Anyone had gemcitabine and docetaxel for Bladder Cancer?

Posted by rjlpool502 @rjlpool502, Oct 18, 2024

Just had second of six weekly doses Gem/Doc chemo infusion for my bladder cancer. Had six doses BCG but cancer came right back. Mine is aggressive but non invasive at present. Been scraped out twice. Any one else having this type chemo? Would like to compare notes.

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@dianeh330

I'm so glad your doing good God bless you stay positive I always say to my self " there is someone worse off than me"

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Thank you Diane.

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@donchaz2u

My name is Chaz. I am 77 y/o and have high grade aggressive NMIBC. I've had two surgeries with all tumors being removed. I receive my treatment at the VA Medical and had the opportunity to enter a research study where I receive gemcitabine and docetaxel in comparison to BCG treatments. I completed my third gemcitabine/docetaxel treatment without incident. My process is a bit different. I receive the gemc and hold it one hour. Following its removal I receive the doce and I go home where I hold it for an hour or more. I use one bathroom throughout the day and sanitize it with Clorox after each use. So far so good.

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I'm so glad your doing good God bless you stay positive I always say to my self " there is someone worse off than me"

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My name is Chaz. I am 77 y/o and have high grade aggressive NMIBC. I've had two surgeries with all tumors being removed. I receive my treatment at the VA Medical and had the opportunity to enter a research study where I receive gemcitabine and docetaxel in comparison to BCG treatments. I completed my third gemcitabine/docetaxel treatment without incident. My process is a bit different. I receive the gemc and hold it one hour. Following its removal I receive the doce and I go home where I hold it for an hour or more. I use one bathroom throughout the day and sanitize it with Clorox after each use. So far so good.

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@rjlpool502

The chemo is in two stages. First you hold for 1.5 hours then void out and then they put the second in and you have to hold that for 1.5 hours and then void out. Suppose you could do it on the way but they recommend putting a bleach tab in toilet after doing so and letting sit 15 minutes before flushing. Maybe could do it at Mayo and then drive home. Warning chemo can make you feel pretty lousy! Do you have someone could drive for you? Good Luck.

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I had these treatments at Mayo and they let you leave after the last instillation. They do not keep you in a room so even if you remained at the facility you would have to use the restroom and they automatically flush so using chlorine tablets would not work. We would leave & drive home 4 hours but I had a driver. I would usually sleep in the back seat for the 90 minutes and then stop at a rest stop and void out. I could not have driven myself and was very fortunate to have a driver. Hope this info helps.

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@deford

Can I drive 5 hours home after gem/doce treatment?

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The chemo is in two stages. First you hold for 1.5 hours then void out and then they put the second in and you have to hold that for 1.5 hours and then void out. Suppose you could do it on the way but they recommend putting a bleach tab in toilet after doing so and letting sit 15 minutes before flushing. Maybe could do it at Mayo and then drive home. Warning chemo can make you feel pretty lousy! Do you have someone could drive for you? Good Luck.

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Can I drive 5 hours home after gem/doce treatment?

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@sepdvm

I know some people have success taking d-Mannose to prevent UTIs. My elderly aunt was put on a concentrated cranberry drink called UTIstat due to repeated UTIs. After a year of use she has not had another infection with symptoms. These medical grade products must be diluted into juice or another drink to be palatable. I would want my urologist and oncologist to approve of a product before I would start it.

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Thank you for your advice. I take D- Mannose, Cranberry pills and a probiotic. I will look into the Utistat.
I just finished my 6th chemo. I have burning and irritation. I don't have a UTI, this time. I was told that maybe a gynecologist could help me, so I will go that route for now. Thank you for the time to help me out. Blessings to you and your family.

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@honey750

Hi, I am on my 5th Gemstone/ Docetaxel. The first two were fine. The 3rd, 4th and 5th have been tough. I get a burning that feels awful. I get urine cultures and they find bacteria and treat it as a UTI. This is my 5th one and I feel awful from the burning. Waiting on a call back from the Dr. Just finished Moxifloxacin after 14 days. I take AZO and Tylenol.
I was diagnosed 7/2023 with high risk NMIBC
Had 9 BCG treatments but couldn't tolerate anymore because of UTI's. Had at least 4 TURBTS and many Cystoscopies. If anyone can help me understand why I am so prone to UTI's and the burning, I would really appreciate it. I have a Urologist and a Infections Disease Dr., but I don't get any answers from them.

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I know some people have success taking d-Mannose to prevent UTIs. My elderly aunt was put on a concentrated cranberry drink called UTIstat due to repeated UTIs. After a year of use she has not had another infection with symptoms. These medical grade products must be diluted into juice or another drink to be palatable. I would want my urologist and oncologist to approve of a product before I would start it.

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@honey750

I have a primary, a Urologist and an Infectious Disease Dr.
I have Medicare and a Supplement. I think my health coverage and doctors are good, just can't seem to get answers and relief for the constant burning. Hoping tomorrow the Infectious Disease Dr will have more results from a recent urine culture.

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amu45sin - Can I ask which health plan you have besides Medicare?

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@honey750

I have a primary, a Urologist and an Infectious Disease Dr.
I have Medicare and a Supplement. I think my health coverage and doctors are good, just can't seem to get answers and relief for the constant burning. Hoping tomorrow the Infectious Disease Dr will have more results from a recent urine culture.

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amu45sin - Thanks so much for the info.

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