Hair loss after transplant, probably Tacrolimus: Anyone change meds?

Posted by hello1234 @hello1234, Mar 26, 2022

In the beginning, my hair loss seemed minimal and I took Biotin supplements. Now, approaching my 2nd anniversary for my kidney transplant, my hair is coming out in gobs. I believe it's probably the Tacronlimis. If you had this problem, what did you do to solve it? Rogaine for Women, Hairmax laser comb, change your medication, or something else? Please let me know your experience (I think I am going bald).
Many thanks!

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@mannism

Tacrolimus is supposed to support hair growth.

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I never heard that, quite the opposite. However the hair loss caused by tacrolimus is reversible with dose reduction. Of course, hair loss is a multi factorial event, could be for a variety of different reasons.

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@rachel5239

I was losing hair also. I think mine was due to taking imuran. I am 38 years post transplant. I have a lot of issues with N skin cancers. A lot of years on all of the transplant meds. All have been easily removed. My dermatologist suggested I start taking Niacinamide for my skin. After taking it for around 3 months, my hair completely stop falling out. I take a tablet in the morning and 1 at night. My transplant doctors told me it was OK for me to take it. Still a good idea to ask your doctors about it. My hairdresser could not believe there was no hair in the sink. She has told a lot of her clients about it. I order mine on Amazon.

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I ordered the one that is in a white bottle with a blue cap. 500mg.

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I was losing hair also. I think mine was due to taking imuran. I am 38 years post transplant. I have a lot of issues with N skin cancers. A lot of years on all of the transplant meds. All have been easily removed. My dermatologist suggested I start taking Niacinamide for my skin. After taking it for around 3 months, my hair completely stop falling out. I take a tablet in the morning and 1 at night. My transplant doctors told me it was OK for me to take it. Still a good idea to ask your doctors about it. My hairdresser could not believe there was no hair in the sink. She has told a lot of her clients about it. I order mine on Amazon.

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@mannism

Tacrolimus is supposed to support hair growth. That is the ointment. I never had an issue with it.

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@mannism, The tacrolimus ointment is sometimes prescribed for repigmentation due to vitiligo. When I inquired about using if for my vitiligo several years ago, my dermatologist did not want me to use it because he was concerned that it might interfere with my stable tacrolimus levels of my immunosuppressioj for my liver and kidney transplant.

If you are a transplant recipient, please check with your medical team in case there is any effect. I decided not to proceed with using it.
How is your hair growth? How lonfg have you used it, and how often?

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@blbird33

I have hair loss too from the Tacrolimus. What biotin shampoo do you all recommend to stop the hair loss? Thank you. BB

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Tacrolimus is supposed to support hair growth. That is the ointment. I never had an issue with it.

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@blbird33

I have hair loss too from the Tacrolimus. What biotin shampoo do you all recommend to stop the hair loss? Thank you. BB

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Tacrolimus is supposed to support hair growth.

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Hi @bencures I had a liver transplant 9 months ago, I started loosing hair in handfulls. I was starting too see bald spots. At my 4 month check up, I was told it was most likely due to Fluconozale, I thought it was tacrolimus too. I was given the ok to take "hair, skin & nails" which has biotin. I also started using mielle - rosemary mint strengthening shampoo. It took some time but my hair stopped falling out and seems to be growing back. Good luck to you!

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I had a kidney transplant about two years ago. I lost most of my blonde hair the first year. The second year, it started growing back, but now it is gray, and a different texture. I’m happy I have some hair, but the Tacrolimus still causes hair loss. I take multiple vitamins, and use multiple shampoos and conditioners. It takes awhile to find out what works for you. Your hair might not be the same, but you will be able to make it look good.

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@bencures

Post 4 months kidney transplant and I just started having hair loss. It has been very worrying. when I blow dry or comb my hair I lose around 100-200 strain of hair. I have been approved to take biotin from my coordinator. May I know if anyone had their hair grow back ? And what level of hair loss did you guys experience? Close to balding ? Or major thinning etc..

Thank you!

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I was taking Biosil after my transplant to combat the hair loss (lost about 1/2 my hair). However, my transplant pulmonologist checked with the transplant pharmacist and found that Biosil boosts immunity. So I stopped taking it right away. Every time that your body has a shock like having COVID (first time I lost half my hair) or having a transplant (lost another half before getting it back from the first time), you can loose hair. I have used The Original Hair Serum, which is topical so no issue with boosting immunity. I am not sure if it really does anything though. However, your hair will come back in. It is a natural process for your hair to fall out when the body is in "shock". Unfortunately, mine came back in with a bit of a different texture and drier than before.

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@bencures

Thank you so much for your reply. Did you take any supplements or use any special kind of shampoo? Also I’m on Tacrolimus taking 2mg twice a day.

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I did not take anything or use a special shampoo. I just waited it out and it did return. I also take Tacrolimus 2 mg twice a day.
I’ve always had pretty full hair and I don’t think anyone noticed like I did.

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