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vmc123

Has anyone ever filed for social security disability because of sclerosing mesenteritis? [...]

Posted by @vmc123 in Digestive Health, Apr 23, 2014

Has anyone ever filed for social security disability because of sclerosing mesenteritis? Was diagnosed in 2010, had to leave my job of 35 years in 2012 because of this stupid disease! Any feedback would be greatly appreciated. Thanks

Tags: disability, social security, sclerosing mesenteritis

LS4 likes this

Posted by @Margaret_Marie, Apr 25, 2014

Hi, Mark. I'm so sorry to hear about your condition. Does anyone have any advice or feedback for Mark?

olboy1140

Posted by @olboy1140, Apr 27, 2014

are you certain about the diagnosis did you try a secound opinion?

vmc123

Posted by @vmc123, Aug 19, 2014

Hello Dick, yes, have had 2nd and 3rd opinions plus a biopsy done. My tumor is the size of a fist and runs from my front to my back thus the pain in all areas of the abdomen.

lisas444

Posted by @lisas444, Jul 30, 2014

My daughter was disabled with SM since 2008. She's now an adult and it's a nightmare in the adult SSI world..her hearing is next month. Multiple bowel resections, continued aggressive growth, TPN dependent. We have 57 people in a support group if you're interested I can give it to you. Private group.

vmc123

Posted by @vmc123, Jul 30, 2014

Hi, I'm Mark from NC, diagnosed in 2010, applied in 2012. Waiting on a hearing date. Would like to discuss more about this with you.

Thanks

Sent from Samsung tablet

LS4 likes this
lisas444

Posted by @lisas444, Jul 30, 2014

Hi Mark, my email is lisas444@yahoo if you want to talk. There is another guy that is 31 that was approved recently. I have the Order and am using it. Do you have an attorney? My kiddo has had 17 abdominal surgeries now . . she's still alive.... no quality of life, several months a year inpatient . . .TPN dependency, etc. My name is Lisa btw! πŸ™‚

vmc123

Posted by @vmc123, Aug 19, 2014

Hi Lisa, hope you and little mac are doing okay. Do you think the gentleman who has the order would let me have a copy?

cassidy2

Posted by @cassidy2, Aug 26, 2014

Hi Lisa,
My boyfriend was recently diagnosed with SM. He hasn't started treatment yet. He is in such bad shape I want to find out more about applying for social security disability. How to start the process and how long it takes. Can you give me any advice? Thanks, Noreen.

LS4 likes this
lisas444

Posted by @lisas444, Aug 27, 2014

Noreen - I'll send you a private message on here and also the info on the support group we have! I think you could both enjoy it and a wealth of knowledge from the others! πŸ™‚ My kiddo is back in the hospital with this since Saturday . . . i'm bouncing between work and there. Lisa

lisas444

Posted by @lisas444, Apr 27, 2015

i have my daughter's Court Decision if you need it and the other guy, the 28 year old's Order if you need it as well. When is your hearing? πŸ™‚

lisas444

Posted by @lisas444, Apr 27, 2015

Mark - I know your wife is in our group, but did you ever get your social security worked out? My daughter's was approved as a child under TEFRA and now as an adult now back at the end of September and was awarded from the stand at the 5 minute hearing. There are 3 now we're aware of with SM and/or MP that are approved for SSI/SSDI, but unfortunately one of them passed just prior to their social security being awarded. Let me know! πŸ™‚ or your wife can on the other! lol

vmc123

Posted by @vmc123, Apr 27, 2015

Hi Lisa!
Sent you an email.
Mark

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