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sutherlin
@sutherlin

Posts: 18
Joined: Dec 03, 2016

Harrington Rod and lower back pain

Posted by @sutherlin, Dec 2, 2016

I’m new to this site and hoping someone can help. I received a Harrington Rod for scoliosis at the Mayo Clinic in Minnesota in 1977. I have never had any issues with this at all. However, where my rod ends at L1, the L-2 thru L-5 have started to degenerate and I’m sure it is from the 39 years of that part of my back taking the jarring, twisting etc. Back in March I received a steroid injection in L2-L3 which helped. On December 1st I received two, 1 at L-4 and one at L-5. I know it’s only been 30 hours since the shots, but I went to walk this evening and two minutes in, the pain was back. It feels like it’s in my hip but my hip x-rays show my hip is fine(right hip only with pain). Has anyone else experienced this pain with a Harrington Rod in and have you had other medical treatments that helped with the pain. I just want to be able to walk and not be in pain. This all started 5 years ago when I had two bouts of pinched nerve, one affected my left side, the last one on my right and ever since I have never been right. Any suggestions would be helpful

REPLY

Hi sutherlin, welcome to Connect. Thank you for taking the time to share with the community about your concerns regarding the Harrington rods.

I would like to introduce you to @suee, who also had Harrington rods placed in the 1970s. Suee may be able to talk about her experience with Harrington rods from a young age and some of the discomfort that you may be feeling.

It may also be worth it to read through an older discussion that took place in Connect regarding Harrington rods and scoliosis. The conversation has not been active for some time, but you may find some information by reading through the conversation. You can find that here, http://mayocl.in/2gXaQE3.

@sutherlin, how long did your physician say the shots would last?

I had L4-5 and did the steroid routine but as time went on the pain return faster. I did stem cells and in four weeks I was pain free. No operation for me. No more steroids etc. win

@JustinMcClanahan

Hi sutherlin, welcome to Connect. Thank you for taking the time to share with the community about your concerns regarding the Harrington rods.

I would like to introduce you to @suee, who also had Harrington rods placed in the 1970s. Suee may be able to talk about her experience with Harrington rods from a young age and some of the discomfort that you may be feeling.

It may also be worth it to read through an older discussion that took place in Connect regarding Harrington rods and scoliosis. The conversation has not been active for some time, but you may find some information by reading through the conversation. You can find that here, http://mayocl.in/2gXaQE3.

@sutherlin, how long did your physician say the shots would last?

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They never really gave me a time line since the shot duration is different for everyone. The first one I had in March between the L2-L3 is still working, but i worked really fast. The two I got yesterday don’t seem to be doing anything.

I’ve been looking into stem cell. I think it’s the same as the injections. For some people it works and for some it doesn’t, but my options are becoming few and far between.

I’m now into this second set of steroid injections 4 days and nothing. So upset and discouraged that these aren’t working. Don’t know where I go from here for pain relief. Have a follow up app’t on Dec. 15th, I guess we will wait and see where to go next with this.

@cobweb

I had L4-5 and did the steroid routine but as time went on the pain return faster. I did stem cells and in four weeks I was pain free. No operation for me. No more steroids etc. win

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Where can I find info on stem cells for this

@cobweb

I had L4-5 and did the steroid routine but as time went on the pain return faster. I did stem cells and in four weeks I was pain free. No operation for me. No more steroids etc. win

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I recommend you look at the regenexx web site. They put all their research on the web plus they have E books available to read. I have looked at other companies but cannot find research. I know the Mayo Clinic does stem cells. I listened to one of their webinars and that got me started. Regenexx also has webinars available.

@sutherlin

I’m now into this second set of steroid injections 4 days and nothing. So upset and discouraged that these aren’t working. Don’t know where I go from here for pain relief. Have a follow up app’t on Dec. 15th, I guess we will wait and see where to go next with this.

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One thing I learned from using stem cells. Steroids damage stem cells along with Motrin etc. my experience with steroids is they worked at first and pain relief lessened as time went on.

@sutherlin

I’m now into this second set of steroid injections 4 days and nothing. So upset and discouraged that these aren’t working. Don’t know where I go from here for pain relief. Have a follow up app’t on Dec. 15th, I guess we will wait and see where to go next with this.

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Thanks for the info about stem cells. I will look into that.

I have a Herrington Rod and lots of issues related to that.

What has been most helpful for me so far: Swimming (#1), keeping my weight down, PT, jacuzzi, chiropractor, accupuncture, massage, heating pad, getting up and down, steroid injections for radiating pain, cognitive therapy for chronic pain, Laminectomy in L3-L4, L4-L5 (which worked for about 6 years)

What has not worked: periferal nerve stimulator that was just put in the lowest vertebra, Cymbalta, Neurontin, Lyrica, glucosamine chondroitin, meds (I had pancreatitis because of too much ibioprofen, so I take hardly anything.), Flexeril (limited amount some nights)

I just had a sacro-coccygeal injection. It may have helped some. I will know for sure in a few days. If it does not turn out to be the solution, the options I am looking at are: Nevpro periferal nerve stimulator that goes up higher in the spine, laminectomy, spinal fusion all the way down from the original Herrington Rod fusion, and now stem cell therapy.

@sutherlin

I’m now into this second set of steroid injections 4 days and nothing. So upset and discouraged that these aren’t working. Don’t know where I go from here for pain relief. Have a follow up app’t on Dec. 15th, I guess we will wait and see where to go next with this.

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Hello @bethmcch, welcome to Connect. Thank you for jumping in to the Harrington rods conversation. I hope @sutherlin comes back to this conversation as they were hoping to get insight from another person with Harrington rods regarding pain. You spoke about a bunch of great coping mechanisms and ones that have not worked so well, thank you.

@bethmcch, what sort of pain have you experienced because of your Harrington rods? What other issues have you experienced?

@sutherlin

I’m now into this second set of steroid injections 4 days and nothing. So upset and discouraged that these aren’t working. Don’t know where I go from here for pain relief. Have a follow up app’t on Dec. 15th, I guess we will wait and see where to go next with this.

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Three rounds of injections with no relief. Very frustrated and upset. Tired of being in pain.

Liked by jeriliz

@sutherlin

I’m now into this second set of steroid injections 4 days and nothing. So upset and discouraged that these aren’t working. Don’t know where I go from here for pain relief. Have a follow up app’t on Dec. 15th, I guess we will wait and see where to go next with this.

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Welcome back @sutherlin, I am sorry the injections are offering no relief. Do you have a specific question you could ask @bethmcch as she also has Harrington rods?

@sutherlin

I’m now into this second set of steroid injections 4 days and nothing. So upset and discouraged that these aren’t working. Don’t know where I go from here for pain relief. Have a follow up app’t on Dec. 15th, I guess we will wait and see where to go next with this.

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It doesn’t sound like she has had any relief either. The drs say because the majority of my back is fused, attempting to fuse the L2-L6 would make it so I wouldn’t be able to bend at all and that’s no way to live either. I go back on the 19th of January and we will have to do a lot of searching for some answers.

@sutherlin

I’m now into this second set of steroid injections 4 days and nothing. So upset and discouraged that these aren’t working. Don’t know where I go from here for pain relief. Have a follow up app’t on Dec. 15th, I guess we will wait and see where to go next with this.

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The sacro-coccygeal injection I had on Monday did actually help some. I still feel like I need a cane after walking for 10 minutes, but before the injection, I was in a lot more pain. So, I am encouraged. Maybe I can walk some more and avoid more bone density loss. 🙂

Hello, I had Harrington Rod placement and spinal fusion in June, 2016. I am 66 years old, having a difficult recovery. Is there anyone else out there with problems related to muscle spasms and chronic pain with this surgery?

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