to believe it has been 5 yrs.
Good for all of us.....we r a tough bunch of special people walking on the planet....have a WONDETFUL DAY, my friend...