Has anyone had post Whipple stomach issues?

Posted by cyrus73 @cyrus73, Feb 3, 2025

I had my Whipple surgery on 1/17 at MSK NYC by Dr Soares. They moved quickly to see if my newly designed stomach would accept liquid then solid food without throwing up. 2 weeks later they put me on a feeding bag for nutrition. They said the bile in my stomach needs to be drained so tomorrow they will put a tube in my stomach. Also tomorrow they will start a feeding cycle for 12 hours so any outside post surgery rehab facility will accept me with those 2 conditions. They said it might take up 3 months for my “dead stomach “ to wake up and recover.
2 questions
1. Has anyone experienced something similar?
2. Anyone know of an excellent inpatient rehab facility near Norwalk CT?
Many thanks!!!

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My husband had cholangeocarcinoma in the common bile duct, and had the Whipple 6/18/25. His stomach didn't wake up for 2.5 months. He spent 6 weeks in the hospital, the majority of the time with an ng tube, until they put a bile bag in at week 5. They started him on tpn at week 4, after losing 45 lbs. They sent him home on ton. They had home health come in every week and do blood work and the tpn would be delivered to us, I would add the vitamins and hook it to the pump where it would pump for 12 hours. It was in a backpack so he was able to carry it around the house or take it with him to Dr's apps. Did they say why they were sending you to a rehab facility? If you have someone who can help you, you can empty the bile bag (same thing and ng tube does) by yourself, and the tpn is easy to-do after they show you how to do it. Our Dr said the longest he's ever seen someone's stomach not wake up is 2 months. My husband beat it by 2 weeks. Once your tummy starts to wake up, take everything slow. Don't be afraid of asking if you can go home with all of these things. You'll get more rest, for sure. Our prayers are with you ❤️

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Wow! Sure glad I did not have these problems. Some others had to have a stomach tube for a while. I was in the hospital for 5 days and everything worked. Still have problems with gas pains. It has been 4 months since the whipple. I had it in Dallas Tx. I am 86 years old.

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