Guidance Needed: Investigating flying to Mayo in Minnesota

Posted by barbarakatz @barbarakatz, Mar 16, 2018

Hello members. I’ve just begun investigating the possibility of flying to Mayo in Minnesota to try and get a proper diagnosis. Would appreciate any advice regarding the most reasonable flights (from NJ), places to stay, etc. My main problem is inability to walk more than half a block so location to clinic would be important. Thanks!

Mayo Clinic is – of course! – perhaps the best but maybe there are other clinics about as good that are close to you, viz, Cleveland Clinic, Johns Hopkins, University of Pennsylvania Hospital center, or maybe you could call Mayo and ask "Do you have any clinics / can you recommend any clinics for the treatment of _________ – who are the best clinics – near ______________., New Jersey.

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Try Googling US NEWS AND HEALTH REPORTS – they publish a yearly listing of all hospitals, doctors, by specialty. Good luck. As I'm a New Yorker, New York Presbyterian is top notch in the country!

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@shoregal45

Try Googling US NEWS AND HEALTH REPORTS – they publish a yearly listing of all hospitals, doctors, by specialty. Good luck. As I'm a New Yorker, New York Presbyterian is top notch in the country!

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P.S. ……also. NYU Langone

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Just responded earlier – s/b New York News and World Report —– best source of info. There are many good hospitals (although I don't know what you're being treated for) in NYC and right in NJ and I'm a stickler!

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@shoregal45

Just responded earlier – s/b New York News and World Report —– best source of info. There are many good hospitals (although I don't know what you're being treated for) in NYC and right in NJ and I'm a stickler!

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Hi shoregal45. Jersey shore? Spent my summer girlhood years down there. Have you had experience with Mayo? Is that why you're suggesting NY and NJ hospitals?

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@barbarakatz, I see that you are a new member here on Connect, and I welcome you. You have asked a very good question, and I think that we can help you to gather useful information to help you in your planning. On Mayo Connect, you are never alone, we are always here to answer questions, to share, and to provide resources. I see that you have already met some members and engaging in a good conversation and suggestions.

I would like to share a resource from Mayo Rochester, that I believe will be extremely helpful for you as a resource. –
Mayo Clinic in Rochester has Concierge Services to help make your trip go smoothly.
They provide information about travel, lodging, Mayo Clinic and community resources to plan your visit to make your visit smooth and less stressful!
And it’s free.

Hours: Monday-Friday, 8 a.m.-6 p.m. CST by phone, 8 a.m.-5 p.m. in person
Location: Mayo Building, Lobby level, International Center
Email: concierge@mayo.edu
Phone: 507-538-8438
I encourage you to contact them, and talk top someone directly.

Another thing – Are you aware of our Discussion Group "Visiting Mayo Clinic? I have provided the direct link to that group. Click on it, and I believe that you will meet other members who have had similar concerns. I invite you to scroll thru the discussions and ask questions, or start a new discussion there.
.
https://connect.mayoclinic.org/group/traveling-to-mayo-clinic-minnesota/

I hope this is helpful. Let me know what other questions you have.
Rosemary

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@rosemarya

@barbarakatz, I see that you are a new member here on Connect, and I welcome you. You have asked a very good question, and I think that we can help you to gather useful information to help you in your planning. On Mayo Connect, you are never alone, we are always here to answer questions, to share, and to provide resources. I see that you have already met some members and engaging in a good conversation and suggestions.

I would like to share a resource from Mayo Rochester, that I believe will be extremely helpful for you as a resource. –
Mayo Clinic in Rochester has Concierge Services to help make your trip go smoothly.
They provide information about travel, lodging, Mayo Clinic and community resources to plan your visit to make your visit smooth and less stressful!
And it’s free.

Hours: Monday-Friday, 8 a.m.-6 p.m. CST by phone, 8 a.m.-5 p.m. in person
Location: Mayo Building, Lobby level, International Center
Email: concierge@mayo.edu
Phone: 507-538-8438
I encourage you to contact them, and talk top someone directly.

Another thing – Are you aware of our Discussion Group "Visiting Mayo Clinic? I have provided the direct link to that group. Click on it, and I believe that you will meet other members who have had similar concerns. I invite you to scroll thru the discussions and ask questions, or start a new discussion there.
.
https://connect.mayoclinic.org/group/traveling-to-mayo-clinic-minnesota/

I hope this is helpful. Let me know what other questions you have.
Rosemary

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thanks so much … I'll check these websites.

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Hello @babarakatz, Welcome to Mayo Connect. Sounds like some very good information that @rosemarya shared about contacting Concierge Services. I also googled about the possibly of being able to rent a mobility scooter in Rochester, Minn. to get around on while traveling through the hospital or from a hotel close by. There appears to be a company called Med City in Rochester that may be able to help at a reasonable rate with daily, weekly, and monthly rates. Since I live in the south I'm not familiar with what Mayo Clinic offers for out of town patients. We use a small scooter and it gets around pretty good.
Perhaps Concierge Services could offer some info. Just a thought.

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@shoregal45

Just responded earlier – s/b New York News and World Report —– best source of info. There are many good hospitals (although I don't know what you're being treated for) in NYC and right in NJ and I'm a stickler!

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No thank God I haven't been in a hospital since the 90's and I hope that covers it!!! I am a Jersey Shore summer gal ever since birth! I always check out Mayo's website when I do my researching as they are my "go to" spot. Other than their newsletters and this Connect I don't have any reason to check with them for doctors, etc. as there are so many good ones in NYC there's no need, thank God. Good luck to you.

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@rosemarya

@barbarakatz, I see that you are a new member here on Connect, and I welcome you. You have asked a very good question, and I think that we can help you to gather useful information to help you in your planning. On Mayo Connect, you are never alone, we are always here to answer questions, to share, and to provide resources. I see that you have already met some members and engaging in a good conversation and suggestions.

I would like to share a resource from Mayo Rochester, that I believe will be extremely helpful for you as a resource. –
Mayo Clinic in Rochester has Concierge Services to help make your trip go smoothly.
They provide information about travel, lodging, Mayo Clinic and community resources to plan your visit to make your visit smooth and less stressful!
And it’s free.

Hours: Monday-Friday, 8 a.m.-6 p.m. CST by phone, 8 a.m.-5 p.m. in person
Location: Mayo Building, Lobby level, International Center
Email: concierge@mayo.edu
Phone: 507-538-8438
I encourage you to contact them, and talk top someone directly.

Another thing – Are you aware of our Discussion Group "Visiting Mayo Clinic? I have provided the direct link to that group. Click on it, and I believe that you will meet other members who have had similar concerns. I invite you to scroll thru the discussions and ask questions, or start a new discussion there.
.
https://connect.mayoclinic.org/group/traveling-to-mayo-clinic-minnesota/

I hope this is helpful. Let me know what other questions you have.
Rosemary

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This is a valuable source of information. I will keep it for referral. Thank you.

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@rosemarya

@barbarakatz, I see that you are a new member here on Connect, and I welcome you. You have asked a very good question, and I think that we can help you to gather useful information to help you in your planning. On Mayo Connect, you are never alone, we are always here to answer questions, to share, and to provide resources. I see that you have already met some members and engaging in a good conversation and suggestions.

I would like to share a resource from Mayo Rochester, that I believe will be extremely helpful for you as a resource. –
Mayo Clinic in Rochester has Concierge Services to help make your trip go smoothly.
They provide information about travel, lodging, Mayo Clinic and community resources to plan your visit to make your visit smooth and less stressful!
And it’s free.

Hours: Monday-Friday, 8 a.m.-6 p.m. CST by phone, 8 a.m.-5 p.m. in person
Location: Mayo Building, Lobby level, International Center
Email: concierge@mayo.edu
Phone: 507-538-8438
I encourage you to contact them, and talk top someone directly.

Another thing – Are you aware of our Discussion Group "Visiting Mayo Clinic? I have provided the direct link to that group. Click on it, and I believe that you will meet other members who have had similar concerns. I invite you to scroll thru the discussions and ask questions, or start a new discussion there.
.
https://connect.mayoclinic.org/group/traveling-to-mayo-clinic-minnesota/

I hope this is helpful. Let me know what other questions you have.
Rosemary

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@barbarakatz, @shoregal45, @duvie

As on social media sites like Facebook, Twitter and Instagram, Connect allows you to mention other members so they are alerted to your post.
To mention another Connect member:

Type "@" and member's @username.
Select a name from the list that appears.
When you mention a person, they will get an email notification that you mentioned them in a post. It will also create a link to the member’s profile in the message.

When another member mentions you in a discussion, you will be subscribed and will receive email notifications when new messages are added.

There are some more helpful hints in the link below if you are interested sometime.
https://connect.mayoclinic.org/get-started-on-connect/

Rosemary

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Mayo Clinic is not the only resource out there, so for certain investigate places closer to home for your particular conditions first.

If you decide to fly to Rochester MN, you will need to get your appointments lined up first.

To do that if you have multiple concerns or an undiagnosed condition, they would usually suggest setting up an appointment with Internal medicine. The physician in that area will then make referrals and coordinate your care to specialists during your stay. You can go online and make a self referral or get your physician at home to call and make the referral.

I will warn you that on May 5th 2018 the clinic is going to go through a big transition moving the electronic records system to EPIC and so expect delays and a tougher time getting appointments from now until they sort it all out, I would expect til maybe August.

You will also need to bring all your records with you and imaging . You should plan on a 7-10 day stay but be prepared to stay longer. That makes flying in and out harder because of a set return flight date.

To save money, I would suggest flying into Minneapolis if possible and renting a car and driving the 1.5 hours down to Rochester.

Choose a hotel that offers the free shuttle service ( most do ) so you can avoid parking at the clinic. IF you choose to park at the Clinic , use the Damon Ramp , get there early and buy the extended parking pass for 40.00 for 10 days making parking 4.00 a day. The pass is good for all the ramps and gives you in and out privileges so if you have to leave and come back you only get charged once for the day.

I also suggest packing food items , non perishable things like cliff bars or other snacks because clinic days get busy and they fill in things with more appts and reasonably priced food isn't readily available always at the clinic.

If mobility is an issue , when you get to the clinic ask for a transporter to take you to wherever you need and they will use a wheel chair to get you to appts.

As far as hotels, there are several attached to the Main Mayo buildings….. The Kahler inn and suites is probably the most reasonable of them all. Not the Grand Kahler , but the Kahler Inn and suites. I would say away from the Holiday Inn. But again, most of the area hotels have free shuttle services .

Youd need to check to see if they can accommodate a scooter though.

Keep in mind if any of your appts are over at Genrose or St Mary's you will have to take the patient shuttle to get there or drive over. Those buildings are not attached to the main clinic.

also while you are there, talk to the social workers . If you meet the guidelines sometimes you can get a Walmart prepaid card or other fin help with food costs or hotel costs etc…

Good Luck!

REPLY
@shoregal45

Just responded earlier – s/b New York News and World Report —– best source of info. There are many good hospitals (although I don't know what you're being treated for) in NYC and right in NJ and I'm a stickler!

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Depending on what you need to be treated for Mayo is possibly not the best option always. As a nurse and a family member of a previous patient, I have definitely seen some concerning things. I feel the clinic is good, specialists are good in most areas with a few areas that are lacking , but over the last few years there has been a decided shift in things and a decline is care at St Mary's from what I can see and some pretty big concerns that I have seen first hand as a nurse and as family. Big enough that our own child will no longer be having surgery there this summer.

So while I think Mayo does good work in most areas, they are not perfect and some areas I would literally tell people to look elsewhere.
So do your research and do even more research on the actual physicians you plan to see. Make sure Mayo fits what you need.

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@wisfamily

Mayo Clinic is not the only resource out there, so for certain investigate places closer to home for your particular conditions first.

If you decide to fly to Rochester MN, you will need to get your appointments lined up first.

To do that if you have multiple concerns or an undiagnosed condition, they would usually suggest setting up an appointment with Internal medicine. The physician in that area will then make referrals and coordinate your care to specialists during your stay. You can go online and make a self referral or get your physician at home to call and make the referral.

I will warn you that on May 5th 2018 the clinic is going to go through a big transition moving the electronic records system to EPIC and so expect delays and a tougher time getting appointments from now until they sort it all out, I would expect til maybe August.

You will also need to bring all your records with you and imaging . You should plan on a 7-10 day stay but be prepared to stay longer. That makes flying in and out harder because of a set return flight date.

To save money, I would suggest flying into Minneapolis if possible and renting a car and driving the 1.5 hours down to Rochester.

Choose a hotel that offers the free shuttle service ( most do ) so you can avoid parking at the clinic. IF you choose to park at the Clinic , use the Damon Ramp , get there early and buy the extended parking pass for 40.00 for 10 days making parking 4.00 a day. The pass is good for all the ramps and gives you in and out privileges so if you have to leave and come back you only get charged once for the day.

I also suggest packing food items , non perishable things like cliff bars or other snacks because clinic days get busy and they fill in things with more appts and reasonably priced food isn't readily available always at the clinic.

If mobility is an issue , when you get to the clinic ask for a transporter to take you to wherever you need and they will use a wheel chair to get you to appts.

As far as hotels, there are several attached to the Main Mayo buildings….. The Kahler inn and suites is probably the most reasonable of them all. Not the Grand Kahler , but the Kahler Inn and suites. I would say away from the Holiday Inn. But again, most of the area hotels have free shuttle services .

Youd need to check to see if they can accommodate a scooter though.

Keep in mind if any of your appts are over at Genrose or St Mary's you will have to take the patient shuttle to get there or drive over. Those buildings are not attached to the main clinic.

also while you are there, talk to the social workers . If you meet the guidelines sometimes you can get a Walmart prepaid card or other fin help with food costs or hotel costs etc…

Good Luck!

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@wisfamily, Thanks for sharing your travel tips and suggestionswith us. Most of us have had/or will be experiencing a 1st time trip.
I am amazed at the perfect timing of your entry into this conversation! I was at Mayo Rochester just a week ago (been a patient for 9 years) and I visited the Concierge Service Center. They provide a FREE service to help by providing information and guidance with travel,tourism,and community resources. They are open Monday-Friday, 8 a.m.-6 p.m. and via phone – CST 8 a.m.-5 p.m. in person
Location: Mayo Building, Lobby level, International Center
Email: concierge@mayo.edu
Phone: 507-538-8438
They can help you when you are dealing with confusing travel plans, as well as services for handicapped individuals.

I wish you a sunshine kind of day.
Rosemary

REPLY
@shoregal45

Just responded earlier – s/b New York News and World Report —– best source of info. There are many good hospitals (although I don't know what you're being treated for) in NYC and right in NJ and I'm a stickler!

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@wisfamily, I agree that we do need to be advocates for the best treatment and care of ourselves and for our loved ones. Educating ourselves and working with our doctors is of primary importance.
As a patient, myself, I know that our feedback to our care facilities is always appreciated. I encourage you to speak to the department with your concerns.
As a mom, I am sorry that you were not satisfied. (and that is wherever at Mayo, or wherever) I send my hopes and blessings to your child.
Rosemary

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