Has anyone had a abbot spinal cord stimulator put in?
Hi my name is Joe and new to the group. I have had 10 surgeries on my spine both neck and back. Now as before I deal with chronic pain worse than before all my surgeries. One big reason is scare tissue. I was wondering if anyone has had an Abbott spinal cord stimulator put in. And if it has helped? And how long you have had it installed. I’m thinking this might be my next thing to try. Would appreciate any input you could share. Thank you!
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I have the Medtronic Spinal Cord Stimulator with mixed reviews, it's a pain to charge and have needed more power to get any effect over the years & not allot of relief ! ! !
Well I got the Abbott implant in 4 weeks ago. They only gave me 2 settings, one with a burst and one with tonic. Here is my positive and negatives.
1. I believe I am getting results mostly helping my leg pain. I can say before the implant when the leg pain came it was terrible, that has subsided.
2. My lower back and butt pain comes and goes but not as bad as it was before surgery, so that is a slight positive. Maybe I am to close out from the surgery and have given it enough time, not sure.
3. Here are some negatives
A. They did not tell me before surgery that I was not getting a rechargeable battery. Everything I read was about the rechargeable battery but after surgery they told me the battery can last 5 years or less depending on how I use it, that was a disappointment for me.
B. The rep set only 2 settings and gave me very little education on how to navigate the settings, just told me not to set it to high, well I found out what was to high when I put it on the tonic setting at about 35 or so and went to the store and the back of my leg was on fire. I had to turn it farely high to feel it and boy I felt it.
3. Another negative is the connection to the generator is extremely slow and most often takes two tries to find connection. I tried it on my iphone and lost all connection and so I had the rep put it on the phone they gave me, still connection is a turtle.
4. Here was my instructions for follow up after my second post opt.” Call us if you have any issues “ Wouldn’t you think that a company would follow the people who purchased a critical medical device like this. I liked my rep a lot but not sure if that is Abbotts policy or not but that does not seem right to me that the pain clinic/ Abbott would not at least have scheduled follow ups, even yearly would be better than none.
Time will tell if this was worth the pain of surgery and 6 weeks of basically doing no bending, lifting, twisting. My question is, how do you not do some of those things, unless you have someone do everything for you.
I really am a bit upset that they did not give me a choice of the type of battery, I don’t relish going back in to have surgery to replace a battery.
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1 Reaction@smithki - sorry you didn't get the battery you preferred. This should have been agreed with your doctor before the surgery. If it is any consolation, surgery for battery replacement is less invasive and the recovery will be quicker than for the full system implantation. And you don't have to deal with recharging in the meantime, which some people find tedious and time consuming. Any follow up visits are typically with your physician. The Abbott rep is there for you when you have programming needs or device connection issues.
Setting the optimal strength level for Burst stimulation can be challenging since there isn't a lot of feedback. With tonic stimulation, I usually set the strength just below the point where I feel the stimulation. I prefer tonic and use it 100% of the time. The only downside is it uses more energy, so I have to charge more frequently. I don't know if this would also impact battery life for a non-rechargeable.
I agree the discharge instructions and activity limitations are difficult. I wasn't sure what no bending, twisting, or reaching really meant so I had my rep demonstrate what was okay and what wasn't okay, which was very helpful. I was able to do more during my recovery period than I initially thought.
Your last statement regarding the choice of battery is the fault of the doctor and the rep. For you to go back in to have it replaced after suffering through the pain and inconvenience without flexibility is tough. I had the Burst replaced due to the size of it. It extended out from my lower slight frame, with people coming up to me and asking what this was sticking out. I had it replaced five months later with the Eterna. (I can't recall if it was the other way around, Eterna then Burst?; I had mine removed in March after discovering the unit was off for three weeks without my knowledge)
The replaced Unit was tough to recharge. I would spend countless time finding the "sweet spot" to charge it.
I knew about The Abbott SCS since 2018, but wasn't ready to try it. There are still bugs in it to have it a success.
thank you, this was very helpful for me. I have experienced some burning discomfort with my setting as I think I had the settings to high. The rep set my burst at 12 and told me not to set it to high but I don’t know what is to high so I keep it at her setting. I seldom use tonic ever since I put the setting to high and left my house for over an hour. I came home with burning in the back of my leg that took awhile to go away after turning the unit back to burst at the lower setting. You gave an excellent explanation of how you set yours, I wish the rep had been that detailed for me. The main positive for me is that my leg pain from my back is 99% better and that is huge for me. The lower back is better as well just not as effective as it has been on my leg but I am ok with that for now.
Thanks again for your excellent explanation regarding my post.
If your leg pain is 99% improved, then you are doing fantastic. That's a great surgical outcome! If you're getting relief in Burst mode with your current strength setting, then I wouldn't mess with it. If you decrease the setting, you might be under stimulate and not get the same relief. If you increase the setting you could overstimulate, irritate your nerves, and not get the same relief. If you want to experiment with changes, you should only increase or decrease by 1 or 2 strength units at a time and then wait several days to see how you respond to the change before making any more adjustments. You can always go back to 12 after experimenting if that's your sweet spot. I only switched to tonic because I couldn't find the right Burst strength. Tonic feedback is pretty much instantaneous.
Thanks a lot for the encouragement and the advice, I really appreciate it a lot. I sure got more from you than Abbott but then again they don’t know what it feels like to have this unit implanted. I’m on my 5th week and still have this cloth band around me and being in Arizona, talk about hot but I only have 2 weeks left with that.
Thanks again
I too am from Arizona. May I ask who your doctor/neurosurgeon was?
I had Dr. Chinthagada and had my surgery at the Lazer Surgery Center in Tempee. I was scheduled with DR. Norwani from the specialty pain management but last minute he could not do it so they gave me the doctor I listed. I was concerned about this doctor, so I called the Abbott Rep and she told me he was very good and she had been a part of many of his implants.
I am pleased you contacted the rep and asked their opinion of the doctor. Their recommendations are genuine.