Has anyone found a treatment that helps with peripheral neuropathy?

Posted by bigjohnscho @bigjohnscho, Jul 1, 2025

I suspect that everyone on this forum has been searching for a medication that helps their neuropathy and even though you no that all the internet claims are false we continue to waste hundreds of pounds. Desperation is a powerful force. Has any one been fortunate enough to find a genuine treatment. I just can’t believe that there are so many awful people who prey on our vulnerability and knowingly orchestrate such elaborate scams.

Interested in more discussions like this? Go to the Neuropathy Support Group.

Profile picture for SusanEllen66 Susan McMichael @SusanEllen66

@carol1024
Cold water would make things worse for me.
My feet get cold, and turn blue in the summer!

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@SusanEllen66 I guess it could make a difference whether the neuropathy was because of diabetes and circulation problems or chemotherapy. Mine is chemo and hot water burns my right hand so bad. Shower has to be on the cool side too because both feet have toes numb and warmer water makes them hurt. They are always warm to touch so I know it isn't circulation problem.

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Profile picture for cfhogan2 @cfhogan2

@loriesco How much B12 and Iron. I take a multivitamin and don't want to overdo it. Thanks.

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@cfhogan2 its the type of iron - I need HEME iron because I don't eat enough red meat and I have anemia. I don't take it every day because our bodies store the iron. The B12 is the same. I know when I start feeling very tired (like I want a nap) its time for the B12. The kind of supplement is important too. Vitamin Code for men or women - over 50 is great. You are right - you don't want to overdue!

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Profile picture for carol1024 @carol1024

@SusanEllen66 I guess it could make a difference whether the neuropathy was because of diabetes and circulation problems or chemotherapy. Mine is chemo and hot water burns my right hand so bad. Shower has to be on the cool side too because both feet have toes numb and warmer water makes them hurt. They are always warm to touch so I know it isn't circulation problem.

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@carol1024 my feet can be warm to the touch, and freezing cold to me. It happens anytime.

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Profile picture for SusanEllen66 Susan McMichael @SusanEllen66

@carol1024
Cold water would make things worse for me.
My feet get cold, and turn blue in the summer!

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@SusanEllen66 .. the initial shock yes, but after a couple of minutes it should die down and the cold will numb the nerves.. it works well for me and I too have a numbness and cold feet

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Profile picture for timely @timely

@SusanEllen66

Has your Dr. approve d that high a dose?
Any improvement with that? ❤️

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@timely
1200 per day neurologist approved

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Do you take any special brand of ALP? I take 1 -600mg/ day. I’ll check with my Dr. to see if 2/day is okay.

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I’ve hadPN for 16 years. I got talked into foot surgery by a foot surgeon then. It did nothing for my pain. He put me on Gabapentin. Said that I could take up to 12/day(300mg/pill). It made me tired and foggy but I got used to it. A couple years later I moved to Minnesota , that’s another story. Another Dr. sent to a neurologist. He did an EMG, said that I had PN. He couldn’t believe that aDr. prescribed that much Gabapentin. Reduced it to 6/ day and added
Duloxetine. Did that for a few years and just took the Gabapentin. Saw several ads for a “cure” for PN and finally bit the “silver bullet” that everyone is looking for. Went to a chiropractor that claimed to be able to reverse PN. Spent $5000. and got NO relief. Another chiropractor wanted $9800 for the same BS. I now take 3 Gabapentin, 600mg ALA and 5000 units of B12. Still have shooting pains ( I call them Zingers ) and numbness in my feet and now spreading to my hands. It’s manageable but not the way I want to live. I pray that someone can find a cure.

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Profile picture for ggflyer46 @ggflyer46

I’ve hadPN for 16 years. I got talked into foot surgery by a foot surgeon then. It did nothing for my pain. He put me on Gabapentin. Said that I could take up to 12/day(300mg/pill). It made me tired and foggy but I got used to it. A couple years later I moved to Minnesota , that’s another story. Another Dr. sent to a neurologist. He did an EMG, said that I had PN. He couldn’t believe that aDr. prescribed that much Gabapentin. Reduced it to 6/ day and added
Duloxetine. Did that for a few years and just took the Gabapentin. Saw several ads for a “cure” for PN and finally bit the “silver bullet” that everyone is looking for. Went to a chiropractor that claimed to be able to reverse PN. Spent $5000. and got NO relief. Another chiropractor wanted $9800 for the same BS. I now take 3 Gabapentin, 600mg ALA and 5000 units of B12. Still have shooting pains ( I call them Zingers ) and numbness in my feet and now spreading to my hands. It’s manageable but not the way I want to live. I pray that someone can find a cure.

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@ggflyer46 Sorry for your pain. We live in the day of medical fraud and people see $$$$$ in our pain. I was reading about "Sarapin". Look it up. I am willing to try it but my pain doctor doesn't do it. I am encouraged about what I read. Seems safe too. Good luck!!!

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Profile picture for julkun @julkun

@ggflyer46 Sorry for your pain. We live in the day of medical fraud and people see $$$$$ in our pain. I was reading about "Sarapin". Look it up. I am willing to try it but my pain doctor doesn't do it. I am encouraged about what I read. Seems safe too. Good luck!!!

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@julkun I’ll have to check it out. Thanks.

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