1. < Skin Health

Grover’s Disease

Posted by sharfar @sharfar, Mar 13, 2022

Hello-I am a 54 year old, active female recently diagnosed with Grover’s Disease. It started shortly after having an MRI. And it started on my neck and went up behind my ear. It is now on my stomach and back and arms. Is there a correlation between the MRI and Grover’s? I’m also a runner but have been running in freezing temperatures, not heat as suggested in much of what I’m reading.
Thanks for any help you may offer including any suggestions on helping to get rid of it.

Interested in more discussions like this? Go to the Skin Health Support Group.

gigic | @gigic | Jan 24 8:55am
In reply to @itchyrich "You have my sympathy. I was first diagnosed by biopsy in 1992 following a major surgery..." + (show)
@itchyrich

You have my sympathy. I was first diagnosed by biopsy in 1992 following a major surgery for a melanoma on my back. I had no itch for 15 years but in 1997 and 1998 I had a terrible itch for 18 months. After giving up on my dermatologist I went to a new one at UCSF who prescribed 300 mg of Gabapentin every night. It worked pretty quickly and I had no itch for the next 13 years. I took the Gabapentin the entire time and had no issues. In late 2021, it quit working and I have been itching since then. I took cilantro capsule for five months along with chlorella capsules. Did not work. I have tried pretty much every lotion and the only one that gives me enough relief to sleep is Eucerin Itch Relief. That with Hydroxyzine is getting me by

Jump to this post

Have you considered trying fresh cilantro instead of the capsules? The reason I ask is that fresh cilantro was a miracle for me. I started it and within 3 weeks could tell it was helping. After 2 months I was 90% better. Over the holidays I took a 10 day trip and I switched to capsules and by the end of my trip, my itch was popping back out. I know that cilantro doesnt work for everyone so I don’t mean to harp on about it. We are all on our own journeys. Just wanted to share that for me—fresh worked and capsules didn’t. Wishing you all the best as you search for relief!

REPLY
1 reply
itchyrich | @itchyrich | Jan 25 7:46pm
In reply to @gigic "Have you considered trying fresh cilantro instead of the capsules? The reason I ask is that..." + (show)
@gigic

Have you considered trying fresh cilantro instead of the capsules? The reason I ask is that fresh cilantro was a miracle for me. I started it and within 3 weeks could tell it was helping. After 2 months I was 90% better. Over the holidays I took a 10 day trip and I switched to capsules and by the end of my trip, my itch was popping back out. I know that cilantro doesnt work for everyone so I don’t mean to harp on about it. We are all on our own journeys. Just wanted to share that for me—fresh worked and capsules didn’t. Wishing you all the best as you search for relief!

Jump to this post

Appreciate the suggestion. Unfortunately, I can't stand the taste of cilantro so I tried the capsules. Apparently, it doesn't work for everyone, like most things. I'll always have the fresh in reserve in case the itch becomes unbearable.

REPLY
1 reply
nodgabnoj | @nodgabnoj | Jan 30 12:24pm
In reply to @itchyrich "Appreciate the suggestion. Unfortunately, I can't stand the taste of cilantro so I tried the capsules...." + (show)
@itchyrich

Appreciate the suggestion. Unfortunately, I can't stand the taste of cilantro so I tried the capsules. Apparently, it doesn't work for everyone, like most things. I'll always have the fresh in reserve in case the itch becomes unbearable.

Jump to this post

I use the oil. It’s believe it’s more effective

REPLY
1 reply
gigic | @gigic | Feb 3 9:10am
In reply to @nodgabnoj "I use the oil. It’s believe it’s more effective" + (show)
@nodgabnoj

I use the oil. It’s believe it’s more effective

Jump to this post

Would you mind sharing the brand and dose of the oil that you take? Thanks!

REPLY
1 reply
elderly1 | @elderly1 | Feb 3 10:32am
In reply to @jmodesign "Thanks for reply. I have been on 300 GABEPENTIN for several yrs. Due to another issue...." + (show)
@jmodesign

Thanks for reply. I have been on 300 GABEPENTIN for several yrs. Due to another issue. No relief for Grover’s though. Since checking this site I noticed Calamine lotion was mentioned. I came onto this ‘no rubCalamine spray’ @ Target. Target brand. It tends to dry it up & relieves itch to a degree. I spray it on several times a day. This winter has been t worst, of course I live n cold climate. I think t only clear area on my body my feet😊I continue to see dermatologist to no avail. Good luck to you.

Jump to this post

Noticed your comment re. being affected in cold climate. I too am usually bothered during winter here, but not during 110 degree summers. Most entries point to heat a culprit--- again we all seem to have such different experiences. Mine usually is "on" ~ 6 mos. ; but now it has returned a year later!

REPLY
1 reply
nodgabnoj | @nodgabnoj | Feb 3 11:25am
In reply to @gigic "Would you mind sharing the brand and dose of the oil that you take? Thanks!" + (show)
@gigic

Would you mind sharing the brand and dose of the oil that you take? Thanks!

Jump to this post

I use Herbana Cilantro oil. Available on Amazon along with many others. I usually do 2 1/2 droppers. A bit higher dosage, once a day.

REPLY
1 reply
gigic | @gigic | Feb 3 11:57am
In reply to @nodgabnoj "I use Herbana Cilantro oil. Available on Amazon along with many others. I usually do 2..." + (show)
@nodgabnoj

I use Herbana Cilantro oil. Available on Amazon along with many others. I usually do 2 1/2 droppers. A bit higher dosage, once a day.

Jump to this post

Thank you! I haven’t tried the oil. Just capsules (which did not work), and fresh cilantro (which did). Would you mind sharing a little more about your experience? I have a couple of questions: Do you take any other supplements along with the oil? Do you take the oil straight, or mix it with something else? When you started it, how long did it take for you to notice positive results? I have an older friend who is suffering with an itchy rash, and I’m afraid that blending fresh cilantro daily would be difficult for her. The oil would be easier. I’m so happy to hear that it works for you

REPLY
nodgabnoj | @nodgabnoj | Feb 3 1:23pm

My Grovers started after my shingles shot. I did the fresh frozen cilantro for two years. It eventually worked for a while and I had a minor relapse. I started doing the oil with little success, but stayed with it. The most effective way I found for stopping the itching was ice packs. It was very effective. I also started using Zostrix, inexpensive, Amazon, which really seemed to help. I am no longer itching, but continue the oil every day with water or a fruit smoothie. Nothing seems to work for everyone. You just have to keep at it.

REPLY
bjwilliams | @bjwilliams | Feb 5 6:33am
In reply to @elderly1 "Noticed your comment re. being affected in cold climate. I too am usually bothered during winter..." + (show)
@elderly1

Noticed your comment re. being affected in cold climate. I too am usually bothered during winter here, but not during 110 degree summers. Most entries point to heat a culprit--- again we all seem to have such different experiences. Mine usually is "on" ~ 6 mos. ; but now it has returned a year later!

Jump to this post

Heated homes, warm winter clothing, and warm bedding in winter causes Grover's to flare.

REPLY
View MoreView Less
Please sign in or register to post a reply.