Anyone lost the ability to walk due to peripheral neuropathy?

Posted by rjack6618 @rjack6618, May 25 11:12am

Has anyone in the group lost the ability to walk from peripheral neuropathy in both lower legs? If so were you able to regain the ability to walk and if so how did you do that?

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In reply to @hookedongolf2004 "@jedge54" + (show)
Profile picture for hookedongolf2004 @hookedongolf2004

@hookedongolf2004 yes it started with horrible pain in my feet and I don’t take the medications. I just keep moving if I sit down they flare up but now I’m noticing them. My legs are getting weaker and they have an achy feeling and I get cramps, but I go to the gym. I try and do exercise exercises. I try and keep my muscles moving and find it every day. I am still playing golf because I move constantly and when I move constantly, I have neuropathy, but I don’t hurt but at night it’s miserable and every single night at 2:30 to three I wake up it gets very harsh and I either get up and go to the computer or I start walking around and in about an hour. I go back to bed and be able to wake up at 8 o’clock and start the routine all over again I had a fall at a store that took bankruptcy and so I will not get any relief financially, but I am headed for Florida next Sunday to go try scrambler payment therapy when I get back. I will let you all know if it helped me or not my concern is that if they treat me only in the daytime that I may not be able to show them how bad this is they really need to stay with me at the hotel get up and go to bed for him to get a real good opportunity to see how this works. Walking is becoming difficult in the morning very until I get moving and I just won’t stop moving.

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Profile picture for jedge54 @jedge54

I think I should start a new thread on my drug trial. Do you agree?

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@jedge54
That sounds good.

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Profile picture for jillb329 @jillb329

@ray666 Thanks for talking about the New Normal. It's very difficult for any of us to accept that this is the way we are right now. We might want to look at our lives and think about helps us cope with our situation and find what is still fulfilling and brings us joy. I'm 84, I've tried all the pills and treatments and I've accepted that I won't get better. I can't garden or ride a horse, but I can have a house full of flowering plants. I go the the gym three times a week and then come home and take a nap. I can't fly anymore, but we can take a road trip now and then. I don't mean to sound like goody-two-shoes, but this is what works for me. Some days, I get depressed some days, but i carry on. What works for you?

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Hello, jillb329 (@jillb329)

I can understand how a phrase like the "new normal" might also be misleading. It might imply that all of our lives we've been living ––what can I call it? the "standard normal"?–– that all of our lives we've been living the standard normal, and now that we're "up" in years and beset with some sort of chronic disease, we're suddenly being tasked with living the "new normal." I believe it's possible that everyone's life, from start to finish, is a succession of normals, one "new normal" after another, each requiring some measure of adjustment and acceptance.

What works for me? That's a great question. Staying in motion. That might be it. If I'm at rest, thinking, and my thinking starts to make me anxious (worried), I might just get up and do something (clean the kitchen sink?). If I'm doing something and I'm not enjoying it, I might declare a 30-minute time-out, sit down and go back to reading a book I'm enjoying reading––and not let myself close that book until the full 30 minutes are used up. Stay in motion. That nay be one thing I try always to do. For the sake of variety: mind variety, body variety, and, if possible, spirit variety. From one to the other. When one begins to go stale, move on to the next. I hadn't given this much thought, until you asked (What works for me?), but this may be it. It's a great question. Thanks for asking!

Cheers!
Ray (@ray666)

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Profile picture for wenner @wenner

@ray666 Wow! Someone on the same page as me. I'm moving to Yankee land tho, the Oz Doctors' took my licence and car from me back in February. I still have feeling in my feet, glass is still there and lots of fluid from toes to above ankle. I really miss my car. Have had lots of fun outings in "Maverick" the wheelchair, car is still far better. Re: My useless legs my theory is if I stop pushing them, they'll give up also. Still slogging away in the garden. Cheers Wendy @wenner

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Hello, Wendy (@wenner)

I can imagine how tough it is to have to give up driving. I haven't given up yet. That day will come, though. It does for all of us. Despite my neuropathy, I still have reasonable sensation in the bottoms of my feet, and despite the balance woes my neuropathy gives me when I walking about, still in the driver's seat still has me feeling secure, as secure as I ever had. Friends are always trying to go the extra mile for me (that might be a pun!), as one did only a few hours ago when he invited me to a birthday party on the outskirts of Denver and offered to give me ride to and from the party. I told him thank you but that I preferred driving my own car. That's not about me being bullheaded. It's about how my neuropathy has me not able to remain comfortably in one place for too long, especially when all the available chairs are low, low to the ground and my knees have enough walk-around difficulties without having to life my bod out of chairs that are low, low to the ground. 🙂

I hope you're having a wonderful day.
Cheers!
Ray (@ray666)

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