1. < Polymyalgia Rheumatica (PMR)
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Good days and bad

Posted by afeldman @afeldman, Jul 1 8:32am

Just got diagnosed with PMR.,prednisone 5 mg is doing well but i have days where I feel disabled in certain areas and normal the the next...i take gavapetin too and low-carb and low huar diet as im diabetic 2. Any similar experiences? Makes me anxious about returning to gym and normal activities if it causes continued ups and downs...

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rickman | @rickman | 1 day ago
In reply to @csimmonds "I was diagnosed with PMR about 16 months ago. I tapered down to 0 prednisone and..." + (show)
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I was diagnosed with PMR about 16 months ago. I tapered down to 0 prednisone and it returned. I was changing doctors so the pain got really bad. During that time I said I had half days. For the first part of the day I couldn't do much. I would have to wait until med afternoon to wash my hair because I couldn't get my hands above my head. I really wanted to be done with prednisone but it was not to be, at least for now. Now I am back on 5mg and doing just fine. I find consistency of movement works best for me. Stretching and exercise each day work. I don't vary much. I will increase exercise very gradually. Sitting too much is my worst enemy.

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@csimmonds - Oh my gosh. I remember that feeling. Much like a Tyrannosaurus Rex trying to scratch his head.

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rickman | @rickman | 1 day ago

There is so much crap online about that helps inflammation, various spices, MTC oil, leafy greens, avoid sweets, eat like a Tibetan monk... blah, blah, blah. Now going on more than two years with PMR- having more good weeks than bad- I would say: 'just eat smart' 90% of the time and the other 10 % is reserved for that occasional cheeseburger or pizza.

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