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Gastroparesis or slow modility colon
I was diagnosed with gastroparesis with one doctor and he sent me to a bigger university for a pacemaker.
The next university said it was not gastroparesis. This doctor had me do a Sitz Marker Test and after 7 days, I still had 58 markers left in my upper colon. He diagnosed me with a slow modility colon.
For the past 9 months I have (and getting worse) severe abdomen bloating, cramps, pain, nausea, and now lower back pain. I have been on a gastroparesis diet for 6 months with no relief. I only eat frozen yogurt and cracker for lunch. I wait to eat a more bland diet when I get home from work, knowing the bloating and nausea will get worse.
I now can only wear dresses, no pants, due to the extreme bloating and then discomfort of anything tight around my abdomen. Now I have gained 5 pounds in the last week with the same diet I have been on for 9 months.
My doctor now has me on miralax and apple juice. (During the last 6 months I have been with him, I have developed constipation in the past 3 months. Something I have never had in my 60 years of age.) I can't drink apple juice or anything except water due to the fact it also makes me nauseas.
I have tried Reglan, which made me suicidal, and erythromycin, which did not help.
Anyone have these same symptoms or and suggestions of what to do next. The doctor said I may just have to live like this. I am a very upbeat, positive person, but I can't imagine there is not something wrong to start the symptoms just in the last 9 months. I will take any help! Thank you so much.
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hello, i really need some feedback. i have been sick for about 7-8 months and although i had my gallbladder out four weeks ago i am still sick. presurgery two different surgeons said i had more going on than just my gallbladder. i am going to see a motility doctor here in NH but im scared he willbe like most doctors and not take me seriously. i lose about a pound every day. this morning i woke up in such pain. i can barely eat which explains the one pound loss a day. i did have a stomach emptying. several months ago. this nurse practioner ordered it. the same nurse practioner who said there was nothing wrong with my gallbladder. anyway i think the test is invalid. first i never knew you were suppose to have eggs and toast. all i had was half a tuna sandwich. i saw and they told me it was normal and i just didnt empty on hour two of a four hour test. this GI wanted to put me on a antidepressent. i said no. only good thing he did was refer me to a motility doctor. i woke up in pain this morning and i dont know what to do or think. please help me.
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1 ReactionHi @eileenb1022, you sound like you're at the end of your rope. I know there are others here who can relate, like @lily21 @brendaharvey @mgeller604 @ken82 @brandywine8875 @1950 @snapdragon20 @donnacarp @mothermary1 who have shared in these related discussions:
- Gastroparesis: https://connect.mayoclinic.org/discussion/gastroparesis-9/
- Gastroparesis Diet – Questions, Suggestions, Tips: https://connect.mayoclinic.org/discussion/gastroparesis-any-body-have-any-suggestions-about-diet/
Like you, Eileen, I'm encouraged that you have a referral to a motility specialist. What questions are you preparing to ask the doctor?
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1 ReactionThe only good thing the Motility Clinic did for me was sending me to Physical Therapy and consult with a surgeon. Haven’t heard from them since!
None because he won't believe me anyway
My husband is making me go to my pcp tomorrow morning and I can't take another blowout but that's exactly what I'm going to get
i'm really sorry for how i sounded last night. i was in such a bad state from noone listening to me or believing me. i didnt even want to go to my pcp this morning but so glad i did. i had been seeing someone else so i hadnt seen him in several years. but he was always great. he really listened to me everything i went through. he said he could tell i lost weight and he thought i did have gastroparisis. thank god. he put me on reglan and wants me to try to eat and come back in 2 weeks to see if the reglan helped if it did he said he would call the motility dr im suppose to see although he said they dont usually like to hear from them(regular doctors) i was able to eat. i do have stomach cramps but that happens after i eat due to not having a gallbladder but yes so happy someone believed me. at this point im not even worried about the motility doctor!
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1 ReactionI have a motility appointment tomorrow. On top of noone listening I have had to wait weeks to be seen
I wish you good luck
I don't see mine until April 18. But since my pcp said I had gastroparisis and on Reglan, still struggling with what to eat.
my appointment with the motility doctor has been moved up to march 7. im excited but nervous he wont believe me even though my primary did and put me on reglan. its working where i can eat. before that i couldnt eat and the scale just kept dropping. my pcp said to tell him the reglan is working. hope your appt went well.
@eileenb1022
Please watch for side effects of the Reglan. My gastro doctor wanted me to take it years ago and my family care doctor said no! After a couple of more years my gastro doctor said he was having a lot of patients have severe non-reversible side effects from Reglan and was being more careful as to who he prescribed it for. I have neuralgia.. nerve problems which could make me more likely to have the side effects. At first sign of any side effects you should stop the drug. I just survived on no drugs for it for years (watch my diet) until I had more digestive issues come up. .. I wound up having a gastric bypass to take care of a giant hiatal hernia that kept pulling up into my chest and bringing my stomach with it. I had so many complications .. rebuilt digestive tract … along the journey and the gastroparesis is no longer much of a problem.. just sometimes. More problems getting food to go into my stomach than out because of esophageal problems.
With the gallbladder removal you need to watch your diet… and ease back into eating … many diet guides for it and gastoparesis on the internet.. . low fat, low sweet, easily digestible foods .. eat probiotic foods like yogurt or kefir or do as I do and take a probiotic supplement (I use Align, but you may have success with a cheaper one.. i did not.. I spent a lot of money on trial and error on which one worked best for me) .
If your read through some of the linked conversations that Colleen mentioned you may find more help.
ZeeGee
thank you. i started monday and have had no side effects as of yet. once in a while i get hot but not too often. it is working i am able to eat before i couldnt it hurt too much. my pcp is the one who prescribed it and believes i have gastroparisis. i have a appt with the motility dr on march 7. no idea what he is going to say. my stomach emptying i believe was done wrong i had half a tuna sandwich and from everyone i talked to and read your suppose to have eggs and toast. i got gutsy and just called radiology. all she would do is argue with me stating their "ptotocal." i think they are wrong.