GVHD in liver post BMT for AML

Hi @38626sunny and welcome to Connect. We’ve moved your discussion into our BMT/SCT/CAR-T support group so you’ll be able to connect with fellow members who have also had a bone marrow transplant. Many whom have also had AML.

You’ve had quite a medical journey over the past year I suspect, with AML and the subsequent bone marrow transplant. (BMT). I was there myself 6 years ago and grateful for the 2nd chance at life. But it can come with a few challenges here and there.

I’m sorry to read that you’re dealing with some gvhd of the liver and high ferritin levels. I read in one of your other replies that you developed this after weaning off tacro. It’s not uncommon for gvhd symptoms to first appear around that time. Sometimes it’s necessary to take steroids for a while or other anti-inflammatory meds, depending on the gvhd, such as Jakafi, rituximab, infliximab or in my case, my doctor put me back on low-dose tacro for 2.5 years.
Have you had a liver biopsy? What has your doctor offered as treatment for your gvhd?