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Grover disease: is a final healing possible???

Posted by italiangrover @italiangrover, Jan 13 12:04pm

Hi, from Italy. I've been fighting against Grover for two and a half years: I started with cortisone pills (which works as long as you can take it); then 3 months of Dupixent, with no result; then some months with a retinoid, Acitretin, an again no result. Now again a monoclonal antibody, Adtralza injections (Tralokinumab) and after four months ...no result. Doctors who are treating me say that I have to continue for some more months because Tralokinumab works very slowly. ??? Meanwhile I get some relief only using Clobesol cream. I'd like to know if some of you had similar treatments having a complete, (complete and final!) healing. Or a complete healing with different drugs. Grazie e ciao!

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ekcantwell | @ekcantwell | 2 days ago
In reply to @groversskin2025 "I came down with a major skin rash and itch after having Covid in 2024. My..." + (show)
@groversskin2025

I came down with a major skin rash and itch after having Covid in 2024. My dermatologist took a biopsy, and it was diagnosed as Grover's disease. Because the rash and itch was so terrible all over my truck and abdomen. The treatment was steroid shots every week. It took almost 4 months of steroid shots to partially cure the outbreak. After the steroid shots my skin became so thin and brittle that anything would break it and my hair also fell out. It finally helped and the Grover's syndrome was under remission. Until now (01/ 2025) after having the Flu, the rash came back. Because of my terrible experience with the steroid shots, I am now looking for alternative treatments and suggestions. I am female, very active, 82 years old, and work part-time.

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I'm sorry to hear that you're also battling this aggravating rash. Look up the comments posted by @gardeningjunkie. She has all sorts of good information and remedies. Mind you, everyone is different and what works for one person might not work for another. Beyond frustrating! I hope you find something that helps.

REPLY
gardeningjunkie | @gardeningjunkie | 2 days ago
In reply to @italiangrover "Cilantro...cilantro...cilantro : it did nothing to me. I reduce itching and burning with Clobesol; but I..." + (show)
@italiangrover

Cilantro...cilantro...cilantro : it did nothing to me. I reduce itching and burning with Clobesol; but I (like everybody!) want a complete recovery. And that seems impossible. Anybody here got it??? And how?
Like every two weeks, since August 28, today I'll have my two injections of Adtralza (Tralokinumab), waiting, waiting...

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Cilantro seems to help only at 40% of us. Will you share how you injested the cilantro- fresh, fresh frozen or pills and how long you kept trying this treatment. Only fresh or fresh frozen worked for me, about 1/2 a bunch blended daily for about 6 months, yet some improvement was beginning within a month.
Steroid's have been mentioned as helping, in my case I didn't notice any improvement but did find I got negative side effects like groversskin2025 mentioned, especially hair loss.
Before cilantro I tried dozens of treaments with no benefit, however I was unaware of Tralokinumab, in fact it's the first I've heard it mentioned and am hopeful for other's. If I still had active.GD issues I would check that out

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