Has anyone had a blood patch for their migraines?

Posted by mikayla @mikaylar, Nov 1 11:15am

Neurologist is trying to determine if I have a leak in my spine causing my constant headache and dizziness for 6 yrs/2 mos. I have had 6 blood patches over the years. Has anyone else dealt with this?

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Hi, @mikaylar - just to be sure I understand what you are asking, I think you are talking about an epidural blood patch used for post-dural puncture headaches, which can occur after a spinal tap?

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Profile picture for Lisa Lucier, Moderator @lisalucier

Hi, @mikaylar - just to be sure I understand what you are asking, I think you are talking about an epidural blood patch used for post-dural puncture headaches, which can occur after a spinal tap?

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No, these are for constant headache. They take blood from your arm and put it where they think there is a tiny hole in our spine. If you are lucky, after 5 days of lying flat, the blood will heal the hole. Then, no lifting, twisting, bending for 3 mos.

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Profile picture for mikayla @mikaylar

No, these are for constant headache. They take blood from your arm and put it where they think there is a tiny hole in our spine. If you are lucky, after 5 days of lying flat, the blood will heal the hole. Then, no lifting, twisting, bending for 3 mos.

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@mikaylar - interesting. So has this been helpful to you so far as far as the doctor trying to determine if you have a leak in your spinal fluid causing your headaches?

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Profile picture for Lisa Lucier, Moderator @lisalucier

@mikaylar - interesting. So has this been helpful to you so far as far as the doctor trying to determine if you have a leak in your spinal fluid causing your headaches?

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What do you mean? I have to wait for the radiologists to meet and decide if I, in fact, have a leak. It is hard to determine.

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Profile picture for Lisa Lucier, Moderator @lisalucier

Hi, @mikaylar - just to be sure I understand what you are asking, I think you are talking about an epidural blood patch used for post-dural puncture headaches, which can occur after a spinal tap?

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@lisalucier That is why I questioned if there was spinal surgery involvement. I'm not sure why there would be a hole to patch if there was not an invasive puncture wound. Are you understanding? Am I missing something? I agree the symptoms (dizziness etc.) fit the prognosis, but where is the possible leakage coming from?

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Profile picture for nannybb @nannybb

@lisalucier That is why I questioned if there was spinal surgery involvement. I'm not sure why there would be a hole to patch if there was not an invasive puncture wound. Are you understanding? Am I missing something? I agree the symptoms (dizziness etc.) fit the prognosis, but where is the possible leakage coming from?

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There is no answer for a spinal leakage. Docs don't know why they occur. I think maybe 1 in 100,000.

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Wow.... I know why it occurs if you have had a spinal tap or a spinal surgery. My husband had a spinal tap and was deathly ill. They sent us home from the hospital in that condition. They said he had the flu. When my husband told me that let him get out of bed to use the restroom, I knew what was going on. That's how we ended up back in the hospital for the blood patch. Crazy. I'll have to research this. I'm sorry it keeps occurring. Very painful.

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