@jneener - Hi again, Okay, here are some resources for you.
https://www.nm.org/conditions-and-care-areas/gastroenterology/digestive-health-center/functional-bowel-and-neurogastromotility-program (this is Northwestern Medicine in Chicago and they are affiliated with Northwestern Memorial Hospital and Northwestern University)
https://motilitysociety.org/patient-resources/patient-support-groups/ (this is the NeuroGastroenterology and Motility Society). They may have some resources for you.
Finally, Cleveland Clinic???