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Has anyone had post Whipple stomach issues?
I had my Whipple surgery on 1/17 at MSK NYC by Dr Soares. They moved quickly to see if my newly designed stomach would accept liquid then solid food without throwing up. 2 weeks later they put me on a feeding bag for nutrition. They said the bile in my stomach needs to be drained so tomorrow they will put a tube in my stomach. Also tomorrow they will start a feeding cycle for 12 hours so any outside post surgery rehab facility will accept me with those 2 conditions. They said it might take up 3 months for my “dead stomach “ to wake up and recover.
2 questions
1. Has anyone experienced something similar?
2. Anyone know of an excellent inpatient rehab facility near Norwalk CT?
Many thanks!!!
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My husband had cholangeocarcinoma in the common bile duct, and had the Whipple 6/18/25. His stomach didn't wake up for 2.5 months. He spent 6 weeks in the hospital, the majority of the time with an ng tube, until they put a bile bag in at week 5. They started him on tpn at week 4, after losing 45 lbs. They sent him home on ton. They had home health come in every week and do blood work and the tpn would be delivered to us, I would add the vitamins and hook it to the pump where it would pump for 12 hours. It was in a backpack so he was able to carry it around the house or take it with him to Dr's apps. Did they say why they were sending you to a rehab facility? If you have someone who can help you, you can empty the bile bag (same thing and ng tube does) by yourself, and the tpn is easy to-do after they show you how to do it. Our Dr said the longest he's ever seen someone's stomach not wake up is 2 months. My husband beat it by 2 weeks. Once your tummy starts to wake up, take everything slow. Don't be afraid of asking if you can go home with all of these things. You'll get more rest, for sure. Our prayers are with you ❤️
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3 ReactionsWow! Sure glad I did not have these problems. Some others had to have a stomach tube for a while. I was in the hospital for 5 days and everything worked. Still have problems with gas pains. It has been 4 months since the whipple. I had it in Dallas Tx. I am 86 years old.
@markymarkfl hi. I had A pylorus preserving Whipple surgery one year ago. I was in the hospital for five weeks with a lot of complications. I went through the no eating or drinking stage. Then the liquid stage then I started eating a little bit very little. I had TPN for many months, then after TPN I had to have a bag of fluids as needed because I was so dizzy, I did pass out once and went to the emergency room in an ambulance. Now I drink electrolytes every day all day and for a long time I was taking the orgain organic protein powder, no flavor, plant based, green top. I put 2 scoops in an old Talenti jar with a tsp. Of decaf for flavor and filled it with cold water and would shake it vigorously. It was very easy. I drank it in the morning. As far as post problems I’ve had nothing but gi problems. Now I have to see an irritable bowel specialist which hasn’t happened yet. I had constant diarrhea 9 times a day for about 10 months. Cramps, etc. now I have both diarrhea and constipation constantly with cramps and horrific hemmorhoids. I personally am a mess and I also have severe pancreatic enzyme insufficiency and possible ibs or uc. I’m not a happy camper. Yes Amazon has the organic organic protein powder. My husband drinks it the same way daily. Just shake it a lot.
@ln100 sorry. I forgot. The orgain protein powder is $26.99 for a 1.59 lb. Container on Amazon.