Frustration with biopsy scheduling due oi MRI issues
I have to vent. I was scheduled to have my fusion biopsy today and yesterday they cancelled on me and told me that the next available is August. I had my MRI 3/12 due to rising PSA over a 3 month period. It came back with a Pi-Rads 4 due to an ill defined lesion in the peripheral zone and positive DCE (meaning angio genesis is already underway. Every other parameter also point to aggressive disease.
As requested I took my MRI disc to my urologist appointment on 4/16 and scheduled me for a fusion biopsy for today (6/2) and was going to get me in earlier if possible due to the alarming MRI report.
Now for the problem. My MRI was performed in South Carolina (where I have a second home). I received a call one week before my biopsy from my urologist in Delaware telling me that the hospital was unable to read my MRI disc required for the fusion biopsy. Fortunately I was in SC and was able to have them burn a second one and drove 11 hours the next day to get it to them. The hospital radiology dept. could not read the second disc either. They then had the SC hospital upload the MRI file directly to them. Again they could not read it. They said that they would work on it, and I received an email confirming my procedure today so I thought all was good. Yesterday the doctor's office called and cancelled and had me bring the disc back to them so that they could send it to MSU in Mass. where they thought they could read it.
Now I am at their mercy trying to schedule my biopsy with them telling me the next available slot isn't until some time in August! I asked if I couldn't just get another MRI in DE but they said that insurance wouldn't cover the second MRI. I am so frustrated knowing that I have an aggressive cancer that could metastasize and that time is of the essence.
I have reached out to Johns Hopkins for a second opinion since they are a center of excellence but they want the MRI and biopsy info before they schedule it.
It is so discouraging. I don't know what to do. I can't sleep and this is so stressful.
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@keithl56 Sounds just like my experience getting a 2nd opinion at a COE (Mayo in my case) 😉. Good luck!
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