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Has anybody had an implantable neurostimulator for chronic pain?
I thought I would bring everyone up to date on my hopes of getting a pain pump. I saw my pain doctor this morning. I am not a candidate for the pain pump. I am so disappointed and discouraged. I will bounce back, but today I am depressed. I had my hopes up once again. Oh, well. with God's help, I will be ok.
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Why are you not a candidate?, Get a Second opinion. If you can tolerate surgery, I can't imagine why you wouldn't be eligible. Maybe your Doc doesn't want to lose a customer…..
Hi @zjandre, and welcome to Connect. I’m tagging @ladyjane85 and @mntnlaural as both members were recently discussing neurostimulators. I would also encourage you to check out the thread Chronic pain – Let’s Talk as I feel like you may find additional members to connect with in this group (https://connect.mayoclinic.org/discussion/are-there-any-discussions-for-chronic-pain/)
Are you considering an implanted neurostimulator or did you recently have one implanted?
Yes, I'm considering
Dont do it
I have had an implantable nerve stimulator for approximately 4 years and have had very good results from it. I have neuropathy mainly in the soles of my feet and have been pleased with it. Of course it doesn't completely take away the pain but it is lowered to a more reasonable level. I also have the pain in my legs and feet but it has been pretty well contained by Lyrica.
@nebma, can you please share which brand stimulator you have? I was told my Nevro would be a "home run" for my foot neuropathy, but it's a total bust. BUT, I was also told it wouldn't work on my back pain, and it's 100% effective. They tried to keep my back program while adding a different one for the foot but to no avail. If it's a Nevro it would be helpful to know which program works for you foot. thanks!
Lyrica solved my foot neuropathy, problem with a little help from Amitriptyline
I want to try the implantable neurostimulator. I will ask my pain doctor about it.
Great story via Sharing Mayo Clinic how a spinal cord stimulator restored quality of life after a horrible accident.
@colleenyoung. I posted a msg to you
on how to get to Arachnoiditis group in Face Book. Please advise.
Hi @toiolinger, Mayo Clinic does not host any facebook groups on arachnoiditis. There are however several active discussions about arachnoiditis here on Connect:
– I am desperate to find a dr who treats arachnoiditis. https://connect.mayoclinic.org/discussion/i-am-desperate-to-find-a-dr-who-treats-arachnoiditis-i-live/
– Arachnoiditis https://connect.mayoclinic.org/discussion/arachnoiditis/
– Any Adhesive Arachnoiditis members here? https://connect.mayoclinic.org/discussion/any-adhesive-arachnoiditis-members-here/
@colleenyoung – is there a thread for spinal stenosis? thanks barb barnes
@barbarn, members talk about spinal stenosis in both here in the Chronic Pain group (https://connect.mayoclinic.org/group/pain/) and the Bones, Joints & Muscles group (https://connect.mayoclinic.org/group/arthritis-and-joint-conditions-268850/).
There are quite a few different discussion threads with stenosis in the title, and many more where members mention spinal stenosis. Here are few with stenosis in the title that were active in the last year. @JustinMcClanahan may know of others.
– Spinal stenosis- lumbar https://connect.mayoclinic.org/discussion/spinal-stenosis-lumbar/
– Laser treatment for spinal stenosis? https://connect.mayoclinic.org/discussion/laser-treatment-for-spinal-stenosis/
– T.E.N.S. for spinal stenosis pain https://connect.mayoclinic.org/discussion/t-e-n-s-for-spinal-stenosis-pain/
Barb, it would be great to revive one of these or start a new discussion specific to spinal stenosis.
@colleenyoung – thank you so much for the info. I will definitely try to get those read ASAP, but my husband has developed more acute problems, so this will have to go on back burner for a few days.
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