Frustrated undiagnosed

Posted by car0717 @car0717, Oct 31, 2023

My father's mental health is deteriorating with no diagnosis. All test and scan come back normal. No nerve/muscle concern. Vocal cords move and close. All right concerns are right side - right side eye wider and little droopy mouth a little droopy right side. Voice is a whisper often stares, swallowing issues feels food gets stuck Neuro thought Parkinson but there are no tremors and a typical Parkinson doesn't fit either. Levodopa was prescribed after 6 days he stopped with bad side effects He is now on a feeding tube and lost 50 lbs. Blood pressure is 127/65 no fever or chills. Any suggestions?

Interested in more discussions like this? Go to the Brain & Nervous System Support Group.

Scott R L | @scottrl | Oct 31, 2023

Has he had a brain MRI?

I'm a stroke patient, so when I see one side being affected, it makes me wonder.

Becky, Volunteer Mentor | @becsbuddy | Oct 31, 2023

@car0717 I’m so sorry this has happened to your dad. It’s especially hard to deal with when it is your Dad or Mom. You said he rightsided droopiness, swallowing problems, and voice problems, but you haven’t said how old he is. Has he seen the neurologist and gastroenterologist, to help evaluate what’s going on. Has anyone mentioned a speech therapist—they can help figure out speech and swallowing problems. When i fist got my autoimmune illness and i was in rehabilitation, I had a speech therapist at all my meals. She was excellent!
https://connect.mayoclinic.org/group/neuropathy/. Have you looked at the Neuropathy Support Groups. That also have a lot of information.
Will you keep me posted as you learn more about your dad?

car0717 | @car0717 | Oct 31, 2023

In reply to @becsbuddy "@car0717 I’m so sorry this has happened to your dad. It’s especially hard to deal with..." + (show)

Hello, my father just turned 70 July 26. We have seen 3 neurologist all if which can't diagnose because he truly doesn't fit any one near disease. He just had a scope of the esophagus with no findings. Vocal cords more and close was reviewed by scope. What type of autoimmune did you have?

car0717 | @car0717 | Oct 31, 2023

In reply to @scottrl "Has he had a brain MRI? I'm a stroke patient, so when I see one side..." + (show)

Hello, yes 2 MRI with contrast and CT Scan with contrast all normal

Scott R L | @scottrl | Nov 1, 2023

In reply to @car0717 "Hello, yes 2 MRI with contrast and CT Scan with contrast all normal" + (show)

Thank you.

Becky, Volunteer Mentor | @becsbuddy | Nov 1, 2023

In reply to @car0717 "Hello, my father just turned 70 July 26. We have seen 3 neurologist all if which..." + (show)

@car0717 Thank you asking about me. I have an unusual autoimmune disease that affected my brain. Called Clippers—chronic lymphocytic inflammation with pontine perivascular enhancement responsive to steroids. After about 6 years, I’m doing OK.
Have you thought about asking your question about your Dad in the Caregivers Support Group?
https://connect.mayoclinic.org/group/caregivers/
Many of the members are dealing with similar issues.
Think you might try it?