1. < Digestive Health

Has anyone ever filed for social security disability because of sclerosing mesenteritis? [...]

Posted by Mark @vmc123, Apr 23, 2014

Has anyone ever filed for social security disability because of sclerosing mesenteritis? Was diagnosed in 2010, had to leave my job of 35 years in 2012 because of this stupid disease! Any feedback would be greatly appreciated. Thanks

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Margaret Shepard | @Margaret_Marie | Apr 25, 2014

Hi, Mark. I'm so sorry to hear about your condition. Does anyone have any advice or feedback for Mark?

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dick price | @olboy1140 | Apr 27, 2014

are you certain about the diagnosis did you try a secound opinion?

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1 reply
LS4 / Lisa Schwart Tulsa Oklahoma (FB page) | @lisas444 | Jul 30, 2014

My daughter was disabled with SM since 2008. She's now an adult and it's a nightmare in the adult SSI world..her hearing is next month. Multiple bowel resections, continued aggressive growth, TPN dependent. We have 57 people in a support group if you're interested I can give it to you. Private group.

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8 replies
Mark | @vmc123 | Jul 30, 2014
In reply to @lisas444 "My daughter was disabled with SM since 2008. She's now an adult and it's a nightmare..." + (show)
@lisas444

My daughter was disabled with SM since 2008. She's now an adult and it's a nightmare in the adult SSI world..her hearing is next month. Multiple bowel resections, continued aggressive growth, TPN dependent. We have 57 people in a support group if you're interested I can give it to you. Private group.

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<br />
Hi, I\'m Mark from NC, diagnosed in 2010, applied in 2012. Waiting on a hearing date. Would like to discuss more about this with you.<br />
<br />
Thanks<br />
<br />
<br />
<br />
Sent from Samsung tablet

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LS4 / Lisa Schwart Tulsa Oklahoma (FB page) | @lisas444 | Jul 30, 2014
In reply to @lisas444 "My daughter was disabled with SM since 2008. She's now an adult and it's a nightmare..." + (show)
@lisas444

My daughter was disabled with SM since 2008. She's now an adult and it's a nightmare in the adult SSI world..her hearing is next month. Multiple bowel resections, continued aggressive growth, TPN dependent. We have 57 people in a support group if you're interested I can give it to you. Private group.

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Hi Mark, my email is lisas444@yahoo if you want to talk. There is another guy that is 31 that was approved recently. I have the Order and am using it. Do you have an attorney? My kiddo has had 17 abdominal surgeries now . . she's still alive.... no quality of life, several months a year inpatient . . .TPN dependency, etc. My name is Lisa btw! 🙂

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Mark | @vmc123 | Aug 19, 2014
In reply to @lisas444 "My daughter was disabled with SM since 2008. She's now an adult and it's a nightmare..." + (show)
@lisas444

My daughter was disabled with SM since 2008. She's now an adult and it's a nightmare in the adult SSI world..her hearing is next month. Multiple bowel resections, continued aggressive growth, TPN dependent. We have 57 people in a support group if you're interested I can give it to you. Private group.

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Hi Lisa, hope you and little mac are doing okay. Do you think the gentleman who has the order would let me have a copy?

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Mark | @vmc123 | Aug 19, 2014
In reply to @olboy1140 "are you certain about the diagnosis did you try a secound opinion?" + (show)
@olboy1140

are you certain about the diagnosis did you try a secound opinion?

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Hello Dick, yes, have had 2nd and 3rd opinions plus a biopsy done. My tumor is the size of a fist and runs from my front to my back thus the pain in all areas of the abdomen.

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Noreen | @cassidy2 | Aug 26, 2014
In reply to @lisas444 "My daughter was disabled with SM since 2008. She's now an adult and it's a nightmare..." + (show)
@lisas444

My daughter was disabled with SM since 2008. She's now an adult and it's a nightmare in the adult SSI world..her hearing is next month. Multiple bowel resections, continued aggressive growth, TPN dependent. We have 57 people in a support group if you're interested I can give it to you. Private group.

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Hi Lisa,
My boyfriend was recently diagnosed with SM. He hasn't started treatment yet. He is in such bad shape I want to find out more about applying for social security disability. How to start the process and how long it takes. Can you give me any advice? Thanks, Noreen.

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LS4 / Lisa Schwart Tulsa Oklahoma (FB page) | @lisas444 | Aug 27, 2014
In reply to @lisas444 "My daughter was disabled with SM since 2008. She's now an adult and it's a nightmare..." + (show)
@lisas444

My daughter was disabled with SM since 2008. She's now an adult and it's a nightmare in the adult SSI world..her hearing is next month. Multiple bowel resections, continued aggressive growth, TPN dependent. We have 57 people in a support group if you're interested I can give it to you. Private group.

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Noreen - I'll send you a private message on here and also the info on the support group we have! I think you could both enjoy it and a wealth of knowledge from the others! 🙂 My kiddo is back in the hospital with this since Saturday . . . i'm bouncing between work and there. Lisa

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LS4 / Lisa Schwart Tulsa Oklahoma (FB page) | @lisas444 | Apr 27, 2015

Mark - I know your wife is in our group, but did you ever get your social security worked out? My daughter's was approved as a child under TEFRA and now as an adult now back at the end of September and was awarded from the stand at the 5 minute hearing. There are 3 now we're aware of with SM and/or MP that are approved for SSI/SSDI, but unfortunately one of them passed just prior to their social security being awarded. Let me know! 🙂 or your wife can on the other! lol

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