harlequin? internal vibrations, tremors, migraines,

Posted by dunchadh @dunchadh, 3 hours ago

I started having all kinds of issues around 2019. Confusion, irratibility, zoning out, muscle weakness, internal vibrations, right facial numbness and drooping, loss for words, double vision, blurred vision, pulsatile tinnitus, I found out I was iron deficient anemia, and severe obstructive sleep apnea and central sleep apnea. Both of those are not under control with CPAP and iron infusions.
As of today I still deal with the migraines, internal vibrations, right facial numbness, the muscle weakness, and double vision. Add onto that I have something that is looking like Harlequin syndrome now and something else that is sweat related maybe Freys Syndrome. The facial numbness has expanded to include my ear also. I have also started having headaches behind my right eye socket. My personality has changed since then also. I used to be a focused, detail oriented person and now I have problems with staying on task and paying attention. I have spent so much time with my local neurology with no answers. My neurologist has finally referred me to Mayo. I hope to find some answers. I guess what the question I am asking is does anyone have anything similar going on?

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