Anyone lost the ability to walk due to peripheral neuropathy?

Posted by rjack6618 @rjack6618, May 25 11:12am

Has anyone in the group lost the ability to walk from peripheral neuropathy in both lower legs? If so were you able to regain the ability to walk and if so how did you do that?

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wenner | @wenner | 6 days ago

Yes I'd like the answer to that question also.

Ray Kemble | @ray666 | 5 days ago

In reply to @timely "@ray666 I have avoided cortisone shots as they destroy muscle." + (show)

I understand, @timely, and have discussed this with my orthopedist. This is a devilish business, isn't it? So many moments in my life with PN are rock & hard place moments: having to make a choice between what's possibly (maybe probably) detrimental and what's desired to obtain some modicum of relief. On it goes … 🙂

Ray Kemble | @ray666 | 5 days ago

In reply to @wenner "What a shock, I went to bed able to walk (sort of). Got up in the..." + (show)

Hello, @wenner

That's really alarming! Overnight, you say, from the ability to walk ("sort of," as you say) to being "unable to even stand up"?

Your post has left me really shaken. Is there any chance, considering the speed with which this radical change took place (8 hours, or even fewer?), that the cause is actually unrelated to your neuropathy? Is it even possible?

I'm not a doctor or any sort of clinician, but what happened to you has me scratching my head. I'm wondering: "sudden change" + "possibly unrelated to neuropathy" –> might that suggest the possibility of an equally rapid recovery, if only the right test were administered that would identify an undeniable––and reversible––cause?

Keep us posted, @wenner, please!

Ray (@ray666)

wenner | @wenner | 5 days ago

In reply to @ray666 "Hello, @wenner That's really alarming! Overnight, you say, from the ability to walk ("sort of," as..." + (show)

@ray666 Hi Ray, a female dramatising I fear. I am a mad keen gardener and now have to have all paths widen for the wheelchairs. Thus there is a lot of rocks etc to be moved. That's what I was up to and by the 3rd day my body said "that's enough I need a break". I'm sure it's just my stupidity and all will get back to neuropathy normal with a bit of rest. Thanks for the concern, sorry I confused you but I wasn't about to confess what I was up to. Cheers @wenner

sfbaygirl | @sfbaygirl | 5 days ago

In reply to @wenner "Is your husband in pain? I'm almost a non walker, wheelchair most the time, but in..." + (show)

@wenner I have severe pain in my calves most days. It makes it hard to walk more than a block. I use an electric chair when out. That helps a lot. I lay around most days as that helps alleviate my pain. I’m on gabapentin and morphine and still hurt. Some days I have sharp pains in my knee and foot. I’m 73 and have had this pain about a year. But lots of pain from spondylitis.

wenner | @wenner | 5 days ago

In reply to @sfbaygirl "@wenner I have severe pain in my calves most days. It makes it hard to walk..." + (show)

@sfbaygirl I'm sorry you have so much pain. If only we had a magic pill. My GP plus I (I put my 2 bob's worth in always) have been switching pills around looking for the magic portion. We have discovered you get a good balance, but not for long and you have to change the combination again. Keep your chin up & keep fighting. Best of luck @wenner

jedge54 | @jedge54 | 4 days ago

In reply to @wenner "@sfbaygirl I'm sorry you have so much pain. If only we had a magic pill. My..." + (show)

@wenner
My legs are getting weaker. I can still walk but tire easily. I am in a drug trial right now, praying it will stop the progression of the CIDP

Ray Kemble | @ray666 | 4 days ago

In reply to @wenner "@ray666 Hi Ray, a female dramatising I fear. I am a mad keen gardener and now..." + (show)

Good morning, @wenner

Thank you for the clarification!

What a wonderful expression: "neuropathy normal"! That expression alone would make for a fascinating Connect discussion: "Do you have a 'neuropathy normal,' and what's it like?"

Cheers to you, too! And Happy Gardening!
Ray (@ray666)

wenner | @wenner | 4 days ago

In reply to @ray666 "Good morning, @wenner Thank you for the clarification! What a wonderful expression: "neuropathy normal"! That expression..." + (show)

@ray666 My neuropathy normal is not a nice place to be (minus body strain). I get stuck in transit, forget I can't walk, then just stand there hoping a walking stick will appear. The top half of my body turns around, but my silly legs don't follow. I even can't get into a lot of cars anymore. Now the pain, well I don't wish to talk about it. Have a great day Ray @wenner

wenner | @wenner | 4 days ago

In reply to @jedge54 "@wenner My legs are getting weaker. I can still walk but tire easily. I am in..." + (show)

@jedge54 I have to check what CIDP is. I haven't been on this site long enough to work out all these letter codes. I sure hope the drug trial works out for you. We could (maybe) accept we can't walk, but be the continual pain is another story. Chin up, have a good day @wenner