1. < Parkinson's Disease

Has anyone taken Stalevo?

Posted by susanrg @susanrg, Dec 3 10:34pm

Hi! I’m new here had Parkinson’s for about four years. I feel that my neurologist just doesn’t listen to me. Levadopa/carbidopa just doesn’t work for me and now I’m getting worse. The neurologist prescribed Stalevo today. Has anyone been on it? Does it help tremors and dyskinesia? Thanks so much!

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Moderator
Lisa Lucier, Moderator | @lisalucier | Dec 9 10:33pm

Hi, @susanrg - welcome. Glad you posted a question. Sorry to hear you feel your neurologist does not listen to you. That's also unfortunate you're feeling like carbidopa/levidopa is not working for you and now you're getting worse.

Since your neurologist prescribed carbidopa/levodopa/entacapone (Stalevo) and you are looking to chat with others who taken it or know about it, I'd like to tag @hopeful33250 @tllaes @ggopher @hjscheib @jonathanfesik who may have some input to share.

susanrg, in what ways was carbidopa/levodopa not working for you? Have you now filled the prescription and tried the carbidopa/levodopa/entacapone? If so, how's it going so far?

REPLY
susanrg | @susanrg | Dec 10 9:41am

Hi Lisa (?),
Thank you for contacting me. I appreciate your help. Yes, please tag my post so that more people can talk about with me about Stalevo. Levadopa/ Carbidopa has never helped me at all in any dosage, yet my neurologist keeps prescribing it. I am getting much worse every day. Yes, I am now trying the Stalevo, and I would say it is working at a near nothing level. My tremors and walking are getting worse. Thank you for your help.
Susan Graham Pereira

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Mentor
Teresa, Volunteer Mentor | @hopeful33250 | Dec 10 12:03pm
In reply to @susanrg "Hi Lisa (?), Thank you for contacting me. I appreciate your help. Yes, please tag my..." + (show)
@susanrg

Hi Lisa (?),
Thank you for contacting me. I appreciate your help. Yes, please tag my post so that more people can talk about with me about Stalevo. Levadopa/ Carbidopa has never helped me at all in any dosage, yet my neurologist keeps prescribing it. I am getting much worse every day. Yes, I am now trying the Stalevo, and I would say it is working at a near nothing level. My tremors and walking are getting worse. Thank you for your help.
Susan Graham Pereira

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@susanrg
Hello Susan,
I've read your two posts and wanted to respond to you. I have taken carbidopa/levodopa for several years as well as Stalevo (which, as you know, is carbidopa/levodopa/entacapone). I have used them both, with the Stalevo mid-day. My experience has been good with this combination. While I've not experienced tremors the medication has helped walking, gait and balance problems.

Whenever, you feel a concern about your current medical treatment, it is always your right to get a second opinion. If it is possible to go to a movement disorder specialist that would be best. If is possible for you to be evaluated at Mayo Clinic, you will find movement disorder specialists at all three of their locations. Here is a link with information about obtaining an appointment, http://mayocl.in/1mtmR63.

The Davis Phinney Foundation is a great resource for Parkinson's patients. Here is a link from The Davis Phinney Foundation website that lists the different medications that can be used to treat PD, https://davisphinneyfoundation.org/medication-listing-by-product-name/

I am also wondering what other symptoms you may be having, such as swallowing or speech problems, bowel/bladder control, etc.

Have you considered seeing another movement disorder specialist for an evaluation of your Parkinson's as well as a medication review?

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