Gastroparesis with severe symptoms!
Does anyone have gastroparesis (low stomach emptying) and what are you doing to manage the problem. I was finally diagnoised with this condition this year after at least 3plus years of unexplained illness. Most of my symtoms were related to pain in the chest; deep back shoulder pain; lightheaded/dizzyness; I always felt like I was having a heart attack. But each time I went to the ER all the heart test came back fine and was told it was just acid reflux. I have been to cardiology; neuralogy; gastrology. I have had heart test; stress test;;thryrod; diabectic test; all kinds of blood test (only showed low vit D) MRI of brain; spinal tap. Finally had stomach emptying test in March – which showed 85% food still in stomach after 3 hours. I have had to switch to a no fat; low fiber diet – pretty much all liquid; soft (babyfood like) foods. If I do experiment and eat something that doesn’t move through – then I end up with the deep shoulder pain; lighthed/dizziness;; numbness in the arms/fingers and over all wekness. In order to overcome this feeling – It seems to work by drinking just water /gator aid for at least a day. I just don’t know if this all started by a nerve damage issue or if it is reverserble. I have done a lot of internet reading and there doesn’t seem to be anything to do except eating habit changes. And no one else seems to associate the pain I have with the stomach – I never seem to have stomach pain – Only fullness; nausea; bloating/gas. I also am not diabetic. Which my understanding is a reason for this condition. If you have this condition – what are your symtoms and how are you managing? Thanks
Interested in more discussions like this? Go to the Digestive Health Support Group.
I have been dealing with IBS for 20 years now and have finally gotten thru to my Dr. that something other than "stress" is causing my IBS so he ordered a CT scan and a gastric emptying study along with a SIBO test (which I ended up not having to do). I was diagnosed with mild gastroparesis..finally I'm not crazy and no, my stomach does not digest food normally!! While we were waiting to have the study done my Dr. suggested the low fodmap diet to calm down the severe symptoms I was experiencing at that time. Amazing results!!! Still have mild stomach pain, bloating and nausea after eating but nowhere near the severity as before, plus I have lost almost 25 lbs in 3 months and blood pressure is way down. I'm a breast cancer survivor and have had chronic left chest pain for 10 years and that is totally gone now that the inflamation from my abdomen in that area has subsided. After my diagnosis, I was given a new diet to follow for gastroparesis that has things on it that were not allowed on the low fodmap diet (ie. canned peaches & pears in syrup, applesauce,toast) so I'm trying to come up with a balance on my own which also includes smaller meals. I'm one of the odd GP patients as I am NOT diabetic, take NO medications at all (55 yrs old), have never had stomach surgery so who knows why I've been chosen to deal with gastroparesis! with all the recipes on Pinterest I've found the low fodmap diet works the best and there really is some tasty food that I can eat. I have to go easier on the butter and oils than some recipes state but cutting out all dairy, gluten and fruits and veges that ferment in my stomach have made an amazing difference in how I feel 🙂 Good luck!
Look into MALS-on Facebook and research
My test showed mild GP with severe symptoms i couldn't take the meds so I'm dealing w pain mostly
What do u do for constipation
I use Sundown Natural Fiber Gummies with Vit D3 and ducosate. Also, make sure you are active… walking daily. Hope this helps 🙂
Never used Pinterest for recipes – GREAT idea! Thank you.
@iring. I have just diagnosed myself as having IBS. I thought it was a lactose intolerance, and that is definitely a trigger, but even when I avoid lactose scrupulously I still sometimes have problems.
I am going to make an appointment with a gastroenterologist, but in the meantime, is gastroparesis related to IBS? I do not have any nausea, I just have a problem after eating dairy, and some other unidentified trigger, primarily diarrhea and mild stomach upset.
It really makes life sort of difficult as I’m sure you know. At times I don’t want to leave the house.
The gastro I would like to go to is scheduling in October at this point so I may try to find a different one.
Good luck for the future your post is very encouraging Teresa
Don’t stop there. My brother had pancreatitis and was hospitalized for 3 days. Then three yes later had severe pain in stomach through to his back. I kept telling him to go to the ER until they find what was wrong. He had pancreatic cancer. He died 15 months later at the age of 59. The only blood test that indicates cancer activity is the pancreases is the CA9-19 test
I have stomach pain through to back no one will listen to me how do I get this test ca9-19