Gastroparesis: nausea, lightheadedness or occasional vomiting

Posted by lil35 @lil35, Jun 29, 2024

I’m newly diagnosed with gastroparesis. I can’t control my nausea, lightheadedness or occasional vomiting.

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Profile picture for anitannapa @anitannapa

@jneener - Hi, I'm not sure where you are located but the below site offers a list of gastro motility doctors or they might be able to assist. I know of one in CA but like I said, I do not know where you are located. Also, I just have to say that your GI team really should be more helpful to you in finding a motility doctor. They have to belong to a GI organization and/or attend conferences where they have access to several GI/Motility doctors.
https://iffgd.org/resources/ddh-chat/living-with-gastroparesis/

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@anitannapa
Thank you. They have not been helpful at all. I am in Illinois and the closest one to me rejected seeing me because they are busy and don't think they have anything to offer. I was also turned down twice by Mayo in Rochester. I need a neurogastro and motility and they are hard to find that will see you in less than a year.

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Profile picture for jneener @jneener

@anitannapa
Thank you. They have not been helpful at all. I am in Illinois and the closest one to me rejected seeing me because they are busy and don't think they have anything to offer. I was also turned down twice by Mayo in Rochester. I need a neurogastro and motility and they are hard to find that will see you in less than a year.

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@jneener - Hi again, Okay, here are some resources for you.
https://www.nm.org/conditions-and-care-areas/gastroenterology/digestive-health-center/functional-bowel-and-neurogastromotility-program (this is Northwestern Medicine in Chicago and they are affiliated with Northwestern Memorial Hospital and Northwestern University)
https://motilitysociety.org/patient-resources/patient-support-groups/ (this is the NeuroGastroenterology and Motility Society). They may have some resources for you.
Finally, Cleveland Clinic???

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Profile picture for anitannapa @anitannapa

@jneener - Hi again, Okay, here are some resources for you.
https://www.nm.org/conditions-and-care-areas/gastroenterology/digestive-health-center/functional-bowel-and-neurogastromotility-program (this is Northwestern Medicine in Chicago and they are affiliated with Northwestern Memorial Hospital and Northwestern University)
https://motilitysociety.org/patient-resources/patient-support-groups/ (this is the NeuroGastroenterology and Motility Society). They may have some resources for you.
Finally, Cleveland Clinic???

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@anitannapa thank you!

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