Gabapentin vs Side Effects

Posted by suzanne2 @suzanne2, Oct 29, 2020

It was suggested I start a new discussion on the medication Gabapentin. I have been on this medication for 2+ years for Fibromyalgia I don't feel this is of benefit to me for the prescribed pain but my doctor is not of the mind to taper me off. The issue of dizziness and brain fog which is a problem in Fibromyalgia and I feel is intensified by the medication. I don't think it is helping my daily pain but I would like other thoughts on this medication, side effects and long term use.

@wheelerma

Where do I find your PM? I think I found PM but I didn't know what to look for?

Jump to this post

@wheelerma you should receive an email notification when @bustrbrwn22 sends you a PM (Private Message). More information can be found in the Get Started on Connect guide here – https://connect.mayoclinic.org/get-started-on-connect/

You can access the guide at the bottom of any Connect page by clicking the Get Started on Connect link in the left footer column.

REPLY

Thank you so much. How to access his message? I saw how to send one. Thanks

REPLY
@wheelerma

Thank you so much. How to access his message? I saw how to send one. Thanks

Jump to this post

@wheelerma, if @bustrbrwn22 sent you a private message, you should have received an email notification which will take you to the private message. You can view all of your private messages that you sent or that someone sent to you by going to the top of any Connect page and clicking the small envelope icon to the left of your profile icon.

REPLY

Thank you so much!!

REPLY
@bustrbrwn22

@wheelerma. Nothing helps/helped the pain but a painkiller, hard to come by in these overreactive times. Dropping you a PM.

Jump to this post

I was on gabapanten for several years, for chronic pain syndrom, fibromyalgia, neck/spine/back pain. It did help dull the pain, didn't relieve it, tho. I was also on Lyrica, for neuropathy, fibromyalgia and restles leg syndrom. It was very helpful, probably the most help I've had for each of those issues. I'm tapered off both now. Also, off hydrocodone, 800mg ibuprophen, celebrex, and a bunch of other pain meds. Actually, the best for my pain was huge doses of ibuprophen, for the anti-inflammatory qualities. And, I had no brain fog or other issues with it. But, it addressed only limited pain. Now, I take extra-strength tylenol, believe it! With, 1:1 cannabis. I also use THC tincture spray during the day if needed for pain. Just a touch helps take the edge off. I use CBD drops for anxiety, etc daily and at night.No vapeing or other cannibis. Methacarbanol 750mg helps me. I also use water therapy for exercise which is the very best thing I've found, with the cannibis, to relax muscles, relieve pain and recondition my body, mind and spirit. I think I've found a pretty good combination of treatment for the different needs. BTW: I've lost 20 pounds since off Lyrica!!!!

REPLY

Thanks for sharing @ess77. I loved reading your plan – until I read about the 20 pounds weight loss when you came off Lyrica. I take 150 ml Lyrica 3times a day and am dealing with 60 pounds unplanned weight loss due to an undiagnosed condition. I couldn’t imagine dropping another 20 pounds if I stopped taking Lyrica! Yikes.

However, you sound like you are doing great. That’s encouraging to hear.

REPLY

60 pounds unplanned weight loss???? I was thrilled at the 20 pound loss as I gained when I was on Lyrica.Hope to loose more as I get off more drugs AND get this crazy edema under control. I often lose/gain 5-8 pounds overnight, fluid retention. So, congestive heart failure….but with the water therapy exercise my heart is improving! That's a lot of Lyrica you're taking. It is a great drug, helped me a lot, but I'm glad to be off it and others. Much clearer thinking, it's as though the world has light again…..Hopefully, you'll continue to get relief and never experience the side effects. Yes, I'm doing well now. It's a struggle, isn't it? I'm so excited with where I am now after so many years of wrong or no diagnoses and bad treatment. I believe in miracles and am proof they do exist! So thankful for every morning! Hope they find what's going on with you and your days get better and better!

REPLY

Unfortunately I have had to accept that I need the Gabapentin for pain. I tried cutting back as suggested by the Neurologist P.A.and my pain skyrocketed! I didn't think it could get any worse but I was wrong. I have had to accept the 600mg, 3x a day ritual and all the side effects. Either have brain fog and dizziness or literally be writhing with pain.

On top of my fibromyalgia pain and pinched nerves I tripped over some filled garbage bags and did something to my upper right arm. I am unable to put any pressure on it and have been wrapped with a heating pad. I am literally counting down the days till my first appointment at the pain clinic in January.

REPLY
@suzanne2

Unfortunately I have had to accept that I need the Gabapentin for pain. I tried cutting back as suggested by the Neurologist P.A.and my pain skyrocketed! I didn't think it could get any worse but I was wrong. I have had to accept the 600mg, 3x a day ritual and all the side effects. Either have brain fog and dizziness or literally be writhing with pain.

On top of my fibromyalgia pain and pinched nerves I tripped over some filled garbage bags and did something to my upper right arm. I am unable to put any pressure on it and have been wrapped with a heating pad. I am literally counting down the days till my first appointment at the pain clinic in January.

Jump to this post

I'm so sorry you're in so much pain. I've experienced this mess since I was in my 30's. I'm 73 now. Back then, no one knew anything about what I was going through, thought it was mostly in my head!!! We wormen went through many years of the doctors telling us everything was caused by our hormones, our nerves, all in the head. Thanksfully, we have wonderful docs now who listen, hear and have so much more knowledge, such different attitude. Lyrica was a good drug for my pain and restless leg syndrome. I've replaced it, due to the side effects, with 1:1 CBD/THC, Voltaron as needed, wonderful water therapy at the Y heated pool. These seem to be an answer for now. I do love the clarily of thinking I have now and the weight loss of course. I'm taking Requip (dopomine) for the restless leg syndrome. It's wonderful, better than Lyrica for that. It also helps me with balance, walking, lifting my legs/feet. I've found a good drug for me! Bless you and make you get the relief you need. Thinking of you.

REPLY
@faithgirl30

Thanks for sharing @ess77. I loved reading your plan – until I read about the 20 pounds weight loss when you came off Lyrica. I take 150 ml Lyrica 3times a day and am dealing with 60 pounds unplanned weight loss due to an undiagnosed condition. I couldn’t imagine dropping another 20 pounds if I stopped taking Lyrica! Yikes.

However, you sound like you are doing great. That’s encouraging to hear.

Jump to this post

My doctor warned me about weight gain with Lyrica, so I didn't even want to try it.

REPLY

Perhaps you could suggest to your doctor to try you on other medications proven to help with fibromyalgia. I’ve tried a few and Cymbalta has significantly reduced my pain.

REPLY

I’ve tried them all ! It doesn’t help ! None of those drugs do . I have arthritis as well and can not take any anti inflammatory meds as I have had a stomach bleed !

REPLY
Please sign in or register to post a reply.