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Mark
@vmc123

Posts: 9
Joined: Apr 24, 2014

Has anyone ever filed for social security disability because of sclerosing mesenteritis? [...]

Posted by @vmc123, Apr 23, 2014

Has anyone ever filed for social security disability because of sclerosing mesenteritis? Was diagnosed in 2010, had to leave my job of 35 years in 2012 because of this stupid disease! Any feedback would be greatly appreciated. Thanks

REPLY

Hi, Mark. I’m so sorry to hear about your condition. Does anyone have any advice or feedback for Mark?

are you certain about the diagnosis did you try a secound opinion?

My daughter was disabled with SM since 2008. She’s now an adult and it’s a nightmare in the adult SSI world..her hearing is next month. Multiple bowel resections, continued aggressive growth, TPN dependent. We have 57 people in a support group if you’re interested I can give it to you. Private group.

@lisas444

My daughter was disabled with SM since 2008. She’s now an adult and it’s a nightmare in the adult SSI world..her hearing is next month. Multiple bowel resections, continued aggressive growth, TPN dependent. We have 57 people in a support group if you’re interested I can give it to you. Private group.

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Hi, I\’m Mark from NC, diagnosed in 2010, applied in 2012. Waiting on a hearing date. Would like to discuss more about this with you.

Thanks

Sent from Samsung tablet

@lisas444

My daughter was disabled with SM since 2008. She’s now an adult and it’s a nightmare in the adult SSI world..her hearing is next month. Multiple bowel resections, continued aggressive growth, TPN dependent. We have 57 people in a support group if you’re interested I can give it to you. Private group.

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Hi Mark, my email is lisas444@yahoo if you want to talk. There is another guy that is 31 that was approved recently. I have the Order and am using it. Do you have an attorney? My kiddo has had 17 abdominal surgeries now . . she’s still alive…. no quality of life, several months a year inpatient . . .TPN dependency, etc. My name is Lisa btw! 🙂

@lisas444

My daughter was disabled with SM since 2008. She’s now an adult and it’s a nightmare in the adult SSI world..her hearing is next month. Multiple bowel resections, continued aggressive growth, TPN dependent. We have 57 people in a support group if you’re interested I can give it to you. Private group.

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Hi Lisa, hope you and little mac are doing okay. Do you think the gentleman who has the order would let me have a copy?

@olboy1140

are you certain about the diagnosis did you try a secound opinion?

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Hello Dick, yes, have had 2nd and 3rd opinions plus a biopsy done. My tumor is the size of a fist and runs from my front to my back thus the pain in all areas of the abdomen.

@lisas444

My daughter was disabled with SM since 2008. She’s now an adult and it’s a nightmare in the adult SSI world..her hearing is next month. Multiple bowel resections, continued aggressive growth, TPN dependent. We have 57 people in a support group if you’re interested I can give it to you. Private group.

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Hi Lisa,
My boyfriend was recently diagnosed with SM. He hasn’t started treatment yet. He is in such bad shape I want to find out more about applying for social security disability. How to start the process and how long it takes. Can you give me any advice? Thanks, Noreen.

@lisas444

My daughter was disabled with SM since 2008. She’s now an adult and it’s a nightmare in the adult SSI world..her hearing is next month. Multiple bowel resections, continued aggressive growth, TPN dependent. We have 57 people in a support group if you’re interested I can give it to you. Private group.

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Noreen – I’ll send you a private message on here and also the info on the support group we have! I think you could both enjoy it and a wealth of knowledge from the others! 🙂 My kiddo is back in the hospital with this since Saturday . . . i’m bouncing between work and there. Lisa

Mark – I know your wife is in our group, but did you ever get your social security worked out? My daughter’s was approved as a child under TEFRA and now as an adult now back at the end of September and was awarded from the stand at the 5 minute hearing. There are 3 now we’re aware of with SM and/or MP that are approved for SSI/SSDI, but unfortunately one of them passed just prior to their social security being awarded. Let me know! 🙂 or your wife can on the other! lol

@lisas444

My daughter was disabled with SM since 2008. She’s now an adult and it’s a nightmare in the adult SSI world..her hearing is next month. Multiple bowel resections, continued aggressive growth, TPN dependent. We have 57 people in a support group if you’re interested I can give it to you. Private group.

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i have my daughter’s Court Decision if you need it and the other guy, the 28 year old’s Order if you need it as well. When is your hearing? 🙂

@lisas444

Mark – I know your wife is in our group, but did you ever get your social security worked out? My daughter’s was approved as a child under TEFRA and now as an adult now back at the end of September and was awarded from the stand at the 5 minute hearing. There are 3 now we’re aware of with SM and/or MP that are approved for SSI/SSDI, but unfortunately one of them passed just prior to their social security being awarded. Let me know! 🙂 or your wife can on the other! lol

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Hi Lisa!
Sent you an email.
Mark

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