Mayo Clinic Connect
Has anyone every experienced muscle and facia pain from gabapentin?
Liked by Mamacita, Volunteer Mentor
I found gabapentin made me too much of a zombie. I lost nearly 2 years of memory while on gabapentin, also called neurontin. One day I held my daughter’s hand, in kindergarten, and I was completely shocked that she now had a big girl hand. The last time I remember holding her hand, she was 3 and it was a tiny hand that held on to mine. Had I not held her hand for 2 whole years? Or did I simply not remember? I will sadly never know. Lyrica and Topamax are newer meds and may not cause as many side effects. I also tried amitriptiline, which is an older antidepressant, but it does work on some people and it encourages sleep. I would not recommend depakote. I gained 20 lbs in 2 months and developed high blood pressure that is not well-controlled by meds. Topamax would be my first choice. It did cause memory issues. (To this day, 3 years after ending it) I have trouble finding my words and I also have trouble recognizing faces and names, even of close friends. It usually leads to weight loss. Users call it Dope-a-Max. I have no experience with Lyrica. Best wishes to you.
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I was on topamax for a decade, 400 mg twice per day. I started at a much lower dose. I did not lose time or have daytime drowsiness with topamax. But many people cannot tolerate Topamax. It is worth a shot. I take 120 mg Cymbalta and 2 mg klonapin every day. Neither helps the pain. I get marginal relief of depression from Cymbalta; I have tried many, many anti-depressants over the years, with no luck. Klonapin has been a godsend for my anxiety and agoraphobia. Way better than ativan. But again, it did not offer pain relief. Tizanidine, taken while I am in bed (It kicks in fast) has given me my sleep back. But if I awake at night to pee, I often fall because it is so strong.
THE “NEW KIDS ON THE BLOCK” ARE: BOTOX AND KETAMINE; TIME MAGAZINE HAD A SPECIAL COVERAGE OF
BOTOX IN JANUARY KETAMINE FOR CHRONIC PAIN IS GETTING MORE ATTENTION AFTER MANY YEARS OF USE BY THE RETURNING MILITARY, FOR SURGERY. SOMETIMES KETAMINE IS COMBINED WITH AN OPIOD,BUT THE LATTER MAY BRING PROBLEMS!.
I take Tizanidine at bedtime too, and it is helpful, especially for my RLS (Restless Legs Syndrome). It seems to give me some relief with the Myofascial pain too. This is one drug I’d never take unless I’m going straight to bed though, and I’d never get behind the wheel of a car while under its influence. If I do a little reading in bed, I fall asleep with a book in hand.
Dear “SISTER” : I did a correction to my initial reply. I also mentioned that both Lyrica and Klonopin have been used with some success.
For CHRONIC PAIN, SOME SUCCESS IS BEING FOUND IN VERY RECENT YEARS WITH KETAMINE INJECTIONS. I’M NOT SURE IF A PILL IS AVAILABLE. KETAMINE AS USED WITH VETS PRIOR TO THIS.
Allow me to quote you, @ujeeniack:
“i see nothing to indicate that you have seen even one neurologist or had tests done. If you read the Mayo Clinic or Webmd you will find that gabapentin is NOT for RL syndrome.”
I saw your ‘correction’. You didn’t even mention you were referring to RLS.
It was the “I see nothing to indicate that you have seen even one neurologist or had tests done” for which you owe @flor an apology.
It’s very difficult for some people to share personal stuff like this, and it’s so easy to scare people off with statements like that. You could have been nicer about your response to @flor and more specific about your correction. You knew how to dish it out, but got your feathers ruffled easily enough when you got called on it. It doesn’t cost anything to be nice, especially to someone who is sharing this kind of content.
That’s all I have to say on this subject. Someone had to stand up for @flor. Beyond that, It’s distracting the rest of the group from what this site is about,
I hope everyone sleeps peacefully and pain-free. Goodnight all.
Hi my name is Janie56. I am a new member. I also have Myo. I have had it for about five years. I have went through saline injections with no relief. I’m on endocette and oxycodone daily. Still having pain. Been to chiropractor and have had acupuncture. Right now I am doing self hypnosis. Believe it or not,it is relaxing the nerves and muscles and I am having some relief. I also take cymbalta for the last five years. I have never tried gabapentin.
Thanks, @flor for sharing. I like the idea of not having to swallow another pill or if you do, maybe it could be a lower dose. I’ll have to check this out. Did you need a prescription? In addition to being helpful for RLS, maybe it could help Myofascial Pain. Thanks again. Susan
I hope that doesn’t prevent you from continuing to post and share your experiences. Normally, everyone on the site is supportive, and it not, maybe they’re having a bad day. Please keep sharing. Susan
Liked by Colleen Young, Connect Director, Jen, Alumna Mentor, Mamacita, Volunteer Mentor, paracat
I am developing hearing loss, and my eyes are mote than ever sensitive to light. Unfortunately my ability to smell has not decreased; it is my superpower. Go me! I have been treating the hearing loss to taking narcotics 2x/week. I never associared it with Cymbalta, Topamax, gabapentin, etc.
OK, I understand now. Thanks.
As with most of these postings, I think I am ignorant of the original postings and problems and so I have trouble in replyng.
In this case,I quickly see a problem in polypharmacy: too many cooks spoil the soup. You need to be wary of overkill on the CNS.
Did you discuss the usage of these drugs at the same time with your neurologist or psychiatrist?
I take bupropion (Wellbutrin) for mild chronic depression, 150 mg/day, but see no effect For many years I used Zoloft but probably incorrectly.
Amen! @sistergoldenhair. Perfect response to a hurtful, curt remark. Thank you!
“Ignorant of the original postings”… Yes, you are.
“Polypharmacy”?? Don’t you tell me what I ‘need’ to do.
“Did you discuss the usage…” The question is inappropriate and intrusive.
Look at your last paragraph; “but probably ‘incorrectly’…” One word is worth a thousand.
Please don’t reply to my posts.
I go to a pain clinic, not a neuro, for all of my injections. I am awake, but very sedated with versed and fentanyl. I feel no pain. Yes, I am fortunate. I had to wait over a year before being accepted to this clinic. What good are saline injections? My injections are either botox, anesthetic , or anesthetic plus steroids. To me, saline is like a plavebo6placebo. Another benefit to pain clinic is that my meds are prepared at a real, regulated pharmacy, and not an unregulated compounding pharmacy. That was a big issue a couple of years ago in the States. Ask for sedation and see how it goes. Good luck!
I have a 15 year old that has severe Chronic Pain and she deals with it more than any one i have ever seen. I have had neck and back surgery. She never complains. Please be thankful for what you have.
Hi, I have Fibromyalgia, migraines, and Myofacial muscle disorder too. I’m told some reasons I have theses hereditary and some reasons are that I’ve had numerous a number of sporting accidents I’ve tried many of the previously mentioned medications, Lyrica, Cymbalta, Gabapentan, Topimax, some reduce the pain, all have various side effects most intolerable for me.
My #1and/2things that absolutely help me are the myofacial manual muscle release and all the injections. Botox injection for headaches/neck, lidocaine/cordisone injection mixture for my S/I joint when it acts up, into my shoulder joint, and for neck/back trigger points. The shoulder was previously broken/torn (+5 surgeries), hip in another accident. The only injection that I’m sedated for is my hip:S/I joint and that can still hurt enough to wake me right through the sedative.
I think each each drug and procedure is very individual. I wish I could stop taking all the various medications and have no side effects and have them work.
I do have a question for everyone who has taken any or all of the previously mentioned drugs. Has anyone experienced the loss of senses. I have had sudden partial hearing loss in my left ear. Went to bed with normal hearing and woke up with about 1/2 gone. I don’t smell well, taste well or see well either. All of this has happened over the last 2 years since I started this medical roller coaster. I have had many CTs, MRIs, contrast dye and other painful things.
You all inspire me,
Friends, thanks for all your comments. You inspire me too.
Something I’ve taken from this forum is that I plan to discuss discontinuing Gabapentin with my Physician. The side effects are disagreeable, and the medication isn’t helping me enough to continue tolerating them. I am happy for anyone who IS being helped by it.
I’ve heard from some sources that Gabapentin should not be abruptly discontinued, that tapering down is necessary. Is there anyone who could share their experience of discontinuing Gabapentin? I don’t want to cause myself more unpleasantness. Any feedback will be appreciated.
Liked by Mamacita, Volunteer Mentor, GailBL, Volunteer Mentor
I’m so sorry to hear of your daughter’s severe, chronic pain, and that you’ve had to endure neck and back surgery too. Pain isn’t respectful of person or age. I believe the people who post here collectively empathize with you both. Each person is unique, and his/her pain experience is unique to them, and might not quite be up to being grateful for what they’re experiencing. If it were one of my children experiencing this kind of suffering, I’d want to trade places with them, just as you certainly would want to do. It’s so heartbreaking to witness your child enduring this kind of pain.
Please accept my wholehearted good wishes to you both for a resolution of what you are going through.
@sistergoldenhair, I took Gabapentin for about 4 months. Started a 300 mg and increased to 900 mg daily over a 3 week period. I started feeling foggy, forgetful and drowsey. I didn’t feel any relief from the pain. I chose to quit the medication. So after doing some research I started to tapper down and stopped the medication within two weeks. I would discuss with your doctor about stopping meds as everyones medical history is different. It may take you longer.
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