Good news ! Actemra working for me

Posted by dontknowitall53 @dontknowitall53, Jan 12 2:30pm

After 2 -3 months use of Actemra I finally am not using predesone any more..I am still using methotrexate in combination with the Actemra injections but have no more pain and am working..doing jobs..swim and not being tired. Almost back to normal! In the beginning I had a lot of issues with sinuses and coughing up flem , but that also is now in recession. Happy me!

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Why was Actemra prescribed for you?

Actemra was prescribed to me for PMR because I needed to take prednisone daily for 12 years. PMR was diagnosed at the age of 52. Other autoimmune disorders were diagnosed starting at the age of 30. My very first dose of prednisone was 35 years ago.

For the first 15 years, I would routinely take 60-100 mg of prednisone followed by a fast taper over a month or two to control flares of one thing or another. My ophthalmologist prescribed high doses to control flares of uveitis. I also needed prednisone for flares of reactive arthritis and some other problems.

After PMR was diagnosed, I started with a 40 mg dose of prednisone daily and never could taper much lower than 10 mg. While doing Actemra injections, I tapered off prednisone in 7 months.

I still take Actemra. Everything has been reasonably quiet from an autoimmune perspective. I have been off prednisone for 4 years. I haven't had any serious side effects from taking Actemra. I don't seem to need any other medications to control inflammation. When I have tried to stop Actemra, the inflammatory pain slowly returns after a couple of months.

I'm currently doing monthly Actemra infusions.

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@dadcue

Why was Actemra prescribed for you?

Actemra was prescribed to me for PMR because I needed to take prednisone daily for 12 years. PMR was diagnosed at the age of 52. Other autoimmune disorders were diagnosed starting at the age of 30. My very first dose of prednisone was 35 years ago.

For the first 15 years, I would routinely take 60-100 mg of prednisone followed by a fast taper over a month or two to control flares of one thing or another. My ophthalmologist prescribed high doses to control flares of uveitis. I also needed prednisone for flares of reactive arthritis and some other problems.

After PMR was diagnosed, I started with a 40 mg dose of prednisone daily and never could taper much lower than 10 mg. While doing Actemra injections, I tapered off prednisone in 7 months.

I still take Actemra. Everything has been reasonably quiet from an autoimmune perspective. I have been off prednisone for 4 years. I haven't had any serious side effects from taking Actemra. I don't seem to need any other medications to control inflammation. When I have tried to stop Actemra, the inflammatory pain slowly returns after a couple of months.

I'm currently doing monthly Actemra infusions.

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I tried all and predesone was the help for my inflammation..I stopped methotrexate for a short time while using Actemra but pain returned..so now weekly injection of Actemra and 20 ml of methotrexate seems to hold it. After spending days in hospital with excruciating pain now finally am sort of back to normal. In Australia you need to be 6 months on predesone and methotrexate before you are allowed biological.

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I have auto immune disorder resulting in RA

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@dontknowitall53

I tried all and predesone was the help for my inflammation..I stopped methotrexate for a short time while using Actemra but pain returned..so now weekly injection of Actemra and 20 ml of methotrexate seems to hold it. After spending days in hospital with excruciating pain now finally am sort of back to normal. In Australia you need to be 6 months on predesone and methotrexate before you are allowed biological.

Jump to this post

Yes … Actemra was more like the last resort for me. I'm not sure what I would have done if it hadn't worked so well. I just assumed that I would need prednisone for the rest of my life.

I have now been off prednisone for over 3 years except for a couple of times when Actemra was stopped. In addition to PMR, I have inflammatory arthritis but not RA.

I'm always happy when Actemra works for someone else.

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