Has anyone not gone thru radiation and hormone blockers?

Posted by amjokisch @amjokisch, May 2 6:45pm

I was diagnosed with stage 2 e pos her2 neg. localized in the milk duct. 1 node taken that came back negative. I had surgery a week ago and am considering not doing radiation or hormone blockers.

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@part

22 years ago I had DCIS. They couldn’t get clear margins so mastectomy. Sentinel nodes negative. I was 47. They wanted tamoxifen, I declined. Told no more mammogram in L breast. My new PCP ordered bilateral mammogram 3 weeks ago. Just under 1 cm tumor in my mastectomy breast. Await breast MRI results to see chest wall. Histology rated stage II. I did NOT take tamoxifen 22 yr ago. I am not one for regrets so I remain hopeful and incredibly grateful for getting to finish raising my 3 kids. I didn’t take tamoxifen because of the blood clot possible side effect. My pathology shows this cancer as 91% ER +. At age 70 I have several herniated disc and resulting arthritic pain so i am pretty negative on the side effects of hormone blockers. This sites chat has been really good. I will listen to radiologist but not convinced I will do it- more concern for side effects of chest wall radiation than about just breast radiation Lumpectomy will happen as soon as all the tests get done. I think my age gives me some leeway. My original surgeon told me I am in 2% range for this happening in mastectomy breast. She believes this is a new primary tumor. Oncology to be seen and weigh in. Best of luck to you.

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I had 100 ER with a lump LCIS 5.5 years ago. After surgery I chose not to take tamoxifen as the results were abnormal but not cancer. 4.5 years later, same breast, I had a .07 cm HER+ ER+ 91% and PR+ 1%., stage 1A tumor with no node involvement. I had Surgery, chemo and Herceptin, then partial radiation for 5 days. After that I had a triple dose of herceptin every three weeks for the rest of the year. I began anastrozole and had a rough time on it and began having irregular heartbeats. I tried exemestane and felt like I was on prednisone...buzzing all the time, then letrozole and my GP stopped me from taking any AI's until I could flush out some of the other chemicals. Now I take anastrozole and am doing pretty well 3 months later. I am 73 with osteoporosis, so am required to take fosamax. I look forward to getting finished with the AI...4 yr and 5 mo to go! It interrupts my sleep. The good thing about Fosamax is that you can stop it at any time. The shots must be continued for life.
I have had three good ultrasounds( every 6 mo) since the surgery in Nov 23. I believe knowing what I know now, I would have taken the Tamoxifen. I am having some calcifications in my vessels due to the radiation. Best of luck to everyone!

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