Has anyone not had any treatment after non-invasive tumor removed?

I wasn’t even offered treatment after 3 tumors removed, siting high grade NMI. The surgeon said “NO” treatment now. Totally baffled after everything I have read here in the forum and research.

@catmonopaws1948 monoclonal gamopathy unknown source. White cell count abnormal. Hope that helps.

@michzn that does sound odd to me. Did you question him? After I complete the once a month treatments - six more to go, he does a scope, and if bladder is still clean, I will have a cystoscope once a year.
Keep me posted. 💜

May I ask what age range you are in. I am 69, Dr highly recommended treatment. His words at least do the six weeks. If my Dr said to me, do it or don’t do it, It would have pissed me off. They are the experts and I am sitting in the unknown territory

@ib66 This past summer I was diagnosed with bladder cancer, had the TURBT and my urologist wanted to see if further polyps developed at the 3-month mark at which time I had a cystoscopy. 5 new tumors were found and he then suggested I take the 6 BCG treatments which I am now doing (I've had three already).

I suggest you follow-up with the 6 BCG treatments since as so many have stated "it is better to be safe than sorry".

@deidre77 where the BCG treatments painful? How were you able to keep treatment in your bladder for 1-2 hrs without leaking. They found multifocal tumors ( had turbt surgery) 4 weeks ago going for second turbt surgery in a few weeks to make sure all tumors removed. Urologist said I would need BCG treatment. How did you deal with precautions about TB, using bleach for cleaning etc

Hi @rafcer
I have already had 3 BCG treatments and I did not find these painful in any way.

I dealt with keeping this installation in my bladder for 2 hours by neither eating nor drinking the night before. (If I had eaten, I would become extremely thirsty and wanted to avoid this) Although I was told you should not eat or drink 4 hours prior to having the BCG, I found prolonging this time worked better for me.

I was also instructed to turn every 15 minutes on each of the 4 sides, thereby giving the BCG an opportunity to coat each part of my bladder. As a diversionary tactic you may want to listen to some music or watch tv for those two hours. During each of the three times, fortunately I was able to maintain it.

On the issue of what to do when urinating for the next 6 hours, the instruction sheet I was given stated:
. Men/women should sit on the toilet seat to urinate.
. Immediately after urinating, add 2 cups of undiluted bleach to the toilet and closed the lid.
. Let bleach stand for 15 minutes before flushing to disinfect the toilet.
. Drink plenty of water to flush any remaining BCG bacteria out of your bladder.

Of course, each person reacts differently to this instillation and I was nervous. I think it is only natural to become apprehensive but once we become familiar with something, we find it was not warranted.

I wish you success with this BCG treatment.

@dianeoh26 I am a 70 yr man. The tumor was non-invasive and low-grade (non-aggressive). I certainly thought it strange for the dr. to give me the choice. Since I am also recovering from a broken left femur, the dr. may have felt the risk low enough to allow some time for leg recuperation.

@jlopez7868 I can relate. They sometimes have issues finding my urethra. I was told as women age, it becomes elongated.

@iborg that could be. I have the same type of bladder cancer as you. I was first diagnosed May 2025 and in January 2026, I had two more tumors and although they are low grade and non invasive, my doctor thought it was best that I do treatment because I went from being a low risk case to intermediate and if i get another tumor, then I enter the high risk category