Gabapentin vs Side Effects

Posted by suzanne2 @suzanne2, Oct 29, 2020

It was suggested I start a new discussion on the medication Gabapentin. I have been on this medication for 2+ years for Fibromyalgia I don't feel this is of benefit to me for the prescribed pain but my doctor is not of the mind to taper me off. The issue of dizziness and brain fog which is a problem in Fibromyalgia and I feel is intensified by the medication. I don't think it is helping my daily pain but I would like other thoughts on this medication, side effects and long term use.

It’s really bologna that the government has control on drugs when there are really circumstances that people need them

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I’ve had 1 good day this week ! 1!

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i couldn't/wouldn't take gabapentin because when I took it it affected my brain. I couldn't remember what my medicine was for or who gave it to me.

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Ok, folks. Here's what I've lived and what I think. I've taken Lyrica, Neurontin (gabapantin), ibuprophen 800 mg/4Xdaily, Celebrex, Cymbalta, and a plethara of other drugs. I'm now 73, have had very serious arthritis for years, degenerative bone disease, osteoporosis at age 35, fibromyalgia, acid reflux, Barretts Esophogus, diverticulitis, I grow a forest of colon polyps!, seizure disorder, diabetes, Sarcoid, and other diseases and issues. I have a lot of pain. Now, All of these meds have helped me at some time with some things, none have been all things. None of the pain meds took away the pain. Lyrica was great for restless leg syndrome which was/is extremely bad, cramping of my toes/feet/legs/hips/back at night, peripheral neuropothy, and some pain. It caused brain fog and memory issues. I tapered off it w/doctor oversight. Neurontin is wonderful for nerve pain! For me! It helped my back, neck, etc. But, it caused side effects like thinking, etc that I choose not to deal with. So, my doc weaned me off. I don't take any of the above meds anymore and I've found other methods of relief. Here's what I do: water therapy 2X weekly- warm therapy pool, exercise in the pool (walking across the pool, etc using muscles and strengthening my entire body); walking – with my walker, carefully, at the mall or at Mayo or whatever; I take requip for restless leg syndrome – it works miracles! It works on the dopamine in the brain and I now walk straighter, much less balance issues, can pick up my legs easier and faster….pretty good! Only side effects are great! I take Cymbalta, the highest dose, for fibromyalgia. It works for me. Helps with pain! Extra strength Tylenol, as needed, CBD/THC tincture at night, 1:1. for Pain and anxiety. It works wonders! Melatonine to help w/sleep. It works. Thyroid med keeps so many systems working well. Helps loads with anxiety! Take, during covid and quarantine, a small dose of xanax. It's great. So, that's what I do. It's a combination of things my Mayo docs and I have found will work for me at this time. Things change. Meds work and then don't. Have no side effects, then do. So, we have to stay on top of our bodies and in touch with our doctors to monitor and maintain a decent lifestyle, to help with our pain and issues. I'm ranting. Raving. Just have to share these thoughts and maybe pass on some good ideas for helping yourselves. I've finally stopped raging about 'the system' or the 'doctors' or the 'pharm companies' or life. Wow! What a better life I have now that I've taken control, working with excellent doctors…worked for years to find them! Wishing you the same, blessings to you all.

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@terimel

I’ve tried them all ! It doesn’t help ! None of those drugs do . I have arthritis as well and can not take any anti inflammatory meds as I have had a stomach bleed !

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terimel, have you tried Cymbalta? It isn't for fibromyalgia originally. For depression/anxiety, I think??? But, folks found it really helped fibromyalgia pain! I take 120mg every morning. It's a miracle drug for me with this pain. I still have pain, but it keeps it pretty much lowered, acceptable. I also, use Voltarin creme. It's now OTC. I lather it on my legs, back, neck, whatever if I'm really hurting. Added to the Cymbalta, XS Tylenol, CBD/THC 1:1, melatonin, I can get to sleep w/much less pain, stay asleep and have relief. Also, I add the water therapy and walking. Just wonder if you do any of these things yet to help?

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@ess77

terimel, have you tried Cymbalta? It isn't for fibromyalgia originally. For depression/anxiety, I think??? But, folks found it really helped fibromyalgia pain! I take 120mg every morning. It's a miracle drug for me with this pain. I still have pain, but it keeps it pretty much lowered, acceptable. I also, use Voltarin creme. It's now OTC. I lather it on my legs, back, neck, whatever if I'm really hurting. Added to the Cymbalta, XS Tylenol, CBD/THC 1:1, melatonin, I can get to sleep w/much less pain, stay asleep and have relief. Also, I add the water therapy and walking. Just wonder if you do any of these things yet to help?

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I was on both. Gabapentin helps me more with pain.

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@benita7jay

i couldn't/wouldn't take gabapentin because when I took it it affected my brain. I couldn't remember what my medicine was for or who gave it to me.

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@benita7jay Welcome to Mayo Clinic Connect, a place to give and get support. It sounds like you did not tolerate gabapentin well. May I ask why you were taking it?

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I just recently stopped taking Gabapentin because of the "brain fog" it gave me. It helped with the pain of peripheral neuropathy in my feet and toes due to having diabetes, but the feeling of disorientation was too much to handle. I asked my doc if she could switch me to Lyrica for the pain. She did, and I'm having better results than I was having with Gabapentin. I've been taking Lyrica for 17-18 days now, I'll continue to take it because of the good results I've had from it thus far. Thank you, and I hope everyone has had an enjoyable Christmas up to this point. (4:53 PM, CST)

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@mojosteve1961

I just recently stopped taking Gabapentin because of the "brain fog" it gave me. It helped with the pain of peripheral neuropathy in my feet and toes due to having diabetes, but the feeling of disorientation was too much to handle. I asked my doc if she could switch me to Lyrica for the pain. She did, and I'm having better results than I was having with Gabapentin. I've been taking Lyrica for 17-18 days now, I'll continue to take it because of the good results I've had from it thus far. Thank you, and I hope everyone has had an enjoyable Christmas up to this point. (4:53 PM, CST)

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How much gabapentin were you taking.

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@bustrbrwn22

@wheelerma I forgot about this! I had terrible tremors while on gabapentin, at times I could not even sign my name. I remember going to the ER and the nurse rolling her eyeballs at me since I couldn’t even hold a pen to complete some paperwork. I guess she thought I was faking? Who would WANT to fake that?

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I just started Gabapentin two weeks ago. Have been on 300mg x3 times a day for anxiety. I went up to 450 last night and have had tremors all night long. Didn’t sleep. Doctor says it’s anxiety and wants me to take 600mg. I’m scared to now. The tremors were pretty aggressive at several points of the night. I was wondering, when you went to the hospital, were they able to do anything for you to make them go away? Just trying to decide if I want to take this larger dose and if the side effects are more debilitating so I have a remedy for it.

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@stout79

I just started Gabapentin two weeks ago. Have been on 300mg x3 times a day for anxiety. I went up to 450 last night and have had tremors all night long. Didn’t sleep. Doctor says it’s anxiety and wants me to take 600mg. I’m scared to now. The tremors were pretty aggressive at several points of the night. I was wondering, when you went to the hospital, were they able to do anything for you to make them go away? Just trying to decide if I want to take this larger dose and if the side effects are more debilitating so I have a remedy for it.

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@stout79
What are you being prescribed gabapentin for? It's supposed to be an anti-seizure medicine but it is prescribed for off label conditions, most notable is neuropathy pain. I see in your post history you take Trazadone and Seroquel? Do you take any other meds? Just wondering about possible interactions.

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@jesfactsmon

@stout79
What are you being prescribed gabapentin for? It's supposed to be an anti-seizure medicine but it is prescribed for off label conditions, most notable is neuropathy pain. I see in your post history you take Trazadone and Seroquel? Do you take any other meds? Just wondering about possible interactions.

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I dont take Trazadone, as it had side effects I did not want. I do take Seroquel 125mg a day, spaced out into 5 x 25mg pills throughout the day for mood stabilization. I now take Gabapentin 300 3 times a day. But Im having tremors off and on. Most of the day and night. I cant sleep, the tremors keep me awake. I dont know if they are from anxiety or this medication. It does seem to calm me down. But if its causing the tremors its not worth it.

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