Ulcerative colitis, gastritis, GERD, reflux
Hi all, first post here.
I was diagnosed with Ulcerative Colitis in 2009, and I had been able to keep it under control with Liadla and Canada. Fast forward 4 years to 2013, I started to get some horrible esophagus spasms/GERD/indigestion...you name it. I tried just about everything over the counter, natural remedies, and even a few prescription drugs, until my doctor finally prescribed me 80mg's of Nexium, which eventually worked. I was able to reduce that amount to 40 mg's a day, even tried a few times going down to 20 mg's a day(over the counter) of nexium.
After a setback with UC, I am now on Humira, Uceris, still on Lialda and Canasa, along with trying different probiotics and glutamine.
Within the past few months, I've been getting a very sour or metallic taste in my mouth. After an endoscopy, 2 months ago, my doctor said there was some mild gastritis going on.
Now, within the past week or two, the bad taste seems to be getting worse and much more consistent, with some minor burning in my throat, along with discomfort in my upper stomach. I can feel things going downhill, and I'm sure my doctor is going to double my nexium intake. Ever since I started the Nexium, my weight has been dropping considerable, and I've had a difficult time putting it back on.
Not sure what to expect in response, I guess, for a long time, I've been worried about the affects of Nexium long term, but at this point, not sure I have a choice.
Was wondering if surgery were an alternative, what's out there, and does surgery eventually eliminate the need for these PPI drugs?
Thanks
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Thank for sharing the information and it has been helpful and I appreciate sharing this information. Sometimes I feel like I need to talk to someone who may have the same experience and this is helpful.
I can totally identify with your situation. I have high blood pressure as well as high heart rate probably because of this GERD but I also have asthma so who knows? I live in Florida and there is a lot of mold here consequently. Is that the type of lung infection you had? Also how did they diagnose it correctly?
Per Dr. Google yes indeed blood pressure correlates with G.E.R.D. I myself notice that even when I take a PPI within a short period of time my blood pressure goes down.
My lung infection is caused by a bacteria (nontuberculosis micobacterium avium) and it was diagnosed by a pulmonologist with a CT scan.
hi shooei. my name is Pam , I have very similar issues with my gut ..seems like when I eat it gets worse. it feels like someone has their fist under my chest around the rib area. and it just gave me shortness of breath along with a feeling of tightness .. very uncomfortable feeling to say the least I’ve had abdomen sonograms ,, an endoscopy about 2 1/2 years ago they only found a small idol hernia,,which now became bigger, was noticed in the CAT scan of the chest last August of 2023. I also have Mac/bronchiectasis very similar to you for the past 41/2 years no antibiotics yet I do the same as you airway clearance, Salene nebulizer my question is, have you found any solution to this problem? drs don’t seem to know. 🙄 if you could respond back, I would greatly appreciate it. Hope you’re feeling better. my username is p1000 , I’m not very good with email or texting but I really hope you respond back. Thank you and have a great day. 😎 🤙🏻🙋♀️
This is my seventh year in a row now getting GERD at this time of year. I have tried a lot of things too but nothing seems to help. For me I don’t have any pain when I lay down at night.
Low FODMAP is not no fruits and veggies, just certain ones should be avoided. I have figured out onions and garlic are the worst for me. There is an app called FODMAP by Monash that is very helpful and even tells you things like tablespoon of peas are ok, 1/4 cup is not, etc.
This is odd. For years had chronic morning nausea from my issues of GERD and UC. All of a sudden I wake up to aches and pain in my chest. Went to doctor and it is not my heart. If I take tylenol I feel better. Any ideas what may be going on? Thanks
Esphogus?
Acid in your esophagus