1. < Polymyalgia Rheumatica (PMR)
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Hair Loss from Prednisone

Posted by annee55 @annee55, Aug 9, 2024

Has anyone had any luck with slowing down hair loss. Started on 25 mg of Prednisone April 1st, now on 10mg. And the hair loss has really just started in last few weeks, but is dramatic and noticeable. I naturally have thick gray hair . So disconcerting. They say hair loss is rare but reading here it doesn’t seem so.

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tweetypie13 | @tweetypie13 | Feb 25 5:27pm
In reply to @linnead "A year ago when diagnosed I was on 40 mg pred. Then dropped to 20 and..." + (show)
Profile picture for linnead @linnead

A year ago when diagnosed I was on 40 mg pred. Then dropped to 20 and now tapered to 5 mg. My dermatologist told me she didn’t think the hair loss was from pred but rather from the stress PMR puts on the body. She gave it a big long name. Now that I am at 5 mg I think my hair is coming back. 🤞starting Kevzara Friday. Finally gave up on the taper. Too much pain for too long. Lord have mercy on all of us! 🙏😊🌸

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@linnead
I have great success with Kevzara. Takes up to 3 months to kick in….
I am at 46 weeks, and hope next week they stop,it.
Good luck.
Note:my mistake was not starting it sooner. It was not explained to me that it was a drug to help me get off prednisone. (I thought it was “another” drug and rebelled)

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joyl263 | @joyl263 | Feb 26 7:17am
In reply to @kathleenclaire "My rheumatologist was not at all surprised at my hair loss on Prednisone. My long hair..." + (show)
Profile picture for kathleenclaire @kathleenclaire

My rheumatologist was not at all surprised at my hair loss on Prednisone. My long hair is now cut short and fingers crossed that regrowth is in my future. I’m at 5mg, decreasing 1mg/month.

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@kathleenclaire yes, I cut mine short after losing about 1/3 of it...gah! I started minoxidol the 5% strength and its coming back. After research, it's the only thing proven to regrow hair.

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kathleenclaire | @kathleenclaire | Feb 26 2:25pm
In reply to @joyl263 "@kathleenclaire yes, I cut mine short after losing about 1/3 of it...gah! I started minoxidol the..." + (show)
Profile picture for joyl263 @joyl263

@kathleenclaire yes, I cut mine short after losing about 1/3 of it...gah! I started minoxidol the 5% strength and its coming back. After research, it's the only thing proven to regrow hair.

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@joyl263 hurray for your regrowth! I wish minoxidil had worked for me!

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