Has anyone recovered from years of severe rib pain without a clear dia

Posted by LPRSOB @jdbarr1, 2 days ago

Hi everyone,

I’m in my 30s and have had severe chronic rib and spine pain for more than two years. The rib pain is by far the worst part, and lately I’m hurting every day again. I’m at a point where I really need to hear from people who have been through something like this and improved.

Early on, I was diagnosed with thoracic radiculopathy based on MRI findings and had a thoracic epidural steroid injection, which did not help. Later, I had a lumbar nerve block with another doctor, which also did not help. A thoracic trigger-point injection helped one small area, but not the larger rib-pain problem.

Since then, different possibilities have been raised, including costochondritis, somatic rib dysfunction, myofascial pain, and possible central sensitization/nociplastic pain. My newer doctors generally do not seem convinced that the thoracic MRI findings explain everything.

I’ve tried PT several times and am now starting another course that will include aquatic therapy. I’ve also tried OMT, massage, Backpod, yoga, swimming, stretching, chiropractic treatment, topical treatments, and multiple medications.

Some things have helped. An 8-week Mindfulness-Based Stress Reduction program clearly helped me. Backpod has helped at times. My first osteopath’s OMT helped a lot. Massage can sometimes give me a couple of better days. Tramadol, baclofen, and occasional hydrocodone also help to varying degrees.

One of my best periods happened when I was doing MBSR, using the Backpod, and not playing soccer. So I know my pain can improve — I just haven’t figured out how to make that improvement last.

I also have a positive ANA at 1:320 and am seeing rheumatology soon. Most of my more specific autoimmune testing and inflammatory markers have been negative, so I’m not sure whether the ANA will turn out to be relevant.

The hardest part has been what this has done to me mentally. I’ve had emergency-room visits during bad periods, have experienced suicidal ideation at my lowest points, and have had to take a leave of absence from work. I’m receiving psychiatric care, but the combination of pain and uncertainty has worn me down tremendously.

I’d especially like to hear from anyone who can relate:

Did you have chronic rib/chest-wall pain for years and eventually improve significantly?
Did you get better even without ever receiving one perfect diagnosis?
What treatment or combination of treatments helped the most?
If chronic pain once brought you to a very dark place but you’re doing much better now, what changed?

I’m not looking for anyone here to diagnose me. I mostly need to hear from people who have been through this and found a way forward.

Right now I could really use some hope.

Thank you for reading.

Interested in more discussions like this? Go to the Chronic Pain Support Group.

My ribs were painful when I pressed on them and the pain radiated to my arm and shoulder. I thought I was having a heart attack. They did all kinds of cardiac screening tests, and that wasn't it. After months of misdiagnosis, I was diagnosed with costochondritis. The M.D. recommended physicial therapy and chiropractic. That worked. I wouldn't recommend any spinal treatments by the chiropractor, but rather something that addresses the thoracic area. Find someone who knows how to deal with costchondritis without neck "snapping." Read about P.T. and chiropractic for costochondritis if you think this makes sense for you.

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Profile picture for leahrogne @leahrogne

My ribs were painful when I pressed on them and the pain radiated to my arm and shoulder. I thought I was having a heart attack. They did all kinds of cardiac screening tests, and that wasn't it. After months of misdiagnosis, I was diagnosed with costochondritis. The M.D. recommended physicial therapy and chiropractic. That worked. I wouldn't recommend any spinal treatments by the chiropractor, but rather something that addresses the thoracic area. Find someone who knows how to deal with costchondritis without neck "snapping." Read about P.T. and chiropractic for costochondritis if you think this makes sense for you.

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LPRSOB "Right now I could really use some hope" To me, that was the most telling insight of your post. I, too have suffered from chronic and sometimes unbearable pain-pain that can definitely affect basic attitudes. I have been very healthy and active my entire life so when this happened I was kind of a "baby" in dealing with it and also finding aspects of my emotional makeup I didn't realize were at work. This type of pain caused this "tender" emotional side to become unhealthily remorseful, only dwelling on the negative, which was not beneficial. I also have a strong logical side which continually tells me "this is your situation now, do your best, I am still alive and can enjoy things so make the best of it"! Now I have had a lousy few days so the "rah-rah" stuff sounds a bit poly-anna, but that is the pain trying to take away hope. I sensed that these pain induced negative emotions are more deeply rooted ( at this point, anyway) in your thinking than mine (I've been dealing with this stuff for years), but the basic answer about keeping hope alive is the same. Nothing deep-just something that works for me.

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Profile picture for rockon79 @rockon79

LPRSOB "Right now I could really use some hope" To me, that was the most telling insight of your post. I, too have suffered from chronic and sometimes unbearable pain-pain that can definitely affect basic attitudes. I have been very healthy and active my entire life so when this happened I was kind of a "baby" in dealing with it and also finding aspects of my emotional makeup I didn't realize were at work. This type of pain caused this "tender" emotional side to become unhealthily remorseful, only dwelling on the negative, which was not beneficial. I also have a strong logical side which continually tells me "this is your situation now, do your best, I am still alive and can enjoy things so make the best of it"! Now I have had a lousy few days so the "rah-rah" stuff sounds a bit poly-anna, but that is the pain trying to take away hope. I sensed that these pain induced negative emotions are more deeply rooted ( at this point, anyway) in your thinking than mine (I've been dealing with this stuff for years), but the basic answer about keeping hope alive is the same. Nothing deep-just something that works for me.

Jump to this post

@rockon79 It was so affirming when I got a diagnosis and treatment that worked. That did bring back hope. And the comfort knowing that the health professionals knew the pain was real. Yes, we must keep hope alive.

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