Fun with ADT and testosterone
I know I’ve mentioned to people on here that I quit taking Orgovyx. I was on Lupron for seven years and then took Orgovyx for 8 months. I did this after discussing it with my oncologist. After all this time on ADT, it was unlikely that my testosterone was going to come back quickly if at all. She agreed but also added the sensitive testosterone test to my monthly tests.
It’s always been believed that it takes as long to get your testosterone back as you were on Lupron. Not sure that really is accurate..
First month i was undetectable second month testosterone hit five, third and fourth months it went up 80% each month. Last 2 months over 20% each month and it hit 49 on month 8. This is a lot faster than we were expecting it to come back. We know that PSA comes back much quicker when you’re on Orgovyx. Did that last eight months make that big difference and offset 7 years of Lupron.
I know other people in here have reported that their testicles had shrunk a lot on ADT, but I never noticed that. I wonder if that is a factor.
I emailed my oncologist about this, as we had been discussing the number in previous months. She responded to me that based on the Embark trial I really should not let it get above 50, so I’m back on Orgovyx. She has a huge client base, she’s the only GU oncologist in the whole Kaiser system and she’s in northern California. Within 42 minutes of sending the email to her about whether or not I should go back on Orgovyx she had communicated back with me twice and put in a prescription for orgovyx. People complain about non-responsive doctors, she is available almost all the time and extremely knowledgeable.
You never know how long it will take to get your testosterone back! SURPRISE!!!
Interested in more discussions like this? Go to the Prostate Cancer Support Group.
I was on Lupron only for six months about six years ago. My Testosterone returned to 400 in three months. I had a lesion on my sacrum radiated four years ago and was on Lupron, Abiraterone and Prednisone for three years. I am off ADT now for ten months and have had < .1 PSA for four years. My T has been slower this time < 4, 15, 24, 27, 34, 67, 97. I hope that my T will again return to normal and my PSA and PSMA PET scans continue to show no signs of cancer, but I understand that my cancer could return at any time. I HATED ADT, but it was effective and I am prepared to have to go back to it if necessary.
I self referred myself to Mary Bird Perkins who has a GU Oncologist forca second opinion. I had my pet scan done there so hopefully I won't ill hear something soon. Thanks again.
Yikes 7 years on Lupron ,I'm 15 months on Elligard UGHH. Your my Hero Jeff...