Has anyone had Myofascial Pain?

Posted by mshepard1 @mshepard1, May 2 3:09pm

Myofascial Pain ;high tight muscles) after bad fall and fracturing many bones in pelvic area. Bones are healed. Pain in constant and unrelenting. Mobility is low. Pain pills and muscle relaxants don’t work. Trigger point injections don’t help. Recommended: Botox injections or Ketamine infusions. Has anyone had something like this??

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Have you been evaluated by a physiatrist or physical therapist? Myofascial Release therapy is fairly new and a lot of pain doctors and others have never heard of it. But since you've fractured some very important bony structures that support our bodies recovery might be long . You should consider looking at teaching hospitals or other big centers for the kind of recovery you require. One thing I would be doing is moving my body. The more sedentary you remain the more pain you'll have. If you were prescribed anti-inflammatory meds be cautious in taking them for GI issues and good luck.

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Sorry for your pain, much of which isn’t helped by injuries…myofascial pain is hard to deal with, not easy to treat…my osteopath/MD helps… I am seeking myofascial massage to get me to the point where I can exercise enough to break the cycle of pain and less exercise (due to pain)…movement is key, but needs to be carefully done so it can be tolerated well. Wishing anyone who deals with this all the best.

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Yikes! You must really be an extreme pain to take those drugs. Right now I get cranial facial massage. And I did get it through my Medicare insurance. It really does help me and with my neck pain and also sometimes I can feel it down my legs. I think you should try the myofascial work. I also had a very tight chest area and they slowly unstick it. Cause it really is like a sticky area that needs to be pulled apart. Very, very very slowly. You can also try acupuncture, which sometimes works for people and sometimes doesn’t. And I believe that health insurance is starting to pay for this procedure. It doesn’t hurt it just looks like it should lol. You are your best advocate. No one else knows what you need. I have a partner who comes with me to my appointments so that I say the things I need you to the doctor without feeling powerless. He gives me a little nudge if he is there to stay strong and say what I need. All of us with fibromyalgia are extremely strong women. When I tried and couldn’t do a tai chi class due to the pain, the instructor asked how long I had fibromyalgia. I said 25 years. And she said you’re a warrior! So I guess we’re all warriors.

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Profile picture for jenatsky @jenatsky

Have you been evaluated by a physiatrist or physical therapist? Myofascial Release therapy is fairly new and a lot of pain doctors and others have never heard of it. But since you've fractured some very important bony structures that support our bodies recovery might be long . You should consider looking at teaching hospitals or other big centers for the kind of recovery you require. One thing I would be doing is moving my body. The more sedentary you remain the more pain you'll have. If you were prescribed anti-inflammatory meds be cautious in taking them for GI issues and good luck.

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@jenatsky thanks for your response. You are right about a lot of doctors not knowing anything about Myofascial pain. And you are right about pills causing GI issues which just makes everything worse.?

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Profile picture for nycmusic @nycmusic

Sorry for your pain, much of which isn’t helped by injuries…myofascial pain is hard to deal with, not easy to treat…my osteopath/MD helps… I am seeking myofascial massage to get me to the point where I can exercise enough to break the cycle of pain and less exercise (due to pain)…movement is key, but needs to be carefully done so it can be tolerated well. Wishing anyone who deals with this all the best.

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@nycmusic thank you for your reply. I haven’t found anything that helps me yet but still hopeful. Best

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I was prescribed Cymbalta, small dose of Lyrica for the nerve pain, and Celebrex for the inflammation and the combination has worked better for me than anything. It took a long time to find that combination. I also do PT with pressure point dry needling and work puts in a warm therapy pool. The combo of therapy and meds was agreed upon by a rheumatologist and my pain specialist. If you haven’t seen either one of those, I would highly recommend it. Most PCPs are not specialized enough to treat this disease because its symptoms can be misdiagnosed as other things, because they have a lot in common.

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Thank you for responding. I will look into these meds and also make appointments with rheumatologist and pain specialist. I am also not familiar with PT with pressure point dry needling so will do some research there and I know it would help me to work out in a warm therapy pool. That may happen for me as we may be moving to an assisted living in the future. These are all ideas that may help me. Thanks for all the information. Be well.

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Profile picture for nycmusic @nycmusic

Sorry for your pain, much of which isn’t helped by injuries…myofascial pain is hard to deal with, not easy to treat…my osteopath/MD helps… I am seeking myofascial massage to get me to the point where I can exercise enough to break the cycle of pain and less exercise (due to pain)…movement is key, but needs to be carefully done so it can be tolerated well. Wishing anyone who deals with this all the best.

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@nycmusic You are right. Myofascial pain is very difficult to diagnosis and treat. I have had trigger point injections three different times and they did not help at all. I also had a nerve block which made the pain worse. Both of these are procedures which can sometimes help for a while. I think I will try you idea of an osteopath/MD and massage as I need to break the cycle of pain also so I can get moving (exercise) and just living! Good luck and thanks for writing.

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Hope you find relief…keep us posted when you do…. I even tried dry needling, okay for awhile…..now i’m also seeing a Rosen method practitioner whom I love (for several sessions) —a combo of very knowledgeable hands-on with gentle verbal cues—somehow, it does provide real psyche release, which is a component of pain, as I learned from the late Dr,John Sarno….much pain is not a ‘’serious’’ physical condition, but comes from things being backed up in the unconscious .

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Yes, I have myofascial problems! I’ve done everything. A nice nerve doctor told me they are permanent. That my muscle muscles will always retreat at this point in life (I’m 69) to needing work on them. Botox worked great to relax themuscles that went into spasm. But at a certain point, my body got tired of it. I became uncomfortable with the paralysis. I started MFR work a couple times a week to start and then over two years. I want to once a month. It makes a huge difference in my life. I’ve had my bones fixed, but when your bones are fixed, the muscles can still be a problem and need various attention mechanisms. You will have to find a good MFR therapist as there are many different kinds of people who do MFR work. You might have to pay out of your own pocket. I did because the MFR therapist I landed on did far better job than the ones that Medicare approves for 15 minutes.
I want to lead an active life so I use the tools available to help me stay out of pain. I don’t use the nerve medication’s. I choose low-dose opioid with Tylenol to have pain release that the doctors can’t heal anymore. It’s really important to know the source of your pain so you don’t have the wrong treatments. There was so much wrong with me by the time I got to the surgeons office, that surgery was never going to fix me entirely. I was going to need MFR on a regular basis. I recommend it with that question!

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