Implantable neurostimulator for chronic pain

Posted by zjandre @zjandre, Apr 13, 2016

Has anybody had an implantable neurostimulator for chronic pain?

Interested in more discussions like this? Go to the Spine Health group.

@alysebrunella

Hi @zjandre, and welcome to Connect. I’m tagging @ladyjane85 and @mntnlaural as both members were recently discussing neurostimulators. I would also encourage you to check out the thread Chronic pain – Let’s Talk as I feel like you may find additional members to connect with in this group (https://connect.mayoclinic.org/discussion/are-there-any-discussions-for-chronic-pain/)

Are you considering an implanted neurostimulator or did you recently have one implanted?

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I was tested for one at the M health pain clinic but was not receptive. Instead I was given an intrathecal pain pump. A small pump implanted in my abdomen with a catheter running up my spine dripping 2.75 mg of Dilaudid into my spine every 24 hours. I also have a small remote which allows me to dose myself 10 times in a 24-hour period with another one tenth of a milligram per dose. This may not seem like much but taking your drugs this way is 300 times more effective than eating them. I had gotten to the point where no dose of oral narcotics was doing the job. This is the most effective pain control I have ever had and I would encourage anyone who can have surgery to have one of these or at least talk to your doctor about it. We're not supposed to make recommendations so I'm withdrawing my recommendation and saying it worked for me. I did have to wait over a year to get it as I was recovering from cancer and from chemotherapy and had a lot of chronic infections and they wouldn't give me the surgery for the pump until I had been infection free for one year. Best move I ever made. Thank you Doctor Park and thank you University of Minnesota.

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@alysebrunella

Hi @zjandre, and welcome to Connect. I’m tagging @ladyjane85 and @mntnlaural as both members were recently discussing neurostimulators. I would also encourage you to check out the thread Chronic pain – Let’s Talk as I feel like you may find additional members to connect with in this group (https://connect.mayoclinic.org/discussion/are-there-any-discussions-for-chronic-pain/)

Are you considering an implanted neurostimulator or did you recently have one implanted?

Jump to this post

@wsh66
Wow, that sounds like something I need to look into. The only pain med that has ever worked for me is Dilaudid. I was taking 32 mg extended release Dilaudid plus rescue pills. This year the insurance company sent me a letter that I was taking over the “new limit” of 8 mg ER. I have worked myself down yo 16 mg but my pain is more debilitating than it has been in years (and I have 2 spinal stimulators, which do help but not on all my pain as I have pain all over my body in every joint).

I think I am going to get signed up for med marijuana on my next visit so I can see if it works on my pain at all.

I’ll research the pain pump idea as an alternate.

Thanks,
Carl

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@alysebrunella

Hi @zjandre, and welcome to Connect. I’m tagging @ladyjane85 and @mntnlaural as both members were recently discussing neurostimulators. I would also encourage you to check out the thread Chronic pain – Let’s Talk as I feel like you may find additional members to connect with in this group (https://connect.mayoclinic.org/discussion/are-there-any-discussions-for-chronic-pain/)

Are you considering an implanted neurostimulator or did you recently have one implanted?

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This was suggested by my former Pain Specialist, but she moved away. The Pain Specialist I have now hasn't suggested it. Maybe because of my age. I am 82 now. The pain stimulator didn't help me at all. Finally had it removed. I am so glad this is working for you. Thanks for sharing. Gives me hope!

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@alysebrunella

Hi @zjandre, and welcome to Connect. I’m tagging @ladyjane85 and @mntnlaural as both members were recently discussing neurostimulators. I would also encourage you to check out the thread Chronic pain – Let’s Talk as I feel like you may find additional members to connect with in this group (https://connect.mayoclinic.org/discussion/are-there-any-discussions-for-chronic-pain/)

Are you considering an implanted neurostimulator or did you recently have one implanted?

Jump to this post

@cbrackle

Keep us posted, if you would, about how the marijuana works, Carl. I think that if I had the level of pain you have, I would be pursuing the pump like wsh67 has, especially since Dilaudid works for you. Having the pump would circumvent the new 8mg maximum, which is ridiculous.

If my pain were to become unmanageable, I think I'd have a talk with my pain specialist about the pump. It sounds like a great solution.

To each his own best solution.

Jim

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@alysebrunella

Hi @zjandre, and welcome to Connect. I’m tagging @ladyjane85 and @mntnlaural as both members were recently discussing neurostimulators. I would also encourage you to check out the thread Chronic pain – Let’s Talk as I feel like you may find additional members to connect with in this group (https://connect.mayoclinic.org/discussion/are-there-any-discussions-for-chronic-pain/)

Are you considering an implanted neurostimulator or did you recently have one implanted?

Jump to this post

Get new insurance. No insurance company has the right to being to get between you and your doctor in your meds. 8 milligrams a day is a joke. Even with the pain pump I take 16 mg a day.

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@alysebrunella

Hi @zjandre, and welcome to Connect. I’m tagging @ladyjane85 and @mntnlaural as both members were recently discussing neurostimulators. I would also encourage you to check out the thread Chronic pain – Let’s Talk as I feel like you may find additional members to connect with in this group (https://connect.mayoclinic.org/discussion/are-there-any-discussions-for-chronic-pain/)

Are you considering an implanted neurostimulator or did you recently have one implanted?

Jump to this post

I was tested for the neurostimulator but it didn't work. I used a TENS unit for years but all it did was Rock the skin underneath the pads. I hope it works for somebody it seemed to me to be another one of those Hoops you have to jump through before you get narcotics.

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@12165008021954

Anyone out there had a spinal cord stimulator implanted for brachial plexus avulsion pain

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Gary and Shiela

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My husband had brachial plexus reconstruction surgery at Mayo Clinic, the Brachial Plexus team said they have done all they can do as far as repair but he has so much pain. He would like to try the Spinal Cord Stimulation Trial and is just wondering if it has worked for anyone with this injury.

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It didn't work for me, I didn't pass the test when they tried it out. The other alternative is the pain pump. This works well for me.

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@alysebrunella

Hi @zjandre, and welcome to Connect. I’m tagging @ladyjane85 and @mntnlaural as both members were recently discussing neurostimulators. I would also encourage you to check out the thread Chronic pain – Let’s Talk as I feel like you may find additional members to connect with in this group (https://connect.mayoclinic.org/discussion/are-there-any-discussions-for-chronic-pain/)

Are you considering an implanted neurostimulator or did you recently have one implanted?

Jump to this post

Hello. My name is Michael. I have been following this thread for about a year. I have spinal stenosis. Pain is total back – CTL. Most pain is upper and lower back. Worst pain is in shoulders. Doctor keeps pushing the St. Jude's burst stimulator. Almost all the posts about the stimulator have been negative except for a few who were helped with foot pain. The posts have scared me into cancelling my trial until I get new MRIs. Now using opiates and medical marijuana. Would appreciate new thoughts. Thank you all.

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@alysebrunella

Hi @zjandre, and welcome to Connect. I’m tagging @ladyjane85 and @mntnlaural as both members were recently discussing neurostimulators. I would also encourage you to check out the thread Chronic pain – Let’s Talk as I feel like you may find additional members to connect with in this group (https://connect.mayoclinic.org/discussion/are-there-any-discussions-for-chronic-pain/)

Are you considering an implanted neurostimulator or did you recently have one implanted?

Jump to this post

Hi Michael,
I went through the trial with a nerve stimulator in October. My doctors concluded that I wasn’t getting as much pain relief as they were hoping. They recommended not going through with the final implant. If I were you I would not cancel your trial. It is a relatively small procedure. Everybody is different as you know. You may discover that YOU ARE THE ONE that it works for!

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@alysebrunella

Hi @zjandre, and welcome to Connect. I’m tagging @ladyjane85 and @mntnlaural as both members were recently discussing neurostimulators. I would also encourage you to check out the thread Chronic pain – Let’s Talk as I feel like you may find additional members to connect with in this group (https://connect.mayoclinic.org/discussion/are-there-any-discussions-for-chronic-pain/)

Are you considering an implanted neurostimulator or did you recently have one implanted?

Jump to this post

Hello Michael….welcome. You sound like me…a bit leery. My current situation is the result of too many structural surgeries (13) with multiple joint replacements. I light up the machines in airport security pretty well. I have been using medical marijuana for 2 years now. It does require moving slowly to find a regimen that works for you. Mine is a combination edibles, tinctures, topicals and vaping. The folks in this industry are very compassionate and helpful. Unfortunately…right now all products are going through regulatory review since the law in California opened to recreational this January. And so I have to start over and learn again. I was cautioned not to use alcohol with marijuana. Does that hold true for opioids?

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